Actively Recruiting
Friedreich Ataxia Global Clinical Consortium UNIFIED Natural History Study
Led by Friedreich's Ataxia Research Alliance · Updated on 2025-06-17
3000
Participants Needed
34
Research Sites
1282 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
This project is a global, multicenter, prospective, longitudinal, observational natural history study that can be used to understand the disease progression and support the development of safe and effective drugs and biological products for Friedreich ataxia.
CONDITIONS
Official Title
Friedreich Ataxia Global Clinical Consortium UNIFIED Natural History Study
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Both males and females of any age
- Genetically confirmed diagnosis of Friedreich Ataxia
- Written informed consent provided by participant or legally authorized representative
- For minors, assent from the child and consent from parent or guardian as applicable
You will not qualify if you...
- Unable or unwilling to provide informed consent
- Acute or ongoing medical or other conditions interfering with study conduct or assessments
- Investigator judgment that participant is unlikely or unable to follow study protocol requirements
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 34 locations
1
UCLA Ataxia Center
Los Angeles, California, United States, 90095
Actively Recruiting
2
University of Colorado
Denver, Colorado, United States, 80045
Actively Recruiting
3
University of Florida - Neurology
Gainesville, Florida, United States, 32610
Actively Recruiting
4
USF Ataxia Research Center
Tampa, Florida, United States, 33612
Actively Recruiting
5
Emory University Hospital - Neurology
Atlanta, Georgia, United States, 30329
Actively Recruiting
6
University of Iowa, Stead Family Children's Hospital
Iowa City, Iowa, United States, 52242
Actively Recruiting
7
Ohio State University - Neurology
Columbus, Ohio, United States, 43221
Actively Recruiting
8
Children's Hospital of Philadelphia
Philadelphia, Pennsylvania, United States, 19104
Actively Recruiting
9
St. Jude Children's Research Hospital
Memphis, Tennessee, United States, 38105
Actively Recruiting
10
Murdoch Childrens Research Institute
Parkville, Victoria, Australia, 3052
Actively Recruiting
11
Medical University Innsbruck, Department of Neurology
Innsbruck, Austria, 6020
Actively Recruiting
12
Université Libre de Bruxelles, Hôpital Erasme, Dpt of Neurology
Brussels, Belgium, 1070
Actively Recruiting
13
University of Campinas
Campinas, Brazil
Not Yet Recruiting
14
The Hospital for Sick Children
Toronto, Ontario, Canada, M5G 1X8
Actively Recruiting
15
CHUM - Hopital Notre-Dame
Montreal, Quebec, Canada, h2x0a9
Actively Recruiting
16
McGill University Health Centre - Montreal Neurological Institute
Montreal, Quebec, Canada, H9R 2Y2
Actively Recruiting
17
Motol University Hospital, Centre for Hereditary Ataxias
Prague, Czechia, 150 06
Actively Recruiting
18
Paris Brain Institute
Paris, France, 75013
Actively Recruiting
19
Hôpital de Hautepierre, Service de Neurologie
Strasbourg, France, 67098
Not Yet Recruiting
20
University Hospital Aachen, Dept. of Neurology
Aachen, Germany, 52074
Actively Recruiting
21
Deutsches Zentrum Für Neurodegenerative Erkrankungen
Bonn, Germany, 53105
Not Yet Recruiting
22
University of Munich, Dept. of Neurology, Friedrich-Baur-Institut
Munich, Germany, 80336
Actively Recruiting
23
University of Tübingen, Dept. of Neurodegenerative Diseases, Hertie-Institute for Clinical Brain Research
Tübingen, Germany, 72076
Actively Recruiting
24
National and Kapodistrian University of Athens, Neurogenetics Unit
Athens, Greece, 11528
Actively Recruiting
25
All India Institute of Medical Sciences (AIIMS)
New Delhi, National Capital Territory of Delhi, India, 110020
Actively Recruiting
26
Tallaght University Hospital, Department of Neurology
Dublin, Ireland, D24 TP66
Actively Recruiting
27
Referente Clinico-Scientifico di Polo IRCCS "E. Medea"
Conegliano, Italy, 21015
Actively Recruiting
28
Fondazione IRCCS Istituto Neurologico Carlo Besta
Milan, Italy, 20133
Actively Recruiting
29
Bambino Gesù Children's Hospital, Department of Neurosciences
Roma, Italy, 00146
Not Yet Recruiting
30
Stichting Radboud Universitair Medisch Centrum
Nijmegen, Netherlands, 6525
Actively Recruiting
31
Auckland City Hospital
Auckland, New Zealand, 1023
Actively Recruiting
32
Hospital Sant Joan de Déu, Servicio de Neurología
Barcelona, Spain, 08950
Not Yet Recruiting
33
Hospital Universitario La Paz, Servicio de Neurologia
Madrid, Spain, 28046
Not Yet Recruiting
34
University College of London, Ataxia Centre, National Hospital for Neurology and Neurosurgery
London, United Kingdom, WC1N 3 BG
Not Yet Recruiting
Research Team
C
Cait Monette
CONTACT
J
Jennifer Farmer
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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