Improvement of Quality of Life Using Preference-Oriented Monitoring and Linkage with Clinical Registry Data in Patients with Lung Cancer

What this Trial Is About

Researchers are evaluating whether a preference-oriented quality of life QoL monitoring system with specific diagnostic and therapeutic options can improve the well-being of patients with lung cancer during routine follow-up care. This study builds on successful QoL interventions for breast and colorectal cancer and aims to adapt the system for lung cancer patients in multiple centers. The study uses electronic QoL questionnaires and links patient data with a cancer registry to support analysis. Participants are randomly assigned to one of two groups. The intervention group receives real-time results from an electronic QoL monitoring system based on the EORTC QLQ-C30 and QLQ-LC29 questionnaires, along with access to a multiprofessional network of therapists such as pain therapy, psychotherapy, social support, nutrition counseling, physiotherapy, fitness, respiratory therapy, and palliative care. The control group also completes QoL assessments but neither patients nor their physicians receive the results however, the therapist network is available for both groups. QoL is assessed at study entry and monthly for six months. Throughout the six-month follow-up, participants complete QoL questionnaires at baseline and monthly intervals. Researchers monitor the proportion of patients needing QoL therapy based on a profile with eight dimensions, with a focus on whether the intervention reduces this need after six months. Data collection includes linking clinical information from a cancer registry. The study involves multiple assessments, therapeutic referrals, and ongoing monitoring to evaluate quality of life improvements in lung cancer patients.

Improvement of Quality of Life (QoL) Using Preference-Oriented QoLMonitoring in Patients with Lung Cancer