Actively Recruiting

Age: 2Years - 15Years
All Genders
ID06906406

Health-Related Quality of Life in Children and Adolescents With Clubfoot. A Prospective Observational Study

Led by Vestre Viken Hospital Trust · Updated on 2025-04-02

30

Participants Needed

1

Research Sites

52 weeks

Total Duration

On this page

AI-Summary

What this Trial Is About

Researchers are evaluating the health-related quality of life (HRQoL) in children aged 2 to 15 years who have congenital clubfoot and are treated mainly using the Ponseti method. This prospective observational study aims to understand how clubfoot and its treatment affect patients' physical, emotional, and social well-being over time. Participants will be observed over a period of 5 years, with assessments at the start and during follow-ups. The study uses the Pediatric Quality of Life Inventory (PedsQL 4.0) to measure HRQoL and the PBS Clubfoot Score (PBS) to evaluate clinical outcomes. Additional assessments include pain and satisfaction evaluations. Children and their families will participate in regular follow-up visits where questionnaires and clinical scores will be collected. These visits will monitor changes in quality of life, clinical function, pain, and satisfaction related to clubfoot and its treatment. The total participation duration extends up to 5 years to capture long-term effects.

CONDITIONS

Brief Title

Health-Related Quality of Life in Children and Adolescents With Clubfoot

Who Can Participate

Age: 2Years - 15Years
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Children aged 2 to 15 years diagnosed with congenital clubfoot
  • Receiving treatment or follow-up at Drammen Hospital
  • Includes both unilateral and bilateral clubfoot cases
  • Written informed consent from parents or legal guardians
Not Eligible

You will not qualify if you...

  • Severe medical or psychological conditions that could affect study outcomes
  • No written informed consent provided
  • Missing or incomplete data for PedsQL or PBS assessments

AI-Screening

AI-Powered Screening

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Your Study Journey

Screening

Duration - 2 to 4 weeks

Participants are screened for eligibility to participate in the trial.

1 visit (in-person)

Long-term Monitoring

Duration - 5 years

Participants are followed over a period of 5 years with assessments of health-related quality of life, clubfoot severity, pain, and satisfaction.

Baseline visit followed by regular follow-up visits over 5 years

Trial Site Locations

Total: 1 location

1

Vestreviken

Drammen, Buskerud, Norway, 3004

Actively Recruiting

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Research Team

P

Per Reidar Høiness, MD PhD

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

0

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