Actively Recruiting
The EUROSCA Natural History Study
Led by Ataxia Study Group · Updated on 2017-06-29
400
Participants Needed
16
Research Sites
2348 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The key goals of EUROSCA-NHS is to determine and compare the rate of disease progression in SCA1, SCA2, SCA3 and SCA6 including determination of the order and occurrence of non-ataxia symptoms, assessment of activities of daily living (ADL) and quality of life (QoL), and identification of predictors of disease progression and survival.
CONDITIONS
Official Title
The EUROSCA Natural History Study
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Progressive, otherwise unexplained ataxia
- Positive genetic testing for SCA1, SCA2, SCA3, and SCA6
- Written informed consent by the patient or his legal agent
You will not qualify if you...
History of severe allergic reactions to study medication Currently pregnant or breastfeeding Recent participation in another clinical trial within the last 30 days Presence of uncontrolled medical conditions that could affect safety
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 16 locations
1
Department of Neurology, Medical University, Innsbruck
Innsbruck, Austria
Active, Not Recruiting
2
Université Libre de Bruxelles (ULB), Neurology Service - ULB Hôpital Erasme, ULB Laboratory of Experimental Neurology
Brussels, Belgium
Active, Not Recruiting
3
Hôpital de la Pitié-Salpêtrière, Département de Génétique
Paris, France
Active, Not Recruiting
4
Department of Neurology, St. Josef Hospital, University Hospital of Bochum
Bochum, Germany
Active, Not Recruiting
5
Department of Neurology, University of Bonn
Bonn, Germany, 53105
Actively Recruiting
6
Department of Neurology, University Clinic Essen, University of Duisburg-Essen
Essen, Germany
Active, Not Recruiting
7
Department of Neurology, University of Frankfurt
Frankfurt, Germany
Active, Not Recruiting
8
Department of Neurodegeneration and Hertie-Institute for Clinical Brain Research, University of Tübingen
Tübingen, Germany
Active, Not Recruiting
9
Department of Medical Genetics, University of Pecs
Pécs, Hungary
Active, Not Recruiting
10
Department of Neurology, Zala County Hospital
Zalaegerszeg, Hungary
Active, Not Recruiting
11
Fondazione-IRCCS Istituto Neurologico Carlo Besta
Milan, Italy
Active, Not Recruiting
12
Department of Neuroscience, Federico II University Naples
Naples, Italy
Active, Not Recruiting
13
Radboud University Medical Center, Department of Neurology, Donders Institute for Brain, Cognition, and Behaviour
Nijmegen, Netherlands
Active, Not Recruiting
14
Institute of Psychiatry and Neurology
Warsaw, Poland
Active, Not Recruiting
15
University Hospital Marqués de Valdecilla (IDIVAL), University of Cantabria
Santander, Spain
Active, Not Recruiting
16
Institute of Neurology
London, United Kingdom
Active, Not Recruiting
Research Team
T
Thomas Klockgether, Prof. Dr.
CONTACT
H
Heike Jacobi, Dr.
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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