Actively Recruiting
Fabry Disease Registry & Pregnancy Sub-registry
Led by Genzyme, a Sanofi Company · Updated on 2026-04-28
9000
Participants Needed
283
Research Sites
1696 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The Fabry Registry is an ongoing, international multi-center, strictly observational program that tracks the routine clinical outcomes for patients with Fabry disease, irrespective of treatment status. No experimental intervention is involved; patients in the Registry undergo clinical assessments and receive care as determined by the patient's treating physician. The primary objectives of the Registry are: * To enhance the understanding of the variability, progression, and natural history of Fabry disease, including heterozygous females with the disease; * To assist the Fabry medical community with the development of recommendations for monitoring patients and reports on patient outcomes to help optimize patient care; * To characterize and describe the Fabry population as a whole; * To evaluate the long-term safety and effectiveness of Fabrazyme® Fabry Pregnancy Sub-registry: This Sub-registry is a multicenter, international, longitudinal, observational, and voluntary program designed to track pregnancy outcomes for any pregnant woman enrolled in the Fabry Registry, regardless of whether she is receiving disease-specific therapy (such as enzyme replacement therapy with agalsidase beta) and irrespective of the commercial product with which she may be treated. Data from the Sub-registry are also used to fulfill various global regulatory requirements, to support product development/reimbursement, and for other research and non-research-related purposes. No experimental intervention is given; thus a patient will undergo clinical assessments and receive standard of care treatment as determined by the patient's physician. If a patient consents to this Sub-registry, information about the patient's medical and obstetric history, pregnancy, and birth will be collected, and, if a patient consents to data collection for her infant, data on infant growth through month 36 postpartum will be collected.
CONDITIONS
Official Title
Fabry Disease Registry & Pregnancy Sub-registry
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Confirmed diagnosis of Fabry disease by documented deficiency in alpha-galactosidase enzyme activity or gene mutation
- Signed informed consent and patient authorization form(s) for participation
- For Pregnancy Sub-registry: women must be enrolled in the Fabry Registry
- Women in Pregnancy Sub-registry must be pregnant or have been pregnant with medical documentation
- Signed informed consent and authorization for Pregnancy Sub-registry participation
You will not qualify if you...
- None for Fabry Registry
- None for Fabry Pregnancy Sub-registry
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 283 locations
1
University of Alabama Birmingham- Nephrology- Site Number : 840018
Birmingham, Alabama, United States, 35294
Completed
2
University of Alabama Birmingham- Nephrology- Site Number : 840073
Birmingham, Alabama, United States, 35294
Actively Recruiting
3
Phoenix Children's Hospital- Site Number : 840003
Phoenix, Arizona, United States, 85016
Actively Recruiting
4
University of Arizona- Site Number : 840015
Tucson, Arizona, United States, 85724
Actively Recruiting
5
Arkansas Children's Hospital- Site Number : 840109
Little Rock, Arkansas, United States, 72202
Actively Recruiting
6
University of Arkansas for Medical Sciences- Site Number : 840113
Little Rock, Arkansas, United States, 72205
Actively Recruiting
7
University of California at Irvine- Site Number : 840036
Irvine, California, United States, 92697
Actively Recruiting
8
Southern California Permanente Medical Group- Site Number : 840108
Los Angeles, California, United States, 90027
Actively Recruiting
9
USC Health Sciences Center Dept of Genetics- Site Number : 840082
Los Angeles, California, United States, 90033
Completed
10
UCLA School Of Medicine- Site Number : 840088
Los Angeles, California, United States, 90095
Actively Recruiting
11
UCSF Benioff Children's Hospital - Oakland- Site Number : 840029
Oakland, California, United States, 94609
Completed
12
Children's Hospital of Orange County- Site Number : 840074
Orange, California, United States, 92868
Actively Recruiting
13
UC Davis MIND Institute- Site Number : 840010
Sacramento, California, United States, 95817
Actively Recruiting
14
Kaiser Permanente Sacramento Medical Center- Site Number : 840042
Sacramento, California, United States, 95825
Completed
15
University of California at San Diego- Site Number : 840007
San Diego, California, United States, 92093
Completed
16
University of California San Francisco - Parnassus Campus- Site Number : 840051
San Francisco, California, United States, 94143
Actively Recruiting
17
Stanford University Medical Center- Site Number : 840022
Stanford, California, United States, 94305
Actively Recruiting
18
Yale University School of Medicine- Site Number : 840047
New Haven, Connecticut, United States, 06510
Actively Recruiting
19
Children's National Medical Center - Washington- Site Number : 840067
Washington D.C., District of Columbia, United States, 20010
Actively Recruiting
20
University Hematology Oncology- Site Number : 840075
Coral Springs, Florida, United States, 33065
Actively Recruiting
21
University of Florida Dept of Genetics- Site Number : 840083
Gainesville, Florida, United States, 32610
Actively Recruiting
22
University of Florida Pediatrics Genetics- Site Number : 840121
Jacksonville, Florida, United States, 32207
Actively Recruiting
23
University Of Miami SOM- Site Number : 840006
Miami, Florida, United States, 33136
Actively Recruiting
24
University of Florida-Genetics- Site Number : 840096
Tampa, Florida, United States, 33606
Actively Recruiting
25
Emory University School of Medicine- Human Genetics- Site Number : 840060
Decatur, Georgia, United States, 30033
Actively Recruiting
26
University of Colorado at Denver Genetics- Site Number : 840068
Aurora, Illinois, United States, 80045
Actively Recruiting
27
Ann & Robert H. Lurie Children's Hospital of Chicago- Site Number : 840013
Chicago, Illinois, United States, 60611
Actively Recruiting
28
Rush University Medical Center Genetics- Site Number : 840079
Chicago, Illinois, United States, 60612
Actively Recruiting
29
Indianapolis University School of Medicine- Site Number : 840027
Indianapolis, Indiana, United States, 46202
Actively Recruiting
30
University of Iowa- Site Number : 840032
Iowa City, Iowa, United States, 52242
Actively Recruiting
31
University Of Kansas Medical Center- Site Number : 840071
Kansas City, Kansas, United States, 66160
Actively Recruiting
32
University of Louisville - Health Sciences Center- Site Number : 840030
Louisville, Kentucky, United States, 40202
Completed
33
Ochsner Health Center - Baton Rouge- Site Number : 840120
Baton Rouge, Louisiana, United States, 70809
Actively Recruiting
34
Tulane University School of Medicine- Site Number : 840001
New Orleans, Louisiana, United States, 70112
Completed
35
Maine Medical Partners Pediatric Specialty Care- Site Number : 840064
Portland, Maine, United States, 04102
Actively Recruiting
36
John Hopkins- Site Number : 840044
Baltimore, Maryland, United States, 21205
Completed
37
Massachusetts General Hospital-Genetics- Site Number : 840062
Boston, Massachusetts, United States, 02114
Actively Recruiting
38
Boston Children's Hospital - PIN- Site Number : 840092
Boston, Massachusetts, United States, 02115
Actively Recruiting
39
Brigham & Women's Hospital- Site Number : 840103
Boston, Massachusetts, United States, 02115
Actively Recruiting
40
Baystate Medical Center- Site Number : 840002
Springfield, Massachusetts, United States, 01199
Actively Recruiting
41
University of Michigan Pediatrics- Site Number : 840107
Ann Arbor, Michigan, United States, 48109
Actively Recruiting
42
Children's Hospital of Michigan- Site Number : 840066
Detroit, Michigan, United States, 48201
Actively Recruiting
43
Corewell Health - Helen DeVos Children's Hospital (HDVCH)- Site Number : 840019
Grand Rapids, Michigan, United States, 49503
Completed
44
Infusion Associates - Grand Rapids- Site Number : 840050
Grand Rapids, Michigan, United States, 49525
Actively Recruiting
45
Children's Hospitals and Clinics of Minnesota- Site Number : 840046
Minneapolis, Minnesota, United States, 55404
Completed
46
Children's Hospitals and Clinics of Minnesota- Site Number : 840114
Minneapolis, Minnesota, United States, 55404
Actively Recruiting
47
M Health Fairview University of Minnesota Medical Center - West Bank- Site Number : 840076
Minneapolis, Minnesota, United States, 55454
Actively Recruiting
48
University of Missouri Health System Department of Genetics- Site Number : 840031
Columbia, Missouri, United States, 65212
Actively Recruiting
49
Washington University- Site Number : 840100
St Louis, Missouri, United States, 63110
Actively Recruiting
50
Shodair Children's Hospital- Site Number : 840090
Helena, Montana, United States, 59601
Completed
51
University of Nebraska Medical Center- Site Number : 840084
Omaha, Nebraska, United States, 68198
Actively Recruiting
52
Children's Specialty Center - Las Vegas- Site Number : 840008
Las Vegas, Nevada, United States, 89109
Actively Recruiting
53
Cooper Health Center- Site Number : 840098
Camden, New Jersey, United States
Terminated
54
Joseph M. Sanzari Children's Hospital- Site Number : 840101
Hackensack, New Jersey, United States, 07601
Actively Recruiting
55
Atlantic Health System- Site Number : 840099
Morristown, New Jersey, United States, 07962
Actively Recruiting
56
Saint Peter's University Hospital - New Brunswick- Site Number : 840016
New Brunswick, New Jersey, United States, 08901
Actively Recruiting
57
St. Joseph's Children's Hospital- Site Number : 840057
Paterson, New Jersey, United States, 07503
Actively Recruiting
58
NYU Langone Health - Perlmutter Cancer Center - Huntington- Site Number : 840040
Huntington, New York, United States, 11743
Actively Recruiting
59
Northwell Health- Site Number : 840102
New Hyde Park, New York, United States, 11042
Actively Recruiting
60
Icahn School of Medicine at Mount Sinai- Site Number : 840080
New York, New York, United States, 10029
Actively Recruiting
61
Metropolitan Hospital Center- Site Number : 840110
New York, New York, United States, 10029
Actively Recruiting
62
University of Rochester Medical Center- Site Number : 840105
Rochester, New York, United States, 14642
Completed
63
SUNY Upstate Medical University - Site Number : 840052
Syracuse, New York, United States, 13210
Actively Recruiting
64
New York Medical College- Site Number : 840039
Valhalla, New York, United States, 10595
Actively Recruiting
65
Carolinas Medical Center- Site Number : 840065
Charlotte, North Carolina, United States, 28232
Actively Recruiting
66
Duke University Medical Center Genetics Dept- Site Number : 840045
Durham, North Carolina, United States, 27710
Actively Recruiting
67
Cincinnati Children's Hospital Medical Center (Cincinnati Children's Hospital)- Site Number : 840033
Cincinnati, Ohio, United States, 45229
Actively Recruiting
68
University Hospitals Cleveland Medical Center- Site Number : 840119
Cleveland, Ohio, United States, 44106
Actively Recruiting
69
Cleveland Clinic - Cleveland- Site Number : 840048
Cleveland, Ohio, United States, 44195
Actively Recruiting
70
Nationwide Children's Hospital- Site Number : 840091
Columbus, Ohio, United States, 43205
Actively Recruiting
71
Ohio State University Department of Genetics- Site Number : 840097
Columbus, Ohio, United States, 43210
Active, Not Recruiting
72
LSD Data Registry Site LLC- Site Number : 840094
Dublin, Ohio, United States, 43017
Actively Recruiting
73
Oregon Health & Science University (OHSU)- Site Number : 840116
Portland, Oregon, United States, 97239
Actively Recruiting
74
Oregon Health and Scinece University- Site Number : 840038
Portland, Oregon, United States, 97239
Terminated
75
Geisinger Medical Center- Site Number : 840111
Danville, Pennsylvania, United States, 17822
Actively Recruiting
76
Penn State University Medical Center-Neurology- Site Number : 840104
Hershey, Pennsylvania, United States, 17033
Actively Recruiting
77
Children's Hospital of Philadelphia HUP Medical Genetics- Site Number : 840089
Philadelphia, Pennsylvania, United States, 19104
Actively Recruiting
78
Children's Hospital of Philadelphia- Site Number : 840034
Philadelphia, Pennsylvania, United States, 19104
Actively Recruiting
79
UPMC Children's Hospital of Pittsburgh- Site Number : 840023
Pittsburgh, Pennsylvania, United States, 15224
Actively Recruiting
80
Rhode Island Hospital Genetics- Site Number : 840053
Providence, Rhode Island, United States, 02903
Completed
81
Greenwood Genetic Center - Greenville- Site Number : 840055
Greenville, South Carolina, United States, 29605
Actively Recruiting
82
Vanderbilt University Medical Center Diagnostic Lab- Site Number : 840049
Nashville, Tennessee, United States, 37212
Actively Recruiting
83
Baylor Institute of Metabolic Disease- Site Number : 840058
Dallas, Texas, United States, 75226
Actively Recruiting
84
Cook Children's Health Care System- Site Number : 840024
Fort Worth, Texas, United States, 76104
Actively Recruiting
85
University of Utah Department of Medical Genetics- Site Number : 840043
Salt Lake City, Utah, United States, 84132
Actively Recruiting
86
University of Virginia School of Medicine-Pediatrics- Site Number : 840078
Charlottesville, Virginia, United States, 22908
Completed
87
O & O Alpan- Site Number : 840025
Fairfax, Virginia, United States, 22030
Actively Recruiting
88
Children's Hospital of The King's Daughters- Site Number : 840072
Norfolk, Virginia, United States, 23507
Completed
89
Seattle Children's Hospital- Site Number : 840028
Seattle, Washington, United States, 98105
Actively Recruiting
90
University Of Washington Medical Center- Site Number : 840059
Seattle, Washington, United States, 98195
Actively Recruiting
91
Mary Bridge Children's Outpatient Center- Site Number : 840115
Tacoma, Washington, United States, 98405
Actively Recruiting
92
Children's Hospital of Wisconsin-Pediatrics- Site Number : 840054
Milwaukee, Wisconsin, United States, 53226
Actively Recruiting
93
Investigational Site Number : 153280
Berazategui, Buenos Aires, Argentina, B
Actively Recruiting
94
Investigational Site Number : 153260
Caba, Buenos Aires, Buenos Aires, Argentina, C1415EKV
Actively Recruiting
95
Investigational Site Number : 153250
San Isidro, Buenos Aires, Argentina, 1642
Actively Recruiting
96
Investigational Site Number : 153194
Catamarca, Catamarca Province, Argentina, 4703
Completed
97
Investigational Site Number : 604002
Buenos Aires, Argentina, 1107
Actively Recruiting
98
Investigational Site Number : 153032
Buenos Aires, Argentina, 1192
Completed
99
Investigational Site Number : 153172
Buenos Aires, Argentina, 1280
Completed
100
Investigational Site Number : 153270
La Rioja Province, Argentina, 5300
Actively Recruiting
101
Investigational Site Number : 032005
Neuquén, Argentina, 8300
Completed
102
Investigational Site Number : 153130
San Luis, Argentina, 5700
Completed
103
Investigational Site Number : 032004
Santa Fe, Argentina, 3000
Actively Recruiting
104
Investigational Site Number : 036013
Westmead, New South Wales, Australia, 2145
Actively Recruiting
105
Investigational Site Number : 151069
Westmead, New South Wales, Australia, 2145
Actively Recruiting
106
Investigational Site Number : 153063
Brisbane, Queensland, Australia, 4029
Actively Recruiting
107
Investigational Site Number : 151002
Adelaide, South Australia, Australia, 5000
Actively Recruiting
108
Investigational Site Number : 153040
Parkville, Victoria, Australia, 3050
Actively Recruiting
109
Investigational Site Number : 153090
Perth, Western Australia, Australia, 6000
Actively Recruiting
110
Investigational Site Number : 150722
Antwerp, Belgium, 2020
Actively Recruiting
111
Investigational Site Number : 153133
Antwerp, Belgium, 2020
Actively Recruiting
112
Investigational Site Number : 153001
Brussels, Belgium, 1070
Actively Recruiting
113
Investigational Site Number : 0560008
Brussels, Belgium, 1090
Actively Recruiting
114
Investigational Site Number : 150517
Brussels, Belgium, 1200
Actively Recruiting
115
Investigational Site Number : 151668
Leuven, Belgium, 3000
Actively Recruiting
116
Investigational Site Number : 154275
Liège, Belgium, 4000
Actively Recruiting
117
Investigational Site Number : 153100
Seraing, Belgium, 4100
Actively Recruiting
118
NPDM - Núcleo de Pesquisa e Desenvolvimento de Medicamentos- Site Number : 076007
Fortaleza, Ceará, Brazil, 60430-275
Actively Recruiting
119
Clínica Senhor do Bonfim- Site Number : 076008
Feira de Santana, Estado de Bahia, Brazil, 44001-584
Actively Recruiting
120
Hospital Geral Universitario de Cuiaba- Site Number : 076006
Cuiabá, Mato Grosso, Brazil, 78025-000
Actively Recruiting
121
Universidade Federal do Paraná- Site Number : 076004
Curitiba, Paraná, Brazil, 80060-000
Actively Recruiting
122
Instituto de Medicina Integral Professor Fernando Figueira- Site Number : 076005
Recife, Pernambuco, Brazil, 50070-550
Actively Recruiting
123
Hospital Universitário Polydoro Ernani de São Thiago - UFSC- Site Number : 076012
Florianópolis, Santa Catarina, Brazil, 88040-970
Actively Recruiting
124
Hospital e Maternidade Celso Pierro - PUC-Campinas- Site Number : 076013
Campinas, São Paulo, Brazil, 13034-685
Actively Recruiting
125
Centro de Pesq Materno Infantil de Campinas- Site Number : 076009
Campinas, São Paulo, Brazil, 13081-970
Completed
126
Serviço de Terapia Renal de Ourinhos- Site Number : 076011
Ourinhos, São Paulo, Brazil, 19900280
Actively Recruiting
127
Centro Saude Escola Joel Domingos Machado- Site Number : 076002
Ribeirão Preto, São Paulo, Brazil, 14055-380
Actively Recruiting
128
Instituto de Genética e Erros Inatos do Metabolismo- Site Number : 076001
São Paulo, Brazil, 04020-041
Actively Recruiting
129
Investigational Site Number : 153169
Sofia, Bulgaria, 1431
Completed
130
Investigational Site Number : 100001
Sofia, Bulgaria, 1680
Actively Recruiting
131
Investigational Site Number : 124014
Calgary, Alberta, Canada, T2E 7Z4
Actively Recruiting
132
Investigational Site Number : 124002
Edmonton, Alberta, Canada, T6G 2B7
Actively Recruiting
133
Investigational Site Number : 124010
Vancouver, British Columbia, Canada, V5Z 1M9
Actively Recruiting
134
Investigational Site Number : 124011
Vancouver, British Columbia, Canada, V6H 3N1
Completed
135
Investigational Site Number : 124019
Winnipeg, Manitoba, Canada, R3A 1R9
Actively Recruiting
136
Investigational Site Number : 124022
Moncton, New Brunswick, Canada, E1C 2Z3
Actively Recruiting
137
Investigational Site Number : 124023
St. John's, Newfoundland and Labrador, Canada, A1B 3V6
Actively Recruiting
138
Investigational Site Number : 124008
Halifax, Nova Scotia, Canada, B3H 3A7
Actively Recruiting
139
Investigational Site Number : 124005
Kingston, Ontario, Canada, K7L 4X3
Terminated
140
Investigational Site Number : 124021
London, Ontario, Canada, N6A 5A5
Actively Recruiting
141
Investigational Site Number : 124006
Toronto, Ontario, Canada, M5G 1X8
Actively Recruiting
142
Investigational Site Number : 124009
Toronto, Ontario, Canada, M5T 3H7
Actively Recruiting
143
Investigational Site Number : 124013
Montreal, Quebec, Canada, H4J 1C5
Actively Recruiting
144
Investigational Site Number : 124001
Sherbrooke, Quebec, Canada, J1K 2R1
Actively Recruiting
145
Investigational Site Number : 152004
Antofagasta, Chile
Actively Recruiting
146
Investigational Site Number : 152001
Coquimbo, Chile, 1710228
Actively Recruiting
147
Investigational Site Number : 152003
Iquique, Chile
Completed
148
Investigational Site Number : 152002
Santiago, Chile
Terminated
149
Investigational Site Number : 152005
Vallenar, Chile
Completed
150
Investigational Site Number : 153165
Beijing, China, 100730
Terminated
151
Investigational Site Number : 1560003
Hangzhou, China, 310003
Actively Recruiting
152
Investigational Site Number : 1560002
Jinan, China, 250001
Actively Recruiting
153
Investigational Site Number : 1560004
Nanjing, China, 210008
Actively Recruiting
154
Investigational Site Number : 153163
Shanghai, China, 200025
Terminated
155
Investigational Site Number : 1560001
Shanghai, China, 200025
Actively Recruiting
156
Investigational Site Number : 170001
Bogotá, Colombia, 110131
Actively Recruiting
157
Investigational Site Number : 1910001
Rijeka, Croatia, 51000
Completed
158
Investigational Site Number : 1910002
Zagreb, Croatia, 10000
Actively Recruiting
159
Investigational Site Number : 153126
Prague, Czechia, 128 08
Actively Recruiting
160
Investigational Site Number : 151229
Copenhagen, Denmark, 2100
Completed
161
Investigational Site Number : 153041
Copenhagen, Denmark, 2100
Actively Recruiting
162
Investigational Site Number : 153106
Tartu, Estonia, 50406
Actively Recruiting
163
Investigational Site Number : 153024
Turku, Finland, 20521
Actively Recruiting
164
Investigational Site Number : 250005
Bordeaux, France, 33076
Actively Recruiting
165
Investigational Site Number : 250002
Bron, France, 69677
Actively Recruiting
166
Investigational Site Number : 250001
Garches, France, 92380
Actively Recruiting
167
Investigational Site Number : 250007
Lille, France, 59037
Actively Recruiting
168
Investigational Site Number : 250004
Saint-Priest-en-Jarez, France, 42270
Actively Recruiting
169
Investigational Site Number : 250009
Strasbourg, France, 67000
Actively Recruiting
170
Investigational Site Number : 153013
Berlin, Germany, 13353
Actively Recruiting
171
Investigational Site Number : 154150
Giessen, Germany, 35392
Actively Recruiting
172
Investigational Site Number : 153147
Münster, Germany, 48149
Actively Recruiting
173
Investigational Site Number : 153011
Würzburg, Germany, 97080
Actively Recruiting
174
Investigational Site Number : 344001
Kowloon, Hong Kong
Actively Recruiting
175
Investigational Site Number : 3480002
Budapest, Hungary, 1212
Actively Recruiting
176
Investigational Site Number : 3480003
Létavértes, Hungary, 4281
Actively Recruiting
177
Investigational Site Number : 3480005
Pécs, Hungary, 7623
Actively Recruiting
178
Investigational Site Number : 3480004
Sopron, Hungary, 9400
Actively Recruiting
179
Investigational Site Number : 356003
Ahmedabad, India, 380015
Actively Recruiting
180
Investigational Site Number : 356001
Kolkata, India, 700017
Actively Recruiting
181
Investigational Site Number : 3560004
Secunderabad, India, 500026
Actively Recruiting
182
Investigational Site Number : 356002
Vellore, India, 632004
Actively Recruiting
183
Investigational Site Number : 360001
Jakarta, Indonesia
Actively Recruiting
184
Investigational Site Number : 380013
Florence, Firenze, Italy, 50139
Actively Recruiting
185
Investigational Site Number : 380009
Milan, Milano, Italy, 20142
Completed
186
Investigational Site Number : 380006
Milan, Milano, Italy, 20162
Completed
187
Investigational Site Number : 380003
Baggiovara, Modena, Italy, 41126
Actively Recruiting
188
Investigational Site Number : 380010
Monza, Monza E Brianza, Italy, 20052
Actively Recruiting
189
Investigational Site Number : 157282
Padua, Padova, Italy, 35128
Actively Recruiting
190
Investigational Site Number : 380012
Rome, Roma, Italy, 00168
Actively Recruiting
191
Investigational Site Number : 380002
Bassano del Grappa, Italy, 36061
Actively Recruiting
192
Investigational Site Number : 380019
Bologna, Italy, 40138
Actively Recruiting
193
Investigational Site Number : 380004
Florence, Italy, 50134
Actively Recruiting
194
Investigational Site Number : 380008
Naples, Italy, 80130
Actively Recruiting
195
Investigational Site Number : 380008
Naples, Italy, 80131
Actively Recruiting
196
Investigational Site Number : 380014
Ragusa, Italy, 97019
Actively Recruiting
197
Investigational Site Number : 380007
Rimini, Italy, 47900
Completed
198
Investigational Site Number : 380011
Torino, Italy, 10126
Actively Recruiting
199
Investigational Site Number : 380001
Udine, Italy, 33100
Actively Recruiting
200
Investigational Site Number : 392007
Kobe, Hyōgo, Japan, 650-0017
Active, Not Recruiting
201
Investigational Site Number : 153201
Nankoku, Kochi, Japan, 783-8505
Actively Recruiting
202
Investigational Site Number : 153217
Chiba, Japan, 266-0007
Actively Recruiting
203
Investigational Site Number : 392006
Niigata, Japan, 951-8520
Actively Recruiting
204
Investigational Site Number : 153205
Osaka, Japan, 545-8586
Completed
205
Investigational Site Number : 153204
Tokyo, Japan, 157-8535
Actively Recruiting
206
Investigational Site Number : 154244
Vilnius, Lithuania, 08406
Actively Recruiting
207
Investigational Site Number : 154652
Vilnius, Lithuania, 08661
Actively Recruiting
208
Investigational Site Number : 458001
Kuala Lumpur, Malaysia, 50586
Actively Recruiting
209
Investigational Site Number : 458002
Kuala Lumpur, Malaysia, 59100
Actively Recruiting
210
Investigational Site Number : 151171
Amsterdam, Netherlands, 1105 AZ
Terminated
211
Investigational Site Number : 153004
Amsterdam, Netherlands, 1105 AZ
Terminated
212
Investigational Site Number : 153141
Bergen, Norway, 5021
Actively Recruiting
213
Investigational Site Number : 604001
Lima, Peru
Actively Recruiting
214
Investigational Site Number : 608001
City of Muntinlupa, Philippines, 1000
Actively Recruiting
215
Investigational Site Number : 150575
Warsaw, Poland, 04-730
Actively Recruiting
216
Investigational Site Number : 620005
Lisbon, Portugal, 1649-035
Actively Recruiting
217
Investigational Site Number : 620001
Porto, Portugal, 4200-319
Actively Recruiting
218
Investigational Site Number : 154164
Brasov, Romania, 500326
Actively Recruiting
219
Investigational Site Number : 154099
Bucharest, Romania, 022328
Actively Recruiting
220
Investigational Site Number : 153081
Cluj-Napoca, Romania, 400006
Completed
221
Investigational Site Number : 643001
Moscow, Russia
Actively Recruiting
222
Investigational Site Number : 643003
Nizhny Novgorod, Russia, 603155
Actively Recruiting
223
Investigational Site Number : 643002
Saint Petersburg, Russia, 197341
Actively Recruiting
224
Investigational Site Number : 682002
Al-Hasa, Saudi Arabia, 31982
Actively Recruiting
225
Investigational Site Number : 6880001
Novi Sad, Serbia, 21000
Actively Recruiting
226
Investigational Site Number : 702001
Singapore, Singapore, 229899
Actively Recruiting
227
Investigational Site Number : 703001
Bratislava, Slovakia, 833 40
Completed
228
Investigational Site Number : 705001
Nové Zámky, Slovakia, 940 34
Actively Recruiting
229
Investigational Site Number : 154273
Suwon, Gyeonggi-do, South Korea, 16247
Actively Recruiting
230
Investigational Site Number : 153178
Yangsan, Gyeongsangnam-do, South Korea, 50612
Completed
231
Investigational Site Number : 154208
Yangsan, Gyeongsangnam-do, South Korea, 50612
Terminated
232
Investigational Site Number : 157176
Yangsan, Gyeongsangnam-do, South Korea, 50612
Actively Recruiting
233
Investigational Site Number : 153228
Jeju City, Jeju-teukbyeoljachido, South Korea, 63241
Terminated
234
Investigational Site Number : 153180
Seoul, Seoul-teukbyeolsi, South Korea, 03080
Actively Recruiting
235
Investigational Site Number : 153196
Seoul, Seoul-teukbyeolsi, South Korea, 03080
Actively Recruiting
236
Investigational Site Number : 153192
Seoul, Seoul-teukbyeolsi, South Korea, 04401
Completed
237
Investigational Site Number : 151149
Seoul, Seoul-teukbyeolsi, South Korea, 05505
Actively Recruiting
238
Investigational Site Number : 153222
Seoul, Seoul-teukbyeolsi, South Korea, 06973
Actively Recruiting
239
Investigational Site Number : 154246
Busan, South Korea
Actively Recruiting
240
Investigational Site Number : 153191
Daejeon, South Korea
Actively Recruiting
241
Investigational Site Number : 153188
Seoul, South Korea, NaN
Actively Recruiting
242
Investigational Site Number : 153212
Seoul, South Korea
Actively Recruiting
243
Investigational Site Number : 154146
A Coruña, A Coruña [La Coruña], Spain, 15006
Completed
244
Investigational Site Number : 154159
A Coruña, A Coruña [La Coruña], Spain, 15006
Completed
245
Investigational Site Number : 153237
Barcelona, Barcelona [Barcelona], Spain, 08035
Actively Recruiting
246
Investigational Site Number : 154147
Barcelona, Barcelona [Barcelona], Spain, 08035
Actively Recruiting
247
Investigational Site Number : 154135
Barakaldo, Basque Country, Spain, 48903
Completed
248
Investigational Site Number : 153067
Barcelona, Catalunya [Cataluña], Spain, 08025
Actively Recruiting
249
Investigational Site Number : 154204
Barcelona, Catalunya [Cataluña], Spain, 08036
Actively Recruiting
250
Investigational Site Number : 153077
L'Hospitalet de Llobregat, Catalunya [Cataluña], Spain, 08907
Actively Recruiting
251
Investigational Site Number : 153213
Vigo, Pontevedra [Pontevedra], Spain, 36200
Actively Recruiting
252
Investigational Site Number : 154136
Tarragona, Tarragona [Tarragona], Spain, 43005
Actively Recruiting
253
Investigational Site Number : 154123
Barcelona, Spain, 8003
Actively Recruiting
254
Investigational Site Number : 153050
Gothenburg, Sweden, 413 45
Actively Recruiting
255
Investigational Site Number : 151484
Stockholm, Sweden, 171 76
Actively Recruiting
256
Investigational Site Number : 151500
Chiayi City, Taiwan
Actively Recruiting
257
Investigational Site Number : 154093
Chiayi City, Taiwan
Actively Recruiting
258
Investigational Site Number : 152152
Hualien City, Taiwan, 970
Actively Recruiting
259
Investigational Site Number : 152244
Kaohsiung City, Taiwan, 807
Completed
260
Investigational Site Number : 153088
Kaohsiung City, Taiwan, 813
Completed
261
Investigational Site Number : 152246
Kaohsiung City, Taiwan, 833
Actively Recruiting
262
Investigational Site Number : 151534
New Taipei City, Taiwan, 231
Actively Recruiting
263
Investigational Site Number : 151179
Taichung, Taiwan, 404
Actively Recruiting
264
Investigational Site Number : 151181
Taichung, Taiwan, 407
Actively Recruiting
265
Investigational Site Number : 153248
Tainan, Taiwan, 704
Actively Recruiting
266
Investigational Site Number : 152153
Tainan, Taiwan, 710
Actively Recruiting
267
Investigational Site Number : 151182
Taipei, Taiwan, 100
Actively Recruiting
268
Investigational Site Number : 152321
Taipei, Taiwan, 104
Actively Recruiting
269
Investigational Site Number : 152226
Taipei, Taiwan, 112
Actively Recruiting
270
Investigational Site Number : 153158
Tao Yuan County, Taiwan, 333
Actively Recruiting
271
Investigational Site Number : 764003
Bangkok, Thailand, 10400
Actively Recruiting
272
Investigational Site Number : 764004
Bangkok, Thailand, 10700
Actively Recruiting
273
Investigational Site Number : 764001
Bangkok, Thailand
Actively Recruiting
274
Investigational Site Number : 764005
Khon Kaen, Thailand, 40002
Actively Recruiting
275
Investigational Site Number : 151340
Cambridge, Cambridgeshire, United Kingdom, CB2 2QQ
Actively Recruiting
276
Investigational Site Number : 152287
Birmingham, England, United Kingdom, B15 2TH
Actively Recruiting
277
Investigational Site Number : 151123
London, England, United Kingdom, NW3 2QG
Actively Recruiting
278
Investigational Site Number : 151646
London, London, City of, United Kingdom, WC1N 3BG
Actively Recruiting
279
Investigational Site Number : 150303
London, London, City of, United Kingdom, WC1N 3JH
Actively Recruiting
280
Investigational Site Number : 152361
Salford, Manchester, United Kingdom, M6 8HD
Actively Recruiting
281
Investigational Site Number : 154196
Belfast, United Kingdom, BT9 7AB
Actively Recruiting
282
Investigational Site Number : 150455
Manchester, United Kingdom, M13 9wl
Actively Recruiting
283
Investigational Site Number : 154212
Hanoi, Vietnam
Actively Recruiting
Research Team
T
Trial Transparency
CONTACT
F
Fabry Registry HelpLine
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
2
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