Study of the Neurologic Assessment pNANO in Children With Brain and Spine Tumors

What this Trial Is About

This research aims to study a neurologic exam scale called pNANO to provide a more objective and standardized way to assess tumor response in children with brain and spinal cord tumors. It evaluates how consistent the pNANO scale is when used by different healthcare providers during routine clinic visits for pediatric brain and spine tumor patients. During the study, participants will have neurologic examinations performed by two or three separate providers on the same day at scheduled clinic visits. Each provider will independently complete the pNANO scale, assessing various neurological functions such as gait, strength, vision, and speech. A second evaluation using the pNANO scale will occur 1 to 6 months after the first visit. Some assessments may be done via telemedicine, with one provider in clinic and another virtual. Participants will be involved during routine clinic visits where neurologic exams are conducted by multiple providers who do not share findings with each other to ensure unbiased scoring. Researchers will measure the differences in pNANO scores between providers to assess variability. They will also evaluate the feasibility of performing these exams in person and through telemedicine. The study will monitor participants over up to 6 months with two main visits, focusing on the neurologic assessment consistency and practicality.

Evaluation of the Neurologic Assessment in Pediatric Neuro-Oncology (pNANO)