Actively Recruiting

Age: 21Years +
All Genders
NCT01915511

Idiopathic Pulmonary Fibrosis and Interstitial Lung Disease Prospective Outcomes Registry

Led by Duke University · Updated on 2026-05-06

3000

Participants Needed

44

Research Sites

865 weeks

Total Duration

On this page

Sponsors

D

Duke University

Lead Sponsor

B

Boehringer Ingelheim

Collaborating Sponsor

AI-Summary

What this Trial Is About

The Idiopathic Pulmonary Fibrosis Prospective Outcomes (IPF-PRO) Registry started recruiting in 2014 with the objective of studying Idiopathic Pulmonary Fibrosis. In 2018, the registry expanded to include recruitment of participants with other chronic fibrosing interstitial lung diseases (ILDs) with progressive phenotype also referred to as progressive fibrosing interstitial lung diseases in the Chronic Fibrosis Interstitial Lung Disease with Progressive Phenotype (ILD-PRO) Registry. When the third phase of the registry begins, the IPF-PRO registry will enroll additional patients with idiopathic pulmonary fibrosis. This IPF-PRO registry is a prospective registry that will collect information regarding the natural history, health care interactions, participant reported questionnaire data to assess quality of life, and the methods of treatment of participants with a diagnosis of idiopathic pulmonary fibrosis (IPF) or of another chronic fibrosing interstitial lung disease (ILD) with progressive phenotype established at the enrolling centers. In addition, blood samples and chest image studies will be collected and banked for future research projects.

CONDITIONS

Official Title

Idiopathic Pulmonary Fibrosis and Interstitial Lung Disease Prospective Outcomes Registry

Who Can Participate

Age: 21Years +
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Willing and able to provide informed consent
  • New diagnosis of IPF within 12 months by enrolling center
  • Age 21 years or older
  • Diagnosis of non-IPF chronic fibrosing ILD with progressive phenotype during last 24 months, confirmed by chest HRCT scan and/or lung biopsy
  • Evidence of progression defined by decline in lung function or worsening symptoms/imaging within last 24 months
Not Eligible

You will not qualify if you...

  • Malignancy treated or untreated (except skin or early-stage prostate cancer) within past 5 years
  • Currently listed for lung transplantation
  • Currently enrolled in an interventional clinical trial
  • Previous enrollment in this registry for additional IPF cohort

AI-Screening

AI-Powered Screening

Complete this quick 3-step screening to check your eligibility

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Trial Site Locations

Total: 44 locations

1

University of Alabama - Birmingham

Birmingham, Alabama, United States, 35294

Actively Recruiting

2

University of Arizona

Tucson, Arizona, United States, 85721

Actively Recruiting

3

University of California - Los Angeles

Los Angeles, California, United States, 90024

Actively Recruiting

4

University of Southern California

Los Angeles, California, United States, 90033

Actively Recruiting

5

Stanford University

Stanford, California, United States, 94305

Actively Recruiting

6

University of Colorado

Aurora, Colorado, United States, 80045

Actively Recruiting

7

Yale University

New Haven, Connecticut, United States, 06520

Actively Recruiting

8

University of Florida

Gainesville, Florida, United States, 32610-3175

Actively Recruiting

9

University of South Florida

Tampa, Florida, United States, 33606

Actively Recruiting

10

Emory University

Atlanta, Georgia, United States, 30322

Actively Recruiting

11

Piedmont Healthcare

Austell, Georgia, United States, 30106

Actively Recruiting

12

University of Chicago

Chicago, Illinois, United States, 60637

Actively Recruiting

13

Northwestern University

Evanston, Illinois, United States, 60611

Actively Recruiting

14

Loyola University Health System

Maywood, Illinois, United States, 60153

Actively Recruiting

15

University of Kansas

Kansas City, Kansas, United States, 66160

Active, Not Recruiting

16

Tulane University

New Orleans, Louisiana, United States, 70112

Actively Recruiting

17

University of Michigan

Ann Arbor, Michigan, United States, 48109

Active, Not Recruiting

18

University of Minnesota

Minneapolis, Minnesota, United States, 55455

Actively Recruiting

19

University of Mississippi Medical Center

Jackson, Mississippi, United States, 39216

Actively Recruiting

20

Washington University

St Louis, Missouri, United States, 63110

Actively Recruiting

21

NYU Medical Center

New York, New York, United States, 10016

Active, Not Recruiting

22

Weill Medical College of Cornell University

New York, New York, United States, 10065

Actively Recruiting

23

UNC Chapel Hill

Chapel Hill, North Carolina, United States, 27514

Actively Recruiting

24

Duke University

Durham, North Carolina, United States, 27705

Actively Recruiting

25

Pulmonix LLC

Greensboro, North Carolina, United States, 27403

Actively Recruiting

26

PMG Research

Wilmington, North Carolina, United States, 28401

Active, Not Recruiting

27

Wake Forest Baptist Health

Winston-Salem, North Carolina, United States, 27157

Actively Recruiting

28

University of Cincinnati Medical Center

Cincinnati, Ohio, United States, 45267

Active, Not Recruiting

29

Cleveland Clinic

Cleveland, Ohio, United States, 44195

Actively Recruiting

30

The Ohio State University

Columbus, Ohio, United States, 43210

Actively Recruiting

31

University of Oklahoma

Oklahoma City, Oklahoma, United States, 73104

Actively Recruiting

32

Oregon Clinic

Portland, Oregon, United States, 97220

Actively Recruiting

33

Thomas Jefferson University

Philadelphia, Pennsylvania, United States, 19144

Actively Recruiting

34

Medical University of South Carolina

Charleston, South Carolina, United States, 29425

Actively Recruiting

35

Vanderbilt University

Nashville, Tennessee, United States, 37232

Actively Recruiting

36

University of Texas Southwestern

Dallas, Texas, United States, 75235

Actively Recruiting

37

Baylor University Medical Center at Dallas

Dallas, Texas, United States, 75246

Actively Recruiting

38

Baylor College of Medicine

Houston, Texas, United States, 77030

Actively Recruiting

39

Houston Methodist Lung Center

Houston, Texas, United States, 77030

Actively Recruiting

40

The University of Texas Health Science Center At Houston

Houston, Texas, United States, 77030

Actively Recruiting

41

University of Utah

Salt Lake City, Utah, United States, 84108

Actively Recruiting

42

University from Virginia

Charlottesville, Virginia, United States, 22908

Active, Not Recruiting

43

Inova

Falls Church, Virginia, United States, 22042-3307

Actively Recruiting

44

The Medical College of Wisconsin

Milwaukee, Wisconsin, United States, 53226

Active, Not Recruiting

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Research Team

R

Rosalia Blanco

CONTACT

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

3

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