GISAR German Interdisciplinary Sarcoma Registry

What this Trial Is About

This research aims to collect comprehensive data on sarcomas and carcinosarcomas (CS), rare malignant tumors affecting people of all ages, including over 80 subtypes of soft tissue sarcomas. The study focuses on understanding the clinical course and treatment outcomes of these diverse tumors, especially the aggressive mixed sarcomatoid/epithelial tumors called carcinosarcomas. The registry seeks to capture data from patients treated in Germany to improve knowledge of diagnosis, treatment, and disease progression over time. Participants with verified bone or soft tissue sarcomas, including tumors with borderline or unclear histological features, as well as carcinosarcomas, are included regardless of their therapy type or treatment stage. Data collection can be prospective or retrospective and involves a basic dataset for every patient, with additional detailed information gathered in specific sub-projects focused on scientific questions like therapy effectiveness and adverse effects. Throughout the study, patient data on treatments and outcomes are recorded to identify trends and inform best practices. Researchers monitor the incidence, prevalence, and prognosis of sarcoma subtypes annually. Participation involves providing informed consent, and data collection may include medical records and other relevant information. The study's duration allows ongoing data aggregation and analysis to capture the evolving treatment landscape for sarcoma and carcinosarcoma patients.

GISAR German Interdisciplinary Sarcoma Registry