Actively Recruiting
Foundation for Sarcoidosis Research Advanced Cures Registry (FSR-SARC Registry)
Led by Foundation for Sarcoidosis Research · Updated on 2025-09-19
6833
Participants Needed
1
Research Sites
1043 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The goal of the study is to create a longitudinal record of patient reported outcomes for people living with sarcoidosis that maintains privacy. Patients report on the following: demographics, disease symptoms, diagnostic journey, provider experience, disease treatment, and burden of disease. Patients can also link their Electronic Health Records (EHR). The goal is to create a natural history of sarcoidosis, support research, and better understand the needs of the sarcoidosis community.
CONDITIONS
Official Title
Foundation for Sarcoidosis Research Advanced Cures Registry (FSR-SARC Registry)
Who Can Participate
Eligibility Criteria
You may qualify if you...
- English speaking
- Consent
- Sarcoidosis diagnosis
You will not qualify if you...
History of severe allergic reactions to study medication Currently pregnant or breastfeeding Recent participation in another clinical trial within the last 30 days Presence of uncontrolled medical conditions that could affect safety
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Foundation For Sarcoidosis Research
Chicago, Illinois, United States, 60654
Actively Recruiting
Research Team
L
Leslie Serhuck, MD MA Mbioethics
CONTACT
T
Tricha Shivas, MBe
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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