Actively Recruiting

Age: 3Months - 25Years
All Genders
NCT02890641

Genetic and Electrophysiologic Study in Focal Drug-resistant Epilepsies

Led by Fondation Ophtalmologique Adolphe de Rothschild · Updated on 2026-04-17

450

Participants Needed

1

Research Sites

832 weeks

Total Duration

On this page

AI-Summary

What this Trial Is About

Brain somatic mutations are increasingly recognized as a major cause of focal epilepsies. These include mTOR pathway mutations underlying cortical malformations such as focal cortical dysplasia and hemimegalencephaly, and SLC35A2 mutations in MOGHE, and activating variants in the SHH pathway in hypothalamic hamartomas. This study aims to identify brain somatic mutations using paired blood-brain samples and trace DNA from stereo-EEG electrodes, and to perform functional validation of candidate variants in children with drug-resistant focal epilepsy.

CONDITIONS

Official Title

Genetic and Electrophysiologic Study in Focal Drug-resistant Epilepsies

Who Can Participate

Age: 3Months - 25Years
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Children with focal drug-resistant epilepsy including Focal Cortical Dysplasia, Hemimegalencephaly, Tuberous Sclerosis, Mild malformation of cortical development with oligodendroglial hyperplasia in epilepsy (MOGHE), Hypothalamic Hamartomas, Sturge-Weber syndrome, Rasmussen encephalitis, gliomas
  • Parents who have signed informed consent for their child's participation and for themselves
  • Social security coverage or foreign regime recognized in France
Not Eligible

You will not qualify if you...

  • Refusal to participate in the study
  • Contraindication to anesthesia, MRI, or surgery
  • No medical insurance coverage

AI-Screening

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Trial Site Locations

Total: 1 location

1

Fondation Ophtalmologique Adolphe de Rothschld

Paris, France, 75019

Actively Recruiting

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Research Team

A

Amelie YAVCHITZ, MD

CONTACT

M

Mathilde CHIPAUX, MD, PhD

CONTACT

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

1

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