Actively Recruiting

Phase Not Applicable
Age: 5Years - 17Years
All Genders
NCT07488338

HABIT-ILE + FST in Children With SMA: Preliminary Effectiveness

Led by Teachers College, Columbia University · Updated on 2026-03-23

20

Participants Needed

1

Research Sites

146 weeks

Total Duration

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AI-Summary

What this Trial Is About

This single-arm pilot study will assess the preliminary effectiveness of an intensive motor skill intervention (HABIT-ILE) combined with functional strength training (FST) in children with SMA who are receiving disease-modifying therapies. Participants will attend a HABIT-ILE + FST summer camp for 6 hours per day over a 3-week period, totaling 90 hours of training.

CONDITIONS

Official Title

HABIT-ILE + FST in Children With SMA: Preliminary Effectiveness

Who Can Participate

Age: 5Years - 17Years
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Have a confirmed SMA diagnosis
  • Be between 5 and 17 years old
  • Complete all pre- and post-intervention assessments
  • Understand and speak English
  • Follow instructions without major cognitive or behavioral issues
  • Have received a stable disease-modifying therapy dose for at least 6 months
  • Be classified as a sitter or walker (SMA type 2 or 3) with supported standing ability (score 1 or higher on Item 18 of the HFMSE) without using KAFOs, AFOs, or external standing devices
Not Eligible

You will not qualify if you...

  • Orthopedic surgery within the past year
  • New pharmaceutical treatment during the study
  • Concurrent participation in another clinical trial

AI-Screening

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Trial Site Locations

Total: 1 location

1

Center for Cerebral Palsy Research, Teachers College, Columbia University

New York, New York, United States, 10021

Actively Recruiting

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Research Team

A

Andrew M Gordon, PhD

CONTACT

A

Astrid Carton de Tournai, PhD

CONTACT

How is the study designed?

Study Type

INTERVENTIONAL

Masking

NONE

Allocation

NA

Model

SINGLE_GROUP

Primary Purpose

TREATMENT

Number of Arms

1

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