Actively Recruiting

Phase 3
Age: 12Years - 35Years
All Genders
NCT05477563

Evaluation of Efficacy and Safety of a Single Dose of CTX001 in Participants With Transfusion-Dependent β-Thalassemia and Severe Sickle Cell Disease

Led by Vertex Pharmaceuticals Incorporated · Updated on 2026-03-23

26

Participants Needed

6

Research Sites

253 weeks

Total Duration

On this page

AI-Summary

What this Trial Is About

This is a single-dose, open-label study in participants with transfusion-dependent β-thalassemia (TDT) or severe sickle cell disease (SCD). The study will evaluate the safety and efficacy of autologous CRISPR-Cas9 modified CD34+ human hematopoietic stem and progenitor cells (hHSPCs) using CTX001.

CONDITIONS

Official Title

Evaluation of Efficacy and Safety of a Single Dose of CTX001 in Participants With Transfusion-Dependent β-Thalassemia and Severe Sickle Cell Disease

Who Can Participate

Age: 12Years - 35Years
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Participants with transfusion-dependent beta-thalassemia or severe sickle cell disease
  • Eligible for autologous stem cell transplant as judged by investigator
  • For beta-thalassemia: documented homozygous or compound heterozygous beta-thalassemia including beta-thalassemia/hemoglobin E
  • History of at least 100 mL/kg/year or 10 units/year of packed red blood cell transfusions in the past 2 years
  • For sickle cell disease: documented severe sickle cell disease genotypes
  • History of at least two severe vaso-occlusive crisis events per year for the previous two years
Not Eligible

You will not qualify if you...

  • Availability of a healthy 10/10 HLA-matched related donor
  • Prior hematopoietic stem cell transplant
  • Clinically significant active infections (bacterial, viral, fungal, or parasitic)
  • For beta-thalassemia: associated alpha-thalassemia with more than 1 alpha deletion or alpha multiplications
  • For sickle cell disease: history or presence of untreated moyamoya syndrome
  • Other protocol defined inclusion/exclusion criteria may apply

AI-Screening

AI-Powered Screening

Complete this quick 3-step screening to check your eligibility

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Trial Site Locations

Total: 6 locations

1

New York Presbyterian Hospital - Morgan Stanley Children's Hospital

New York, New York, United States, 10032

Actively Recruiting

2

Levine Children's Hospital - Hematology

Charlotte, North Carolina, United States, 28203

Actively Recruiting

3

TriStar Medical Group Children's Specialists - Pediatric Oncology

Nashville, Tennessee, United States, 37203

Actively Recruiting

4

University Hospital Dusseldorf - Department of Pediatric Oncology, Hematology and Clinical Immunology

Düsseldorf, Germany

Actively Recruiting

5

IRCSS Ospedale Pediatrico Bambino Gesu - Dipartimento di Onco-Ematologia e Terapia Cellulare e Genica

Rome, Italy

Actively Recruiting

6

King Faisal Specialist Hospital & Research Centre - Riyadh - Hematology

Al Mathar Ash Shamali, Saudi Arabia

Actively Recruiting

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Research Team

M

Medical Information

CONTACT

How is the study designed?

Study Type

INTERVENTIONAL

Masking

NONE

Allocation

NA

Model

SINGLE_GROUP

Primary Purpose

TREATMENT

Number of Arms

1

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