Actively Recruiting
Empowering Families of Migrant Children and Youth with Special Healthcare Needs
Led by McGill University Health Centre/Research Institute of the McGill University Health Centre · Updated on 2024-09-26
324
Participants Needed
3
Research Sites
154 weeks
Total Duration
On this page
Sponsors
M
McGill University Health Centre/Research Institute of the McGill University Health Centre
Lead Sponsor
U
Unity Health Toronto
Collaborating Sponsor
AI-Summary
What this Trial Is About
The goal of this randomized controlled trial is to test if a patient navigator program improves healthcare experiences and outcomes for migrant families caring for a child or youth with special healthcare needs (i.e. chronic health condition). The main questions are, for migrant families with a child or youth with special healthcare needs: Does a patient navigator reduces barriers to care? Does a patient navigator improve care coordination, caregiver empowerment, caregiver stress and quality of life? What are the healthcare experiences for families with and without the patient navigator intervention? Participants will: * Receive the intervention, i.e., the patient navigator program, or continue with standard of care for 12 months * Fill out questionnaires at 3 time points on barriers to care, caregiver stress, care coordination, and their child's health
CONDITIONS
Official Title
Empowering Families of Migrant Children and Youth with Special Healthcare Needs
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Primary caregiver of child or youth 18 years or younger who is a first- or second-generation migrant (born outside Canada or with parents born elsewhere, including immigrants, refugees, asylum seekers, temporary workers, international students, or undocumented individuals)
- Child or youth has special healthcare needs lasting or expected to last at least 12 months, identified by the CYSHCN Screener
- Child or youth is experiencing care transitions between at least two healthcare settings such as primary care, community care, specialist care, or hospital care
You will not qualify if you...
- Caregiver has lived in Canada for more than 10 years
- Families receiving peer navigation support at study sites to avoid overlap of interventions
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 3 locations
1
Unity Health Toronto, Compass Clinic
Toronto, Ontario, Canada, M5B 1W8
Not Yet Recruiting
2
CIUSSS West-Central Montreal
Montreal, Quebec, Canada, H3N 1Y9
Actively Recruiting
3
Montreal Children's Hospital
Montreal, Quebec, Canada, H4A 3J1
Actively Recruiting
Research Team
M
Melissa Tachdjian
CONTACT
P
Patricia Li, MD MSc FRCPC
CONTACT
How is the study designed?
Study Type
INTERVENTIONAL
Masking
SINGLE
Allocation
RANDOMIZED
Model
PARALLEL
Primary Purpose
HEALTH_SERVICES_RESEARCH
Number of Arms
2
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