Actively Recruiting

Phase Not Applicable
Age: 0 - 24Years
All Genders
NCT07302048

Impact and Determinants of Success of a Mobile Multidisciplinary Intervention System Specialized in Pain Management for Patients With Moderate to Severe Intellectual Development Disorder, Isolated or Associated With an ASD or Multiple Disability

Led by University Hospital, Brest · Updated on 2025-12-24

80

Participants Needed

1

Research Sites

131 weeks

Total Duration

On this page

Sponsors

U

University Hospital, Brest

Lead Sponsor

F

Fondation de France

Collaborating Sponsor

AI-Summary

What this Trial Is About

Pain is described by patients with a Neurodevelopmental Disorder (NDD), including Autism Spectrum Disorder (ASD), Intellectual Development Disorder (IDD) or multiple disabilities, and the family as one of the main associated disorders; its management is also one of the main concerns of families and professionals. At present, there is no validated and tested pain management system in populations facing complex pain situations. In response to the lack of a pain management services, a multi-disciplinary mobile team was set up in September 2022 at the Brest University Hospital (Mobile Pain Handicap Team Intellectual Disability 0-25 years; MoDIDol). This team offers a specific protocol for the assessment and management of pain that takes into account the social and family environment, the living context and the clinical characteristics of patients (children, adolescents and young adults (0-25 years) with IDD, ASD or multiple disabilities). The team includes at least one paediatrician specialising in the assessment and treatment of pain and a nurse, and travels to patients' usual living environments.

CONDITIONS

Official Title

Impact and Determinants of Success of a Mobile Multidisciplinary Intervention System Specialized in Pain Management for Patients With Moderate to Severe Intellectual Development Disorder, Isolated or Associated With an ASD or Multiple Disability

Who Can Participate

Age: 0 - 24Years
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Aged from birth up to 24 years inclusive (under 25 years old)
  • Medical diagnosis of intellectual disability, isolated or with autism spectrum disorder, developmental disorder, or profound multiple disabilities based on ICD-11 or DSM-5
  • Confirmed probable or definite pain diagnosis validated by the MoDIDol team
  • PGIC score greater than or equal to 3
  • Living in or receiving care in the departments of Finistère, Côtes-d'Armor, or Morbihan
  • Written informed consent provided by parents, legal guardians, or holders of parental authority
  • Affiliated with or benefiting from a French national health insurance scheme
Not Eligible

You will not qualify if you...

  • Having more than three places of residence or care settings
  • Parents or legal guardians lacking sufficient language or comprehension skills to provide informed consent or complete study questionnaires

AI-Screening

AI-Powered Screening

Complete this quick 3-step screening to check your eligibility

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Trial Site Locations

Total: 1 location

1

CHU de Brest - Hôpital Morvan

Brest, France, 29200

Actively Recruiting

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Research Team

P

Philippe LE MOINE, MD

CONTACT

How is the study designed?

Study Type

INTERVENTIONAL

Masking

NONE

Allocation

NA

Model

SINGLE_GROUP

Primary Purpose

OTHER

Number of Arms

1

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