Actively Recruiting
Generating Advancements Through Longitudinal Analysis in X and Y Variations (GALAXY)
Led by University of Colorado, Denver · Updated on 2024-04-18
5000
Participants Needed
1
Research Sites
778 weeks
Total Duration
On this page
Sponsors
U
University of Colorado, Denver
Lead Sponsor
C
Children's Hospital Colorado
Collaborating Sponsor
AI-Summary
What this Trial Is About
GALAXY is a registry research study that plans to learn more about individuals with X\&Y variations (also called sex chromosome aneuploidies) through collecting information from medical records.This includes genetic tests, imaging, medications, and more for hundreds of patients seen at a number of clinics across the US. The purpose of the GALAXY Registry is to collect and store this information with the overall goal to improve health outcomes in individuals with X\&Y variations and the care they receive.
CONDITIONS
Official Title
Generating Advancements Through Longitudinal Analysis in X and Y Variations (GALAXY)
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Genetically-confirmed diagnosis of a sex chromosome aneuploidy condition
- Any age
- Any gender
- Informed consent for individuals over 18 years of age, parent or guardian permission for individuals under 18, or proxy consent from a legally authorized representative if decision making is impaired
You will not qualify if you...
- Lack of documentation of genetic testing confirming sex chromosome aneuploidy diagnosis
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Children's Hospital Colorado
Aurora, Colorado, United States, 80045
Actively Recruiting
Research Team
S
Shanlee M Davis, MD, PhD
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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