Actively Recruiting
Enhancing Information Management for Young Adults After Genetic Cancer Risk Testing
Led by Dana-Farber Cancer Institute · Updated on 2026-04-24
40
Participants Needed
1
Research Sites
169 weeks
Total Duration
On this page
Sponsors
D
Dana-Farber Cancer Institute
Lead Sponsor
N
Nest Genomics
Collaborating Sponsor
AI-Summary
What this Trial Is About
This research is being done to develop the electronic platform Nest for young adults (ages 18-39) who have had prior cancer genetic testing. The platform will give patients and their clinicians access to continuously updated information about both pathogenic variants and variants of uncertain significance (VUS). The name of the intervention used in this research study is: Nest portal (electronic platform for patients and clinicians)
CONDITIONS
Official Title
Enhancing Information Management for Young Adults After Genetic Cancer Risk Testing
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Ages 18 to 39 years, inclusive
- Previous cancer genetic testing with a pathogenic variant or variant of uncertain significance; results previously received from clinical team
- English-speaking and reading ability
- Receiving care at Dana-Farber Cancer Institute
- Not undergoing active cancer therapy at the time of approach
- Clinicians caring for young adults aged 18-39 with cancer risk syndromes (oncologists, gastroenterologists, geneticists, nurse practitioners, physician assistants, genetic counselors)
You will not qualify if you...
History of severe allergic reactions to study medication Currently pregnant or breastfeeding Recent participation in another clinical trial within the last 30 days Presence of uncontrolled medical conditions that could affect safety
AI-Screening
AI-Powered Screening
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Trial Site Locations
Total: 1 location
1
Dana Farber Cancer Institute
Boston, Massachusetts, United States, 02115
Actively Recruiting
Research Team
J
Jennifer Mack, MD
CONTACT
How is the study designed?
Study Type
INTERVENTIONAL
Masking
NONE
Allocation
NON_RANDOMIZED
Model
SINGLE_GROUP
Primary Purpose
HEALTH_SERVICES_RESEARCH
Number of Arms
2
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