Actively Recruiting
Experience Life, Needs and Expectations of Families of Older Polyhandiccaped Persons
Led by Assistance Publique Hopitaux De Marseille · Updated on 2024-12-04
82
Participants Needed
7
Research Sites
179 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The general objective of PolyAGE is to explore the life experience of familial caregivers of aging persons with polyhandicap (\>= 35 years). The investigators will question parents (objective 1) and siblings (objective 2) about the experiences, the social representations, the needs and the expectations, as well as the mechanisms associated with their choices about their children with polyhandicap. The objective 3 is to co-analyze parents' and siblings' experiences regarding the aging of their relatives with polyhandicap.
CONDITIONS
Official Title
Experience Life, Needs and Expectations of Families of Older Polyhandiccaped Persons
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Mother or father (18 years or older) of a person with severe polyhandicap aged 35 years or older at inclusion
- Person (18 years or older) who has at least one parent in common with a person with severe polyhandicap aged 35 years or older at inclusion
- Person who agrees to participate after being informed of the study's objectives and procedures
You will not qualify if you...
- Parents and siblings who do not meet the criteria related to the person with severe polyhandicap
- Parents and siblings who refuse to participate
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 7 locations
1
APHP Hôpital Marin de Hendaye
Hendaye, France
Actively Recruiting
2
AP-HP Hôpitaux San Salvadour
Hyères, France
Actively Recruiting
3
Fondation John Bost
La Force, France
Actively Recruiting
4
Assistance Publique Des Hopitaux de Marseille
Marseille, France, 13354
Not Yet Recruiting
5
Université Aix Marseille
Marseille, France
Not Yet Recruiting
6
Université de Montpellier
Montpellier, France
Not Yet Recruiting
7
Groupe Polyhandicap France (GPF)
Paris, France
Not Yet Recruiting
Research Team
K
karine baumstarck, PI
CONTACT
E
Emilie GARRIDO-PRADALIE, Study direc
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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