International Takayasu Arteritis Registry Collecting Patient Data and Outcomes

What this Trial Is About

This research aims to collect and analyze comprehensive data from patients with Takayasu Arteritis TAK worldwide to better understand the disease. It includes both a retrospective study for patients already diagnosed and treated, and a prospective longitudinal study for new patients diagnosed after the registry begins. The study is international and multi-center, focusing on patients diagnosed according to established criteria to compare clinical features, management approaches, and outcomes. The study is observational and non-interventional, meaning it gathers information during routine clinical care without altering treatments. Researchers will compile demographic, clinical, laboratory, and imaging data collected over time from patients at participating centers. This includes monitoring disease activity, relapse rates, mortality, and long-term complications through regular clinical assessments. Participants will be followed up for up to 10 years 120 months, during which data on clinical remission at 12 months, disease relapse, progression of damage, and radiographic changes will be recorded. Data collection relies on standard care procedures, with no experimental treatments involved. The registry aims to improve understanding of TAK by observing outcomes and treatment patterns in real-world clinical settings over the long term.

Global Initiative on Takayasu Arteritis (GITA)