Actively Recruiting
The Experience of Screening for SCID
Led by King's College London · Updated on 2022-12-14
90
Participants Needed
1
Research Sites
333 weeks
Total Duration
On this page
Sponsors
K
King's College London
Lead Sponsor
U
University of Manchester
Collaborating Sponsor
AI-Summary
What this Trial Is About
This project will evaluate the impact of including Severe Combined Immunodeficiency into the newborn bloodspot screening panel. It will recruit parents and health professionals primarily from the sites where this new form of screening is being trialled well as additional sites where clinicians will be involved in the care of these babies and comparator groups are needed. The proposed work will consist of two work packages. The first, a mixed-methods study conducted with families from the point of screening information being returned through to the child's fifth birthday. The second, a qualitative interview study conducted with health professionals during the clinical evaluation phase of the national pilot programme.
CONDITIONS
Official Title
The Experience of Screening for SCID
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Participants must be at least 18 years of age
- Participants must be able to understand the purpose and implications of the research study
- For participants who speak languages other than English, a translator will be arranged
You will not qualify if you...
- If a child dies after recruitment, parents will be sensitively asked if they wish to continue participation
AI-Screening
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Trial Site Locations
Total: 1 location
1
King's College London
London, United Kingdom, SE5 9PJ
Actively Recruiting
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
6
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