Study of Nursing Support Effects on Parental Stress During Preoperative Care of Newborns with Hirschsprung Disease

What this Trial Is About

This research investigates how providing nursing support at home affects the stress levels of parents caring for newborns with Hirschsprung disease before surgery. The study focuses on families with newborns or infants under 2 months who require nursing care 1 to 2 times daily prior to their childs surgery. The goal is to understand the impact of professional nursing assistance on parental stress during this challenging time. Participants are divided into two groups families living in Marseille who receive nursing support at home from pediatric Hospitalization at Home HAH nurses, and families outside Marseille who perform nursing care independently without such support. The nursing support is designed to help parents manage their childs condition effectively while waiting for surgery. Parents involved in the study will complete questionnaires that assess their stress, the mother-infant bonding experience, and the burden of nursery training from enrollment until six months after treatment. Researchers will monitor these outcomes to evaluate the effects of nursing support. The study duration covers the preoperative period and extends through six months post-treatment to capture longer-term impacts on families.

Impact of Providing Nursing Support on Parental Stress Related to Preoperative Care of a Newborn with Hirschsprung's Disease