Actively Recruiting

Phase 1
Phase 2
Age: 18Years - 65Years
All Genders
ID06525636

A Multicenter, Open-label, Phase 1/2, Dose-escalation and Subsequent Safety Extension Study of Subcutaneous KK8123 in Adult Patients With X-linked Hypophosphatemia

Led by Kyowa Kirin Co., Ltd. · Updated on 2025-11-14

24

Participants Needed

9

Research Sites

12 weeks

Total Duration

On this page

Sponsors

K

Kyowa Kirin Co., Ltd.

Lead Sponsor

K

Kyowa Kirin, Inc.

Collaborating Sponsor

AI-Summary

What this Trial Is About

Researchers are evaluating the safety, tolerability, pharmacokinetics (PK), and pharmacodynamics (PD) of KK8123 in adults with X-linked hypophosphatemia (XLH) through a Phase 1/2, multicenter, open-label, dose-escalation study. This first-in-human study aims to better understand how KK8123 behaves in the body and its effects on patients with this condition. The study is sponsored by Kyowa Kirin Co., Ltd. and includes an optional safety extension period. The study includes a Screening Period of up to 28 days, followed by Part 1, which is a Dose Escalation Period consisting of a planned Treatment Period and an Observation Period lasting 32 to 44 weeks. Part 2 is an optional Extension Period for additional safety evaluation. Participants receive subcutaneous doses of KK8123 at different levels, including low dose (single dose), mild dose (multiple doses), and high dose (multiple doses), with dosing confirmed for later cohorts. The study groups include several cohorts receiving escalating doses and an extension group. Participants will undergo multiple assessments during the study, including laboratory tests for hematology and clinical chemistry, measurement of serum phosphorus levels, echocardiograms, renal ultrasounds, and monitoring of vital signs such as heart rate and blood pressure. Researchers will track treatment-emergent adverse events (TEAEs) and measure KK8123 drug concentrations over time. Follow-up periods last up to 44 weeks in Part 1 and up to 52 weeks in Part 2. Participants are expected to adhere to study visit schedules and complete all assessments throughout their involvement.

CONDITIONS

Brief Title

A First-in-human Study of KK8123 in Adults With X-linked Hypophosphatemia

Who Can Participate

Age: 18Years - 65Years
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Male or female patients aged 18 to 65 years inclusive at the time of signing the informed consent form.
  • Body weight of at least 40 kg.
  • Diagnosed with X-linked hypophosphatemia (XLH) as documented by the investigator.
  • Fasting serum phosphorus level less than 2.5 mg/dL (0.81 mmol/L) at screening.
  • Renal TmP/GFR less than 2.5 mg/dL (0.81 mmol/L) at screening.
  • Estimated glomerular filtration rate (eGFR) of 60 mL/min or higher at screening.
  • Corrected serum calcium level less than 10.8 mg/dL (2.7 mmol/L) at screening.
  • Provide signed informed consent.
  • Agree not to change diet and exercise regimen from one week prior to dosing to end of study.
  • Negative pregnancy test at screening and willingness to have additional pregnancy tests during the study (female participants only).
  • If taking chronic pain medications, stable regimen for at least 21 days before screening and willingness to maintain stable dose during the study (dose not exceeding 60 mg oral morphine equivalents/day).
  • Willingness to use contraception during the study and for 5 months after last dose if sexually active and of childbearing potential.
  • Willing and able to complete all study aspects, adhere to visits, and comply with assessments as judged by investigator.
Not Eligible

You will not qualify if you...

  • Use of burosumab within 7 months prior to informed consent.
  • Positive test history for HIV antibody, hepatitis B surface antigen, or hepatitis C antibody at screening.
  • History of hypersensitivity to any therapeutic monoclonal antibody ingredient.
  • Active infection.
  • Grade 3 or greater nephrocalcinosis confirmed by renal ultrasound.
  • Uncontrolled diabetes mellitus at screening.
  • History of known immunodeficiency.
  • History of alcoholism or drug abuse.
  • Blood donation within 60 days prior to screening.
  • Use of investigational products or devices within 30 days prior to screening.
  • Use of therapeutic monoclonal antibodies within 90 days prior to screening.
  • Use of certain medications including pharmacologically active vitamin D, oral phosphate, aluminum hydroxide antacids, acetazolamide, thiazide diuretics, systemic corticosteroids within 14 days prior to screening.
  • Use of medication to suppress parathyroid hormone within 2 months prior to screening.
  • Use of denosumab within 6 months prior to screening.
  • Use of oral bisphosphonates within 2 years prior to screening.
  • Use of teriparatide or abaloparatide within 2 months prior to screening.
  • Plasma intact parathyroid hormone ≥ 2.5 times upper limit of normal at screening.
  • Planned or recommended orthopedic surgery during the study.
  • Traumatic fracture or orthopedic surgery within 6 months prior to screening.
  • Lactating participants.
  • Current active and symptomatic COVID-19 infection at Day -1.
  • Any condition that may increase risk of poor treatment compliance or study completion as judged by investigator.

AI-Screening

AI-Powered Screening

Complete this quick 3-step screening to check your eligibility

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Your Study Journey

Screening

Duration - Up to 4 weeks

Participants are screened for eligibility to participate in the trial.

1 visit (in-person) for consent and screening assessments

Treatment

Duration - 32 to 44 weeks

Participants receive subcutaneous doses of KK8123 during a dose escalation period, followed by an observation period to assess safety and effects.

Multiple visits for dosing and safety assessments over 32 to 44 weeks

Treatment

Duration - Up to 52 weeks

Participants may enter an optional extension period with continued subcutaneous dosing of KK8123 to further monitor safety and treatment effects.

Ongoing visits for dosing and safety monitoring during the extension period

Trial Site Locations

Total: 9 locations

1

University of California - San Francisco

San Francisco, California, United States, 94158

Actively Recruiting

2

Yale Center for XLH/ Yale University School of Medicine

New Haven, Connecticut, United States, 06510

Actively Recruiting

3

Indiana University School of Medicine University Hospital

Indianapolis, Indiana, United States, 46202

Actively Recruiting

4

Mayo Clinic

Rochester, Minnesota, United States, 55905

Not Yet Recruiting

5

Vanderbilt University Medical Center

Nashville, Tennessee, United States, 37232

Actively Recruiting

6

Hoptial Bictre

Le Kremlin-Bicêtre, Paris, France, 94275

Actively Recruiting

7

Institute of Osteology and Biomechanics (IOBM)

Hamburg, Germany, 22529

Actively Recruiting

8

Universitaetsklinikum Wurzburg

Würzburg, Germany, 97074

Actively Recruiting

9

Hospital Universitario La Paz

Madrid, Spain, 28046

Actively Recruiting

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Research Team

K

Kyowa Kirin

How is the study designed?

Study Type

INTERVENTIONAL

Masking

NONE

Allocation

NON_RANDOMIZED

Model

SEQUENTIAL

Primary Purpose

TREATMENT

Number of Arms

5

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