Actively Recruiting
Evaluating Dyspnea in Autoimmune Myasthenia Gravis "Why am I Short of Breath?"
Led by Institut de Myologie, France · Updated on 2026-05-08
50
Participants Needed
1
Research Sites
112 weeks
Total Duration
On this page
Sponsors
I
Institut de Myologie, France
Lead Sponsor
A
APHP
Collaborating Sponsor
AI-Summary
What this Trial Is About
Individuals with MG (IwMG) experience shortness of breath that may be activity-related, occur at rest and even happen during sleep. Dyspnea is a complex, multidimensional and multifactorial symptom involving sensory perception, cognition and emotion. Identifying the cause(s) of dyspnea in MG may assist in finding therapeutic strategies, reducing discomfort, improving QoL and potentially limiting respiratory deterioration and incidence of MG crisis.
CONDITIONS
Official Title
Evaluating Dyspnea in Autoimmune Myasthenia Gravis "Why am I Short of Breath?"
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Age 18 years or older
- Confirmed diagnosis of autoimmune myasthenia gravis
- Experience shortness of breath in daily life with a score of 1 or 2 on the respiration item of the MG-activities of daily living score
- Signed informed consent form
- Affiliated with or beneficiary of a social security scheme
You will not qualify if you...
- Known pregnancy
- Known respiratory disorder other than myasthenia gravis
- Recent respiratory infection within the past 4 weeks
- Current myasthenia gravis crisis or exacerbation requiring increased medication or hospital admission
- No dyspnea, indicated by a score of 0 or 3 on the respiration item of the MG-activities of daily living score
- Severe cognitive impairment or under guardianship
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Institute of Myology
Paris, France
Actively Recruiting
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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