Actively Recruiting

Age: 2Years +
All Genders
NCT05485831

Epidyolex® in Lennox Gastaut, Dravet Syndrome and Tuberous Sclerosis Complex: an Observational Study in ITALY

Led by Jazz Pharmaceuticals · Updated on 2026-02-17

100

Participants Needed

18

Research Sites

101 weeks

Total Duration

On this page

Sponsors

J

Jazz Pharmaceuticals

Lead Sponsor

A

Advice Pharma Group srl

Collaborating Sponsor

AI-Summary

What this Trial Is About

This is a prospective, observational study on approximately 70-100 Real World participants affected by LGS, DS, or TSC treated with Epidyolex® as prescribed in the summary of product characteristics. The eligible participants are expected to participate in the study for a duration of 52 weeks of treatment.

CONDITIONS

Official Title

Epidyolex® in Lennox Gastaut, Dravet Syndrome and Tuberous Sclerosis Complex: an Observational Study in ITALY

Who Can Participate

Age: 2Years +
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Adult patients, and minor patients 2 years old diagnosed with LGS, DS or TSC.
  • Clinical decision, taken by the physician, to initiate Epidyolex400 mg/mL oral solution.
  • Adult participants, parents or legal representatives must be willing and able to give informed consent/assent for participation in the study.
Not Eligible

You will not qualify if you...

  • Participants currently using or have used recreational, medicinal cannabis, or cannabinoid-based products within the three months prior to study entry and are unwilling to abstain from these products for the duration of the study.
  • Any reason, according to Investigator's judgment, able to compromise compliance with procedures outlined in the study.
  • Contraindications, special warnings, and precautions for use as detailed in the Summary of Product Characteristics (SmPC), particularly related to liver function markers (AST, ALT, and total bilirubin), must be considered by the treating physician.

AI-Screening

AI-Powered Screening

Complete this quick 3-step screening to check your eligibility

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Trial Site Locations

Total: 18 locations

1

Policlinico Sant'Orsola di Bologna

Bologna, Italy, 40138

Actively Recruiting

2

NPI AOU Mater Domini Università Magna Graecia

Catanzaro, Italy, 88100

Actively Recruiting

3

Università degli studi "G. D'annunzio" Chieti

Chieti, Italy, 66100

Actively Recruiting

4

Azienda Ospedaliera Universitaria Meyer Neurologia Pediatrica

Florence, Italy, 50139

Actively Recruiting

5

Istituto Gaslini Neurologia Pediatrica e Malattie Muscolari

Genova, Italy, 16147

Actively Recruiting

6

AOU Gaetano Martino

Messina, Italy, 98124

Actively Recruiting

7

Centro Regionale Epilessia - ASST Santi Paolo e Carlo

Milan, Italy, 20142

Actively Recruiting

8

ASST Grande Ospedale metropolitano Niguarda

Milan, Italy, 20162

Actively Recruiting

9

Azienda Ospedaliera Universitaria Federico II

Naples, Italy, 80131

Actively Recruiting

10

AOU Maggiore della Carità di Novara

Novara, Italy, 28100

Actively Recruiting

11

AOU di Padova

Padova, Italy, 35128

Actively Recruiting

12

Policlinico Tor Vergata

Roma, Italy, 00133

Actively Recruiting

13

IRCCS Ospedale Pediatrico Bambin Gesù

Roma, Italy, 00165

Actively Recruiting

14

Fondazione Policlinico Universitario Agostino Gemelli - IRCCS-NPI

Roma, Italy, 00168

Actively Recruiting

15

Azienda Ospedaliero Universitaria Sant'Andrea

Roma, Italy, 00189

Actively Recruiting

16

Ospedale Casa del sollievo e della sofferenza

San Giovanni Rotondo, Italy, 71013

Actively Recruiting

17

AOU Città della Salute PO Molinette

Torino, Italy, 10126

Actively Recruiting

18

Azienda Ospedaliero Universitaria delle Marche

Torrette, Italy, 60126

Actively Recruiting

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Research Team

C

Clinical Trial Disclosure & Transparency

CONTACT

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

1

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Epidyolex® in Lennox Gastaut, Dravet Syndrome and Tuberous Sclerosis Complex: an Observational Study in ITALY | DecenTrialz