Actively Recruiting
Fibrous Dysplasia, McCune-Albright Syndrome Patient Registry
Led by Tovah Burstein · Updated on 2025-08-12
600
Participants Needed
1
Research Sites
621 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The FD/MAS Patient Registry is an IRB-approved research study that that invites the patients and families to help answer some of the biggest questions about FD/MAS by completing questionnaires about their lives with FD or MAS. Have you enrolled in the FD/MAS Patient Registry yet? Are you up-to-date on your surveys? Take a trip to www.fdmasregistry.org today to learn more about the project, enroll, complete your surveys, or make sure you aren't due to provide more info! The FD/MAS Patient Registry: Your story powers research.
CONDITIONS
Official Title
Fibrous Dysplasia, McCune-Albright Syndrome Patient Registry
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Clinical diagnosis of fibrous dysplasia
- Clinical diagnosis of McCune-Albright syndrome
- Clinical diagnosis of Mazabraud's syndrome
You will not qualify if you...
History of severe allergic reactions to study medication Currently pregnant or breastfeeding Recent participation in another clinical trial within the last 30 days Presence of uncontrolled medical conditions that could affect safety
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Tovah Burstein
Bethesda, Maryland, United States, 20816-2558
Actively Recruiting
Research Team
C
Carmel Shemmesh-Rafalowsky
CONTACT
T
Tovah Burstein
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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