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A Study to Improve Sexual and Reproductive Health Communication Between Adolescent and Young Adult Cancer Patients and Their Clinicians Using the ReSPECT Digital Platform
Led by Connecticut Children's Medical Center · Updated on 2025-08-14
60
Participants Needed
1
Research Sites
15 weeks
Total Duration
AI-Summary
What this Trial Is About
Researchers are evaluating a new web-based tool called ReSPECT Reproductive and Sexual Health Patient Education and Communication Tool aimed at improving communication about sexual and reproductive health between adolescent and young adult AYA cancer patients and their clinicians during outpatient oncology visits. The project includes developing, refining, and testing this patient-centered intervention to enhance discussions on these important health topics within cancer care. The study involves a single group of AYA oncology patients aged 15 to 25 who will use the ReSPECT platform. This interactive digital tool includes a pre-visit questionnaire for patients that alerts clinicians to relevant sexual and reproductive health concerns, targeted patient education based on questionnaire responses, and guidance for clinicians on addressing these issues. Participants will complete surveys before using the tool, shortly after, and again two months later. They will also be invited to a brief interview after their first post-intervention clinic visit. During the study, participants will complete baseline and follow-up surveys plus interviews to evaluate the tools feasibility, acceptability, usability, and perceived usefulness. Researchers will measure changes in patient and clinician communication, self-efficacy in discussing sexual and reproductive health, decision-making impact, distress related to these topics, risk behaviors, and therapeutic alliance. The study is conducted with active involvement from patients oncology clinicians, and participation lasts at least two months after enrollment.
CONDITIONS
Brief Title
Improving Communication Between AYA Oncology Patients and Clinicians: A Patient-Centered Intervention
Research Team
N
Natasha Frederick, MD, MPH
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