Actively Recruiting
Genetic Frontotemporal Dementia Initiative for Neurodevelopment
Led by Western University · Updated on 2025-04-03
200
Participants Needed
1
Research Sites
621 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
This is an international multi-centre cohort study of first and second degree family members of individuals who carry Frontotemporal Dementia (FTD) mutations in MAPT, GRN or C9ORF72 repeat expansions for youths between the ages 9-17.
CONDITIONS
Official Title
Genetic Frontotemporal Dementia Initiative for Neurodevelopment
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Written informed consent obtained from participant and substitute decision maker
- Youths aged 9 to 16 at enrollment, followed until age 17
- First or second degree biological relative with known genetic FTD mutation who has participated in GENFI study
- Parent or guardian supports participation
- Study partner (parent/guardian) available for regular contact and corroborative information
- Age-appropriate awareness of FTD in family as determined by local investigator
You will not qualify if you...
- Current brain abnormalities affecting cognition or behavior unrelated to genetic FTD that prevent study participation (e.g., tumor, stroke, hydrocephalus)
- Concerns that participation is not in the best interest of youth or parent raised by parent/guardian or healthcare providers
- No available study partner
- MRI contraindications; participants may decline MRI and still complete other measures
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Western University
London, Ontario, Canada, N6A 3K7
Actively Recruiting
Research Team
K
Kristy Coleman
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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