Actively Recruiting
Glioma Developmental and HyperActive Ras Tumor (DHART) Board
Led by Memorial Sloan Kettering Cancer Center · Updated on 2025-06-29
50
Participants Needed
7
Research Sites
209 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
This study will collect medical records, scan results, and complete surveys to create a registry about people with a neurofibromatosis type 1-associated brain tumor (NF1-associated glioma). A registry is a collection of health information about individuals, and it is usually focused on a specific diagnosis or condition. This registry study will help the researchers learn more about the diagnosis, treatment, and quality of life of people with NF1-associated glioma. The researchers want to understand what happens as a result of different treatments for NF1-associated glioma and how these treatments and the disease itself affect people's lives over a period of time. Information collected during this study could affect how doctors diagnose, test, and treat NF1-associated glioma, and the study could help future patients with this type of cancer.
CONDITIONS
Official Title
Glioma Developmental and HyperActive Ras Tumor (DHART) Board
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Clinical diagnosis meeting NIH criteria for NF1 by documented record or supported self-report
- Willing to have historical and future NF1-related health records sent to the registry
- Radiologic or pathologically confirmed glioma
- 18 years of age or older at the time of consent
You will not qualify if you...
- Unwilling to sign informed consent
- Not proficient in English or Spanish as determined by the Investigator
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 7 locations
1
Memorial Sloan Kettering Basking Ridge (All Protocol Activities)
Basking Ridge, New Jersey, United States, 07920
Actively Recruiting
2
Memorial Sloan Kettering Monmouth (All protocol activities)
Middletown, New Jersey, United States, 07748
Actively Recruiting
3
Memorial Sloan Kettering Bergen (All Protocol Activities)
Montvale, New Jersey, United States, 07645
Actively Recruiting
4
Memorial Sloan Kettering Suffolk - Commack (All Protocol Activities)
Commack, New York, United States, 11725
Actively Recruiting
5
Memorial Sloan Kettering West Harrison (All Protocol Activities)
Harrison, New York, United States, 10604
Actively Recruiting
6
Memorial Sloan Kettering Cancer Center (All Protocol Activities)
New York, New York, United States, 10065
Actively Recruiting
7
Memorial Sloan Kettering Nassau (All Protocol Activities)
Rockville Centre, New York, United States, 11570
Actively Recruiting
Research Team
A
Anna Piotrowski, MD
CONTACT
I
Ingo Mellinghoff, MD
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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