Actively Recruiting

Phase 2
Age: 18Years - 45Years
FEMALE
NCT05478083

A GnRH Agonist IN Pre-menopausal Women STudy to Treat Severe Polycystic Liver Disease

Led by University Medical Center Groningen · Updated on 2022-11-04

36

Participants Needed

2

Research Sites

278 weeks

Total Duration

On this page

Sponsors

U

University Medical Center Groningen

Lead Sponsor

R

Radboud University Medical Center

Collaborating Sponsor

AI-Summary

What this Trial Is About

Multicenter trial on the effect of the GnRH analogue leuprorelin on the growth of total liver volume in pre-menopausal women with very severe polycystic liver disease who, despite available therapy, experience growth and are heading for liver transplantation.

CONDITIONS

Official Title

A GnRH Agonist IN Pre-menopausal Women STudy to Treat Severe Polycystic Liver Disease

Who Can Participate

Age: 18Years - 45Years
FEMALE

Eligibility Criteria

Eligible

You may qualify if you...

  • Female patients
  • Diagnosis of polycystic liver disease with more than 10 liver cysts
  • Age between 18 and 45 years inclusive
  • Very large liver for age defined as upper 10% liver volumes by age group:
    • 18-30 years: height adjusted total liver volume > 2.0 L/m
    • 30-35 years: height adjusted total liver volume > 2.2 L/m
    • 35-40 years: height adjusted total liver volume > 2.5 L/m
    • 40-45 years: height adjusted total liver volume > 3.0 L/m
  • Availability of at least 1 historical MRI or CT scan between 5 to 1 years before baseline
  • Ongoing liver growth confirmed by increase in total liver volume between historical scan and screening MRI
  • Use of somatostatin analogue with confirmed liver growth despite treatment, or specific reason not to use somatostatin analogue
  • Voluntary written informed consent and ability to complete study questionnaires
Not Eligible

You will not qualify if you...

  • Post-menopausal status or symptoms indicating upcoming menopause
  • Anti Mullerian Hormone (AMH) level below 0.03 ng/ml at screening
  • Active desire to have children, pregnancy, or breastfeeding
  • Contraindications for leuprorelin, including history of cardiovascular disease, osteoporosis or intolerance
  • Planned liver transplantation or surgery within 1.5 years
  • Use of hormonal oral contraceptives containing estrogen and/or progesterone
  • Contraindications for MRI or inability/unwillingness to undergo MRI
  • Kidney transplantation or chronic use of certain immunosuppressive agents
  • Severe hypertension (systolic >160 mmHg or diastolic >100 mmHg)
  • Clinically significant uncontrolled medical condition that risks safety or affects study compliance
  • Participation in other interventional studies at the same time

AI-Screening

AI-Powered Screening

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Trial Site Locations

Total: 2 locations

1

Radboudumc

Nijmegen, Gelderland, Netherlands, 6525 GA

Not Yet Recruiting

2

Groningen universitair medical center

Groningen, Netherlands, 9713 GZ

Actively Recruiting

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Research Team

R

Ron T Gansevoort

CONTACT

R

Renée Duijzer

CONTACT

How is the study designed?

Study Type

INTERVENTIONAL

Masking

SINGLE

Allocation

RANDOMIZED

Model

PARALLEL

Primary Purpose

TREATMENT

Number of Arms

2

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