Actively Recruiting
Institutional Registry of Haemorrhagic Hereditary Telangiectasia
Led by Hospital Italiano de Buenos Aires · Updated on 2025-05-22
590
Participants Needed
1
Research Sites
1352 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The purpose of this study is to create an institutional and population-based registry of Haemorrhagic Hereditary Telangiectasia with a prospective survey based on epidemiological data, risk factors, diagnosis, prognosis, treatment, monitoring and survival. This study will also describe the occurrence of Haemorrhagic Hereditary Telangiectasia in the population of HIBA in the Central Hospital, as well as the characteristics of clinical presentation and evolution.
CONDITIONS
Official Title
Institutional Registry of Haemorrhagic Hereditary Telangiectasia
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Patients with a defined diagnosis of Haemorrhagic Hereditary Telangiectasia (HHT)
- Followed at the Unidad HHT of Hospital Italiano de Buenos Aires
You will not qualify if you...
- Patients who refuse to participate in the registry or to provide informed consent
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Hospital Italiano de Buenos Aires
Buenos Aires, Buenos Aires, Argentina, 1081
Actively Recruiting
Research Team
M
Marcelo M Serra, MD
CONTACT
D
Diego H Giunta, MD
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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