Actively Recruiting
Future Planning and Well-Being for Individuals With Intellectual Disabilities and Family Caregivers
Led by Northwell Health · Updated on 2024-01-03
1050
Participants Needed
1
Research Sites
279 weeks
Total Duration
On this page
Sponsors
N
Northwell Health
Lead Sponsor
P
Patient-Centered Outcomes Research Institute
Collaborating Sponsor
AI-Summary
What this Trial Is About
This study will compare the effectiveness of a web-based long-term care planning tool (Map Our Life) partnered with traditional case management services to traditional case management services partnered with an attention-control Centers for Disease Control and Prevention (CDC) sponsored website on health promotion for people with disabilities. The goal of this clinical trial is to promote long-term care (LTC) knowledge and planning among individuals with intellectual/developmental disabilities (IDD) and their family caregivers to improve social supports, health, and quality of life outcomes.
CONDITIONS
Official Title
Future Planning and Well-Being for Individuals With Intellectual Disabilities and Family Caregivers
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Family caregivers of individuals with intellectual and/or developmental disabilities living in a community setting
- Ability to speak English or Spanish
- Access to a tablet, computer, or smartphone
You will not qualify if you...
- Speaks a language other than English or Spanish
- Does not have access to a tablet, computer, or smartphone
- Caregivers who care for individuals with intellectual and developmental disabilities who are less than 10 years of age
- Special populations such as fetuses, prisoners, or other institutionalized individuals
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Cohen Children's Medical Center
New Hyde Park, New York, United States, 11040
Actively Recruiting
Research Team
S
Sophia Jan, MD, MSHP
CONTACT
How is the study designed?
Study Type
INTERVENTIONAL
Masking
NONE
Allocation
RANDOMIZED
Model
PARALLEL
Primary Purpose
HEALTH_SERVICES_RESEARCH
Number of Arms
2
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