Health Advocate Support to Improve Care Transition for Adolescents and Young Adults After Liver Transplant

What this Trial Is About

This research focuses on adolescent and young adult liver transplant recipients who are transitioning their care to adult transplant teams. The study evaluates the feasibility and acceptability of adding a Health Advocate to the transplant care team to support this transition. The Health Advocate role includes assisting with medical care coordination, financial help like taxi vouchers, and linking families to community resources to improve communication and self-management. Participants will receive the Health Advocate intervention, which aims to address unmet social needs such as food insecurity, improve communication between patients and providers, and enhance care coordination. This is a single-arm pilot intervention without randomization or placebo. The study measures changes at baseline and after 180 days to assess patient experience, medication adherence, quality of interactions, and satisfaction with the intervention. During the 180-day study period, participants will be monitored for changes in their experience and medication adherence using the Medication Level Variability Index MLVI. Researchers will also evaluate the quality of interactions involving the Health Advocate and gather qualitative feedback from patients and healthcare providers about their satisfaction. The study participation requires ability to use video or audio virtual visits via Zoom and involves consent from participants aged 18 to 25 years.

HEalth Advocate for Liver Transplantation: Improving Transition of Care for Adolescent Liver Transplant Recipients