Improving Education and Support for Parents of Children with Hypospadias A Randomized Study Comparing Two Educational Websites

What this Trial Is About

This research aims to improve support and education for parents of children with hypospadias, a condition affecting the urethra in boys. Parent-child pairs will be enrolled and randomized to different groups over 36 months, with participation lasting at least 6 months. The study focuses on understanding how educational materials impact parental knowledge and decisions about hypospadias care during consultations with pediatric urologists. Parents will receive access to one of two educational websites either an enhanced site developed by the study team or a basic educational site about hypospadias. Before their childs urology consultation, parents will complete surveys about their knowledge and comfort with medical information. The study may record consultation visits with pediatric urologists if families agree. Follow-up surveys will assess parental knowledge, decision-making, and experiences up to six months after treatment decisions. Participants will be asked to complete surveys before and after the consultation, as well as follow-up phone calls about website usability and treatment outcomes. Researchers will measure outcomes such as parental knowledge, decisional conflict, regret, and consultation visit duration. The study will collect data from clinic visits, surveys, and optional audio recordings over several months to help improve educational support in hypospadias care.

Improving Parental Support in Hypospadias Care