Actively Recruiting
Hairy Cell Leukemia Patient Data Registry
Led by Ohio State University Comprehensive Cancer Center · Updated on 2025-04-16
5000
Participants Needed
6
Research Sites
938 weeks
Total Duration
On this page
Sponsors
O
Ohio State University Comprehensive Cancer Center
Lead Sponsor
H
Hairy Cell Leukemia Foundation
Collaborating Sponsor
AI-Summary
What this Trial Is About
The overall objective is to develop a clinical data registry that can be used to facilitate research with the ultimate goal of reducing the morbidity and/or mortality and improving the quality of life of patients diagnosed or living with hairy cell leukemia. With approximately 1,000 new cases of this rare disease identified in the US each year, HCL represents 2% of all cases of leukemia in adults. Considering the rarity of this chronic leukemia, the Hairy Cell Leukemia Foundation (HCLF), in partnership with investigators from its Centers of Excellence, seeks to develop a registry to help researchers identify new trends in outcomes, recognize the most effective treatments, discover previously unknown complications of the disease, and design clinical trials for new therapies.
CONDITIONS
Official Title
Hairy Cell Leukemia Patient Data Registry
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Patients with classic hairy cell leukemia
- Patients with the variant of hairy cell leukemia.
You will not qualify if you...
- Children are excluded from the study, since Hairy Cell Leukemia wasn't described in children.
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 6 locations
1
University of Miami/Soffer Clinical Research Center
Miami, Florida, United States, 33136
Actively Recruiting
2
Mayo Clinic
Rochester, Minnesota, United States, 55905
Actively Recruiting
3
University of Rochester /Wilmot Cancer Institute
Rochester, New York, United States, 14642
Actively Recruiting
4
Ohio State University Comprehensive Cancer Center
Columbus, Ohio, United States, 43210
Actively Recruiting
5
Peter MacCallum Cancer Center
Melbourne, Victoria, Australia, VIC 3000
Actively Recruiting
6
Cancer Care Manitoba
Winnipeg, Manitoba, Canada, R3E 0V9
Actively Recruiting
Research Team
H
Hairy Cell Leukemia Research Data Registry
CONTACT
D
Derick Campbell
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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