Actively Recruiting
Epidemiological Data on Mast Cell Pathologies in France
Led by Imagine Institute · Updated on 2026-04-22
13000
Participants Needed
21
Research Sites
739 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
Mast cell disorders constitute a heterogeneous group of diseases, including : * mastocytosis, i.e. cutaneous, indolent and severe forms of the disease, such as aggressive mastocytosis and mast cell leukemia) ; * mast cell-associated diseases such as mast cell activation syndrome (idiopathic, secondary or clonal), affecting both children and adults. No epidemiological data are currently available in France. In France, medical care of mast cell disorders is mainly provided by a rare disease network (CEREMAST), whose CRMR is located at the Necker Enfants Malades hospital in Paris. A total of 20 centers are located throughout France. Our aim is to use this network to study patients suffering from these diseases. The overall aim of the study is to improve the understanding, diagnosis, prognosis, recognition and management of patients with mastocytosis.
CONDITIONS
Official Title
Epidemiological Data on Mast Cell Pathologies in France
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Children from birth and adults of any age
- Diagnosed with one of the following mast cell diseases: mastocytoses (cutaneous, systemic, and sarcomas) defined by WHO 2016 classification; mast cell activation syndromes (idiopathic, secondary, and clonal); other mast cell activation disorders (MCAD-NOS) defined by Vienna classification; or pre-mastocytosis or MMC with 1 to 2 criteria according to WHO 2016 classification
- Managed in France in a rare disease reference, constitutive, or competence center (CEREMAST) with DGOS labelization
You will not qualify if you...
- Patient or parent/guardian opposes participation in the study
AI-Screening
AI-Powered Screening
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Trial Site Locations
Total: 21 locations
1
CHU AMIENS site sud
Amiens, France
Actively Recruiting
2
Chu Angers
Angers, France, 49100
Actively Recruiting
3
Chu - Besancon
Besançon, France, 25000
Actively Recruiting
4
Chu - Caen
Caen, France, 14033
Actively Recruiting
5
Chu - Clermont Ferrand
Clermont-Ferrand, France
Actively Recruiting
6
CHU Grenoble
Grenoble, France, 38700
Actively Recruiting
7
Chru Lille
Lille, France, 59037
Actively Recruiting
8
Chu - Limoges
Limoges, France, 87000
Actively Recruiting
9
Hospices Civils de Lyon
Lyon, France
Actively Recruiting
10
Chu - La Timone - Marseille
Marseille, France, 13005
Actively Recruiting
11
CHU de Montpellier
Montpellier, France, 34090
Actively Recruiting
12
CHU de NANCY
Nancy, France, 54035
Actively Recruiting
13
Chu - Nantes
Nantes, France, 44000
Actively Recruiting
14
Hôpital Universitaire Pitié Salpetrière
Paris, France, 75013
Actively Recruiting
15
Hôpital Necker-Enfants malades
Paris, France, 75015
Actively Recruiting
16
CHU - Poitiers
Poitiers, France
Actively Recruiting
17
Chu - Rennes
Rennes, France, 35000
Actively Recruiting
18
CHU Réunion sud - Saint Pierre
Saint-Pierre, France, 97448
Actively Recruiting
19
Chru - Strasbourg
Strasbourg, France, 67200
Actively Recruiting
20
CHU Purpan
Toulouse, France, 40031
Actively Recruiting
21
CHU de TOURS
Tours, France, 37000
Actively Recruiting
Research Team
J
Julien Rossignol, Dr
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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