French Renal Epidemiology and Information Network Registry Tracking End-Stage Renal Disease Patients on Dialysis or Transplant in Lorraine

What this Trial Is About

The French Renal Epidemiology and Information Network REIN Registry focuses on patients with end-stage renal disease ESRD who are receiving renal replacement therapy such as dialysis or transplantation in the Lorraine area. Established in 2002, this observational study aims to support the development and assessment of health strategies to improve prevention and management of ESRD, as well as to promote clinical and epidemiological research in this field. It involves collaboration among nephrologists, epidemiologists, patients, and public health representatives at regional and national levels. The registry includes all new and existing patients undergoing renal replacement therapy, excluding those with acute renal failure who recover renal function within 45 days or are considered such by experts if they die before 45 days. Data collected include fixed and annually updated information on dialysis patients and reports of key events such as renal transplantation, changes in dialysis treatment, transient recovery of renal function, and death. Participation from dialysis centers in Lorraine is comprehensive, with clinical research assistants ensuring complete and accurate data collection. Participants are tracked from the start of their renal replacement therapy, with data verified regularly against center records. The registry measures outcomes like the occurrence of ESRD requiring renal replacement therapy within one year. The study is supported institutionally by the Biomedicine Agency and coordinated nationally and regionally by specialized groups. There is no intervention or treatment administered as this is an observational registry collecting health data over time.

French Renal Epidemiology and Information Network (REIN) Registry