Actively Recruiting

All Genders
ID00358943

Gaucher Disease Registry Protocol

Led by Genzyme, a Sanofi Company · Updated on 2026-04-14

12000

Participants Needed

318

Research Sites

N/A

Total Duration

On this page

AI-Summary

What this Trial Is About

Researchers are tracking the natural history and clinical outcomes of patients with Gaucher disease through the ICGG Gaucher Registry, an international, multi-center observational program. This registry does not involve any experimental treatments, but collects information to better understand the variability, progression, and identification of Gaucher disease, aiming to improve patient care and therapeutic guidance. It also evaluates the long-term use of treatments like imiglucerase and eliglustat. The study includes two groups: patients with Gaucher disease who receive routine clinical assessments and standard care as determined by their physicians, and a Pregnancy Sub-registry for women with Gaucher disease who are pregnant or have been pregnant. The Pregnancy Sub-registry collects information on pregnancy outcomes, complications, and infant growth up to 36 months postpartum, regardless of whether the women receive disease-specific therapy. Participants undergo clinical assessments and receive care according to their treating physician's decisions. Data collected includes medical history, pregnancy and birth details for the sub-registry, and patient outcomes over time. The primary goals are to provide recommendations for monitoring Gaucher disease patients, report outcomes to optimize care, and track pregnancy and infant growth outcomes. This ongoing registry allows long-term follow-up without experimental interventions.

CONDITIONS

Brief Title

International Collaborative Gaucher Group (ICGG) Gaucher Disease Registry & Pregnancy Sub-registry

Who Can Participate

All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • All patients with a confirmed diagnosis of Gaucher disease, defined by documented b2-glucocerebrosidase deficiency or gene mutation, are eligible.
  • Patients must provide appropriate authorization to participate.
  • For the Pregnancy Sub-registry, patients must be enrolled in the ICGG Gaucher Registry.
  • Pregnant women or those who have been pregnant with medical documentation are eligible for the Sub-registry.
  • Patients must provide signed informed consent and authorization forms before data collection for the Sub-registry.
Not Eligible

You will not qualify if you...

  • There are no exclusion criteria for participation in the ICGG Gaucher Registry and Pregnancy Sub-registry.

AI-Screening

AI-Powered Screening

Complete this quick 3-step screening to check your eligibility

1
2
3
+1

Your Study Journey

Screening

Duration - 2 to 4 weeks

Participants are screened for eligibility to participate in the trial.

1 visit (in-person)

Long-term Monitoring

Duration - Up to 42 years

Participants with Gaucher disease are observed during routine clinical care to track health outcomes over time.

Visits as per routine healthcare schedule

Trial Site Locations

Total: 318 locations

1

Phoenix Children's Hospital- Site Number : 840003

Phoenix, Arizona, United States, 85016

Actively Recruiting

2

University of Arizona- Site Number : 840015

Tucson, Arizona, United States, 85724

Actively Recruiting

3

Arkansas Children's Hospital- Site Number : 840109

Little Rock, Arkansas, United States, 72202

Actively Recruiting

4

University of Arkansas for Medical Sciences- Site Number : 840113

Little Rock, Arkansas, United States, 72205

Actively Recruiting

5

Tower Hematology Oncology Medical Group- Site Number : 840056

Beverly Hills, California, United States, 90211

Actively Recruiting

6

University of California at Irvine- Site Number : 840036

Irvine, California, United States, 92617

Actively Recruiting

7

Southern California Permanente Medical Group- Site Number : 840108

Los Angeles, California, United States, 90027

Actively Recruiting

8

USC Health Sciences Center Dept of Genetics- Site Number : 840082

Los Angeles, California, United States, 90033

Completed

9

Children's Hospital of Orange County- Site Number : 840074

Orange, California, United States, 92868

Actively Recruiting

10

UC Davis MIND Institute- Site Number : 840010

Sacramento, California, United States, 95817

Actively Recruiting

11

Kaiser Permanente Sacramento Medical Center- Site Number : 840042

Sacramento, California, United States, 95825

Completed

12

University of California at San Diego- Site Number : 840007

San Diego, California, United States, 92093

Completed

13

University of California San Francisco - Parnassus Campus- Site Number : 840051

San Francisco, California, United States, 94143

Actively Recruiting

14

Stanford University Medical Center- Site Number : 840022

Stanford, California, United States, 94305

Actively Recruiting

15

Yale University School of Medicine- Site Number : 840047

New Haven, Connecticut, United States, 06510

Actively Recruiting

16

Children's National Medical Center - Washington- Site Number : 840067

Washington D.C., District of Columbia, United States, 20010

Actively Recruiting

17

Investigational Site Number : 250012

Washington D.C., District of Columbia, United States, 20037-3201

Actively Recruiting

18

University Hematology Oncology- Site Number : 840075

Coral Springs, Florida, United States, 33065

Actively Recruiting

19

University of Florida Pediatrics Genetics- Site Number : 840121

Jacksonville, Florida, United States, 32207

Actively Recruiting

20

The Atwal Clinic- Site Number : 840112

Jacksonville, Florida, United States, 32216

Completed

21

University Of Miami SOM- Site Number : 840006

Miami, Florida, United States, 33136

Actively Recruiting

22

University of Florida-Genetics- Site Number : 840096

Tampa, Florida, United States, 33606

Actively Recruiting

23

Pediatric Endocrine Associates- Site Number : 840017

Tampa, Florida, United States, 33612

Completed

24

Emory University School of Medicine- Human Genetics- Site Number : 840060

Decatur, Georgia, United States, 30033

Actively Recruiting

25

University of Colorado at Denver Genetics- Site Number : 840068

Aurora, Illinois, United States, 80045

Actively Recruiting

26

Ann & Robert H. Lurie Children's Hospital of Chicago- Site Number : 840011

Chicago, Illinois, United States, 60611

Actively Recruiting

27

Ann & Robert H. Lurie Children's Hospital of Chicago- Site Number : 840013

Chicago, Illinois, United States, 60611

Actively Recruiting

28

Rush University Medical Center Genetics- Site Number : 840079

Chicago, Illinois, United States, 60612

Actively Recruiting

29

Indianapolis University School of Medicine- Site Number : 840027

Indianapolis, Indiana, United States, 46202

Actively Recruiting

30

University of Iowa- Site Number : 840032

Iowa City, Iowa, United States, 52242

Actively Recruiting

31

University of Louisville - Health Sciences Center- Site Number : 840030

Louisville, Kentucky, United States, 40202

Completed

32

Tulane University School of Medicine- Site Number : 840001

New Orleans, Louisiana, United States, 70112

Completed

33

Maine Medical Partners Pediatric Specialty Care- Site Number : 840064

Portland, Maine, United States, 04102

Actively Recruiting

34

John Hopkins- Site Number : 840044

Baltimore, Maryland, United States, 21205

Completed

35

Massachusetts General Hospital-Genetics- Site Number : 840062

Boston, Massachusetts, United States, 02114

Actively Recruiting

36

Boston Children's Hospital - PIN- Site Number : 840092

Boston, Massachusetts, United States, 02115

Actively Recruiting

37

University of Michigan Pediatrics- Site Number : 840107

Ann Arbor, Michigan, United States, 48109

Actively Recruiting

38

Children's Hospital of Michigan- Site Number : 840066

Detroit, Michigan, United States, 48201

Actively Recruiting

39

Spectrum for Health- Site Number : 840019

Grand Rapids, Michigan, United States, 49503

Completed

40

Infusion Associates - Grand Rapids- Site Number : 840050

Grand Rapids, Michigan, United States, 49525

Completed

41

Children's Hospitals and Clinics of Minnesota- Site Number : 840046

Minneapolis, Minnesota, United States, 55404

Actively Recruiting

42

Children's Hospitals and Clinics of Minnesota- Site Number : 840114

Minneapolis, Minnesota, United States, 55404

Actively Recruiting

43

University of Minnesota Medical Center Pediatrics- Site Number : 840076

Minneapolis, Minnesota, United States, 55455

Actively Recruiting

44

University of Missouri Health System Department of Genetics- Site Number : 840031

Columbia, Missouri, United States, 65212

Actively Recruiting

45

Children's Mercy Adelle Hall Campus- Site Number : 840063

Kansas City, Missouri, United States, 64108

Completed

46

Washington University- Site Number : 840100

St Louis, Missouri, United States, 63110

Actively Recruiting

47

University of Nebraska Medical Center- Site Number : 840084

Omaha, Nebraska, United States, 68198

Actively Recruiting

48

Children's Specialty Center - Las Vegas- Site Number : 840008

Las Vegas, Nevada, United States, 89109

Actively Recruiting

49

Cooper Health Center- Site Number : 840098

Camden, New Jersey, United States, 08103

Terminated

50

Joseph M. Sanzari Children's Hospital- Site Number : 840101

Hackensack, New Jersey, United States, 07601

Actively Recruiting

51

Atlantic Health System- Site Number : 840099

Morristown, New Jersey, United States, 07962

Actively Recruiting

52

Saint Peter's University Hospital - New Brunswick- Site Number : 840016

New Brunswick, New Jersey, United States, 08901

Actively Recruiting

53

St. Joseph's Children's Hospital- Site Number : 840057

Paterson, New Jersey, United States, 07503

Actively Recruiting

54

Northwell Health - Site Number : 840102

Manhasset, New York, United States, 11030

Actively Recruiting

55

New York University School Of Medicine- Site Number : 840040

New York, New York, United States, 10016

Actively Recruiting

56

Metropolitan Hospital Center- Site Number : 840110

New York, New York, United States, 10029

Actively Recruiting

57

Mt. Sinai School of Medicine- Site Number : 840005

New York, New York, United States, 10029

Actively Recruiting

58

Columbia University Irving Medical Center- Site Number : 840125

New York, New York, United States, 10032

Actively Recruiting

59

University of Rochester Medical Center- Site Number : 840105

Rochester, New York, United States, 14642

Actively Recruiting

60

State University of New York- Site Number : 840052

Syracuse, New York, United States, 13210

Actively Recruiting

61

New York Medical College- Site Number : 840039

Valhalla, New York, United States, 10595

Actively Recruiting

62

Carolinas Medical Center Hospital- Site Number : 840065

Charlotte, North Carolina, United States, 28232

Actively Recruiting

63

Duke University Medical Center Genetics Dept- Site Number : 840037

Durham, North Carolina, United States, 27710

Actively Recruiting

64

Cincinnati Children's Hospital Medical Center- Site Number : 840026

Cincinnati, Ohio, United States, 45229

Actively Recruiting

65

University Hospitals Cleveland Medical Center- Site Number : 840119

Cleveland, Ohio, United States, 44106

Actively Recruiting

66

Cleveland Clinic - Cleveland- Site Number : 840048

Cleveland, Ohio, United States, 44195

Actively Recruiting

67

Nationwide Children's Hospital- Site Number : 840091

Columbus, Ohio, United States, 43205

Actively Recruiting

68

LSD Data Registry Site LLC- Site Number : 840094

Dublin, Ohio, United States, 43017

Actively Recruiting

69

Oregon Health & Science University (OHSU)- Site Number : 840080

Portland, Oregon, United States, 97239

Actively Recruiting

70

Penn State Health Milton South Hershey Medical Center- Site Number : 840126

Hershey, Pennsylvania, United States, 17033

Actively Recruiting

71

Children's Hospital of Philadelphia HUP Medical Genetics- Site Number : 840089

Philadelphia, Pennsylvania, United States, 19104

Actively Recruiting

72

Children's Hospital of Philadelphia- Site Number : 840034

Philadelphia, Pennsylvania, United States, 19104

Actively Recruiting

73

UPMC Children's Hospital of Pittsburgh- Site Number : 840023

Pittsburgh, Pennsylvania, United States, 15224

Actively Recruiting

74

Rhode Island Hospital Genetics- Site Number : 840053

Providence, Rhode Island, United States, 02903

Completed

75

Greenwood Genetic Center - Greenville- Site Number : 840055

Greenville, South Carolina, United States, 29605

Actively Recruiting

76

Vanderbilt University Medical Center Diagnostic Lab- Site Number : 840049

Nashville, Tennessee, United States, 37212

Actively Recruiting

77

Baylor Institute of Metabolic Disease- Site Number : 840058

Dallas, Texas, United States, 75226

Completed

78

Cook Children's Health Care System- Site Number : 840024

Fort Worth, Texas, United States, 76104

Actively Recruiting

79

University of Utah Department of Medical Genetics- Site Number : 840043

Salt Lake City, Utah, United States, 84132

Actively Recruiting

80

University of Virginia School of Medicine-Pediatrics- Site Number : 840078

Charlottesville, Virginia, United States, 22908

Completed

81

O & O Alpan- Site Number : 840025

Fairfax, Virginia, United States, 22030

Actively Recruiting

82

Children's Hospital of The King's Daughters- Site Number : 840072

Norfolk, Virginia, United States, 23507

Completed

83

Seattle Children's Hospital- Site Number : 840028

Seattle, Washington, United States, 98105

Actively Recruiting

84

University Of Washington Medical Center- Site Number : 840059

Seattle, Washington, United States, 98195

Actively Recruiting

85

Mary Bridge Children's Hospital & Health Center- Site Number : 840115

Tacoma, Washington, United States, 98405

Actively Recruiting

86

Children's Hospital of Wisconsin-Pediatrics- Site Number : 840054

Milwaukee, Wisconsin, United States, 53226

Actively Recruiting

87

Investigational Site Number : 032003

La Plata, Buenos Aires, Argentina, 1900

Completed

88

Investigational Site Number : 150661

Munro, Buenos Aires, Argentina, 1605

Actively Recruiting

89

Investigational Site Number : 151085

Sarandí, Buenos Aires, Argentina, 1123

Completed

90

Investigational Site Number : 604002

Buenos Aires, Argentina, 1107

Actively Recruiting

91

Investigational Site Number : 032012

Buenos Aires, Argentina, 1425

Completed

92

Investigational Site Number : 032014

Buenos Aires, Argentina, 1428

Actively Recruiting

93

Investigational Site Number : 154176

Corrientes, Argentina, 3400

Completed

94

Investigational Site Number : 032011

Córdoba, Argentina, 5004

Completed

95

Investigational Site Number : 151431

Sydney, New South Wales, Australia, 2050

Terminated

96

Investigational Site Number : 151069

Westmead, New South Wales, Australia, 2145

Actively Recruiting

97

Investigational Site Number : 151010

Brisbane, Queensland, Australia, 4029

Completed

98

Investigational Site Number : 151491

Townsville, Queensland, Australia, 4814

Completed

99

Investigational Site Number : 151002

Adelaide, South Australia, Australia, 5000

Actively Recruiting

100

Investigational Site Number : 151725

Hobart, Tasmania, Australia, 7000

Actively Recruiting

101

Investigational Site Number : 151011

Clayton, Victoria, Australia, 3168

Actively Recruiting

102

Investigational Site Number : 151008

Parkville, Victoria, Australia, 3050

Actively Recruiting

103

Investigational Site Number : 151015

Murdoch, Western Australia, Australia, 6150

Actively Recruiting

104

Investigational Site Number : 150722

Antwerp, Belgium, 2020

Actively Recruiting

105

Investigational Site Number : 151156

Bruges, Belgium, 8000

Terminated

106

Investigational Site Number : 151796

Brussels, Belgium, 1020

Actively Recruiting

107

Investigational Site Number : 150944

Brussels, Belgium, 1090

Actively Recruiting

108

Investigational Site Number : 152345

Brussels, Belgium, 1090

Actively Recruiting

109

Investigational Site Number : 150517

Brussels, Belgium, 1200

Actively Recruiting

110

Investigational Site Number : 154285

Edegem, Belgium, 2650

Actively Recruiting

111

Investigational Site Number : 151134

Ghent, Belgium, 9000

Completed

112

Investigational Site Number : 151668

Leuven, Belgium, 3000

Actively Recruiting

113

Universidade Estadual de Ciencias da Saude de Alagoas- Site Number : 076005

Maceió, Alagoas, Brazil, 57010-300

Actively Recruiting

114

Hospital de Clinicas da Universidade Federal do Parana- Site Number : 076010

Curitiba, Paraná, Brazil, 80060-900

Actively Recruiting

115

Hospital de Clinicas de Porto Alegre- Site Number : 076007

Porto Alegre, Rio Grande do Sul, Brazil, 90035-903

Actively Recruiting

116

Hospital e Maternidade Celso Pierro - PUC-Campinas- Site Number : 076012

Campinas, São Paulo, Brazil, 13034-685

Actively Recruiting

117

Hospital das Clinicas da Faculdade de Medicina de Ribeirao Preto- Site Number : 076001

Ribeirão Preto, São Paulo, Brazil, 14049-900

Actively Recruiting

118

HEMORIO- Site Number : 076006

Rio de Janeiro, Brazil, 20211-030

Actively Recruiting

119

Instituto de Genética e Erros Inatos do Metabolismo- Site Number : 076002

São Paulo, Brazil, 04020-041

Actively Recruiting

120

Hospital das Clinicas da Faculdade de Medicina da Universidade de Sao Paulo- Site Number : 076008

São Paulo, Brazil, 05403-000

Completed

121

Investigational Site Number : 100001

Sofia, Bulgaria, 1680

Actively Recruiting

122

Investigational Site Number : 151164

Sofia, Bulgaria

Actively Recruiting

123

Investigational Site Number : 124014

Calgary, Alberta, Canada, T2E 7Z4

Actively Recruiting

124

Investigational Site Number : 124002

Edmonton, Alberta, Canada, T6G 2B7

Actively Recruiting

125

Investigational Site Number : 124010

Vancouver, British Columbia, Canada, V5Z 1M9

Actively Recruiting

126

Investigational Site Number : 124011

Vancouver, British Columbia, Canada, V6H 3N1

Completed

127

Investigational Site Number : 124019

Winnipeg, Manitoba, Canada, R3A 1R9

Actively Recruiting

128

Investigational Site Number : 124022

Moncton, New Brunswick, Canada, E1C 2Z3

Actively Recruiting

129

Investigational Site Number : 124024

Kingston, Ontario, Canada, K7L 2V7

Actively Recruiting

130

Investigational Site Number : 124005

Kingston, Ontario, Canada, K7L 4X3

Terminated

131

Investigational Site Number : 124021

London, Ontario, Canada, N6A 5A5

Actively Recruiting

132

Investigational Site Number : 124006

Toronto, Ontario, Canada, M5G 1X8

Actively Recruiting

133

Investigational Site Number : 124013

Toronto, Ontario, Canada, M5G1X5

Actively Recruiting

134

Investigational Site Number : 124001

Sherbrooke, Quebec, Canada, J1K 2R1

Actively Recruiting

135

Investigational Site Number : 1560001

Beijing, China, 100045

Actively Recruiting

136

Investigational Site Number : 156003

Beijing, China, 100730

Terminated

137

Investigational Site Number : 152357

Guangzhou, China, 510080

Terminated

138

Investigational Site Number : 1560002

Guangzhou, China, 510080

Actively Recruiting

139

Investigational Site Number : 152358

Hangzhou, China, 310003

Terminated

140

Investigational Site Number : 152359

Hangzhou, China

Terminated

141

Investigational Site Number : 157252

Nanjing, China, 210008

Actively Recruiting

142

Investigational Site Number : 150899

Shanghai, China, 200040

Terminated

143

Investigational Site Number : 151787

Shanghai, China, 200040

Terminated

144

Investigational Site Number : 152356

Shanghai, China, 200092

Terminated

145

Investigational Site Number : 170004

Bogotá, Colombia

Actively Recruiting

146

Investigational Site Number : 1910001

Zagreb, Croatia, 10000

Actively Recruiting

147

Investigational Site Number : 1910002

Zagreb, Croatia, 10000

Actively Recruiting

148

Investigational Site Number : 1910003

Zagreb, Croatia, 10000

Actively Recruiting

149

Investigational Site Number : 150809

Prague, Czechia, 12808

Actively Recruiting

150

Investigational Site Number : 151229

Copenhagen, Denmark, 2100

Actively Recruiting

151

Investigational Site Number : 2140001

Santo Domingo, Dominican Republic, 10101

Actively Recruiting

152

Investigational Site Number : 818007

Al Mansurah, Egypt

Actively Recruiting

153

Investigational Site Number : 5748

Alexandria, Egypt

Actively Recruiting

154

Investigational Site Number : 9889

Ash Sharqiyah, Egypt

Actively Recruiting

155

Investigational Site Number : 9888

Asyut, Egypt

Actively Recruiting

156

Investigational Site Number : 8345

Cairo, Egypt, 11432

Actively Recruiting

157

Investigational Site Number : 9829

Cairo, Egypt, 11566

Actively Recruiting

158

Investigational Site Number : 9830

Cairo, Egypt

Actively Recruiting

159

Investigational Site Number : 250004

Besançon, France, 25000

Completed

160

Investigational Site Number : 250008

Bordeaux, France, 33000

Actively Recruiting

161

Investigational Site Number : 250005

Brest, France, 29200

Actively Recruiting

162

Investigational Site Number : 250014

Bron, France, 69677

Actively Recruiting

163

Investigational Site Number : 250002

Caen, France, 14033

Completed

164

Investigational Site Number : 250001

Clichy, France, 92110

Actively Recruiting

165

Investigational Site Number : 250003

Garches, France, 92380

Actively Recruiting

166

Investigational Site Number : 250009

Lyon, France, 69003

Completed

167

Investigational Site Number : 250011

Marseille, France, 13008

Terminated

168

Investigational Site Number : 2500013

Montpellier, France, 34295

Actively Recruiting

169

Investigational Site Number : 250006

Nantes, France, 44093

Actively Recruiting

170

Investigational Site Number : 250007

Paris, France, 75013

Terminated

171

Investigational Site Number : 250010

Paris, France, 75015

Actively Recruiting

172

Investigational Site Number : 250018

Strasbourg, France, 67000

Actively Recruiting

173

Investigational Site Number : 250017

Toulouse, France, 31027

Completed

174

Investigational Site Number : 250016

Tours, France, 37032

Actively Recruiting

175

Investigational Site Number : 151686

Berlin, Germany, 13353

Actively Recruiting

176

Investigational Site Number : 150783

Düsseldorf, Germany, 40225

Actively Recruiting

177

Investigational Site Number : 154150

Giessen, Germany, 35392

Actively Recruiting

178

Investigational Site Number : 151369

Hamburg, Germany, 20099

Actively Recruiting

179

Investigational Site Number : 151368

Hamburg, Germany, 20246

Completed

180

Investigational Site Number : 150031

Mainz, Germany, 55131

Actively Recruiting

181

Investigational Site Number : 150432

Oberhausen, Germany, 46045

Completed

182

Investigational Site Number : 300002

Athens, Greece, 115 27

Actively Recruiting

183

Investigational Site Number : 300004

Athens, Greece

Actively Recruiting

184

Investigational Site Number : 300003

Pátrai, Greece, 26500

Actively Recruiting

185

Investigational Site Number : 300001

Thessaloniki, Greece, 546 42

Actively Recruiting

186

Investigational Site Number : 344001

Kowloon, Hong Kong

Actively Recruiting

187

Investigational Site Number : 3480006

Budapest, Hungary, H-1097

Actively Recruiting

188

Investigational Site Number : 3480003

Létavértes, Hungary, 4281

Actively Recruiting

189

Investigational Site Number : 3480007

Nyiregyháza, Hungary, 4400

Actively Recruiting

190

Investigational Site Number : 3480008

Székesfehérvár, Hungary, 8000

Actively Recruiting

191

Investigational Site Number : 356003

Ahmedabad, India, 380015

Actively Recruiting

192

Investigational Site Number : 356004

Jaipur, India, 302015

Completed

193

Investigational Site Number : 356001

Kolkata, India, 700017

Actively Recruiting

194

Investigational Site Number : 356005

Mumbai, India, 400025

Actively Recruiting

195

Investigational Site Number : 3560006

Secunderabad, India, 500026

Actively Recruiting

196

Investigational Site Number : 356002

Vellore, India, 632004

Actively Recruiting

197

Investigational Site Number : 360001

Jakarta, Indonesia

Actively Recruiting

198

Investigational Site Number : 3760003

Haifa, Israel

Actively Recruiting

199

Investigational Site Number : 3760001

Jerusalem, Israel

Actively Recruiting

200

Investigational Site Number : 3760002

Petah Tikva, Israel

Actively Recruiting

201

Investigational Site Number : 380009

Florence, Firenze, Italy, 50134

Completed

202

Investigational Site Number : 380004

Milan, Milano, Italy, 20122

Actively Recruiting

203

Investigational Site Number : 380005

Baggiovara, Modena, Italy, 41126

Actively Recruiting

204

Investigational Site Number : 380002

Monza, Monza E Brianza, Italy, 20052

Actively Recruiting

205

Investigational Site Number : 380007

Rome, Roma, Italy, 00161

Actively Recruiting

206

Investigational Site Number : 380014

Sassari, Sardinia, Italy, 07100

Actively Recruiting

207

Investigational Site Number : 380008

Catania, Italy, 95100

Actively Recruiting

208

Investigational Site Number : 380006

Genova, Italy, 16147

Actively Recruiting

209

Investigational Site Number : 380011

Monza, Italy

Actively Recruiting

210

Investigational Site Number : 380010

Naples, Italy

Completed

211

Investigational Site Number : 380003

Padova, Italy, 35128

Actively Recruiting

212

Investigational Site Number : 380001

Udine, Italy, 33100

Actively Recruiting

213

Investigational Site Number : 153203

Yonago, Tottori, Japan, 683-8504

Completed

214

Investigational Site Number : 153217

Chiba, Japan, 266-0007

Actively Recruiting

215

Investigational Site Number : 153205

Osaka, Japan, 545-8586

Completed

216

Investigational Site Number : 153204

Tokyo, Japan, 157-8535

Actively Recruiting

217

Investigational Site Number : 4000001

Amman, Jordan, 261

Actively Recruiting

218

Investigational Site Number : 154225

Kuwait City, Kuwait

Completed

219

Investigational Site Number : 422001

Beirut, Lebanon, 166830

Actively Recruiting

220

Investigational Site Number : 4220004

Beirut, Lebanon

Actively Recruiting

221

Investigational Site Number : 154237

Vilnius, Lithuania, 08661

Actively Recruiting

222

Investigational Site Number : 458001

Kuala Lumpur, Malaysia, 50586

Actively Recruiting

223

Investigational Site Number : 458002

Kuala Lumpur, Malaysia, 59100

Actively Recruiting

224

Investigational Site Number : 150149

Amsterdam, Netherlands

Completed

225

Investigational Site Number : 151171

Amsterdam, Netherlands

Terminated

226

Investigational Site Number : 154264

Karachi, Pakistan

Actively Recruiting

227

Investigational Site Number : 154266

Lahore, Pakistan

Actively Recruiting

228

Investigational Site Number : 604001

Arequipa, Peru

Completed

229

Investigational Site Number : 608001

City of Muntinlupa, Philippines, 1000

Actively Recruiting

230

Investigational Site Number : 150575

Warsaw, Poland, 04-730

Actively Recruiting

231

Investigational Site Number : 620003

Coimbra, Portugal, 3040-081

Actively Recruiting

232

Investigational Site Number : 620004

Lisbon, Portugal, 1649-035

Actively Recruiting

233

Investigational Site Number : 620009

Ponta Delgada, Portugal, 9500-370

Actively Recruiting

234

Investigational Site Number : 151188

Cluj-Napoca, Romania, 400006

Completed

235

Investigational Site Number : 642001

Cluj-Napoca, Romania, 400006

Actively Recruiting

236

Investigational Site Number : 642002

Cluj-Napoca, Romania, 400006

Actively Recruiting

237

Investigational Site Number : 643001

Moscow, Russia

Actively Recruiting

238

Investigational Site Number : 643002

Saint Petersburg, Russia

Actively Recruiting

239

Investigational Site Number : 682002

Al-Hasa, Saudi Arabia, 31982

Actively Recruiting

240

Investigational Site Number : 682003

Jeddah, Saudi Arabia

Completed

241

Investigational Site Number : 682004

Mecca, Saudi Arabia, 24246

Actively Recruiting

242

Investigational Site Number : 688001

Belgrade, Serbia, 11000

Actively Recruiting

243

Investigational Site Number : 688002

Belgrade, Serbia, 11000

Actively Recruiting

244

Investigational Site Number : 688005

Belgrade, Serbia, 11000

Actively Recruiting

245

Investigational Site Number : 688003

Belgrade, Serbia, 11080

Actively Recruiting

246

Investigational Site Number : 688004

Niš, Serbia, 18000

Actively Recruiting

247

Investigational Site Number : 702001

Singapore, Singapore, 229899

Actively Recruiting

248

Investigational Site Number : 703001

Bratislava, Slovakia, 833 40

Completed

249

Investigational Site Number : 154138

Durban, South Africa, 4001

Actively Recruiting

250

Investigational Site Number : 150346

Johannesburg, South Africa, 2057

Actively Recruiting

251

Investigational Site Number : 710-003

Johannesburg, South Africa

Actively Recruiting

252

Investigational Site Number : 154208

Yangsan, Gyeongsangnam-do, South Korea, 50612

Terminated

253

Investigational Site Number : 153180

Seoul, Seoul-teukbyeolsi, South Korea, 03080

Actively Recruiting

254

Investigational Site Number : 153196

Seoul, Seoul-teukbyeolsi, South Korea, 03080

Actively Recruiting

255

Investigational Site Number : 151149

Seoul, Seoul-teukbyeolsi, South Korea, 05505

Actively Recruiting

256

Investigational Site Number : 153222

Seoul, Seoul-teukbyeolsi, South Korea, 06973

Actively Recruiting

257

Investigational Site Number : 153191

Daejeon, South Korea

Actively Recruiting

258

Investigational Site Number : 153212

Seoul, South Korea

Actively Recruiting

259

Investigational Site Number : 154146

A Coruña, A Coruña [La Coruña], Spain, 15006

Completed

260

Investigational Site Number : 153237

Barcelona, Barcelona [Barcelona], Spain, 08035

Actively Recruiting

261

Investigational Site Number : 154147

Barcelona, Barcelona [Barcelona], Spain, 08035

Actively Recruiting

262

Investigational Site Number : 154119

Alcorcón, Madrid, Spain, 28922

Actively Recruiting

263

Investigational Site Number : 153213

Vigo, Pontevedra [Pontevedra], Spain, 36200

Actively Recruiting

264

Investigational Site Number : 153215

Seville, Sevilla, Spain, 41013

Actively Recruiting

265

Investigational Site Number : 153219

Seville, Sevilla, Spain, 41013

Actively Recruiting

266

Investigational Site Number : 154163

Madrid, Spain, 28007

Actively Recruiting

267

Investigational Site Number : 154236

Madrid, Spain, 28007

Actively Recruiting

268

Investigational Site Number : 151524

Madrid, Spain, 28034

Actively Recruiting

269

Investigational Site Number : 153251

Madrid, Spain, 28040

Terminated

270

Investigational Site Number : 154199

Madrid, Spain, 28041

Actively Recruiting

271

Investigational Site Number : 154160

Madrid, Spain, 28046

Actively Recruiting

272

Investigational Site Number : 154145

Sabadell, Spain, 08208

Actively Recruiting

273

Investigational Site Number : 154205

Valencia, Spain, 46026

Actively Recruiting

274

Investigational Site Number : 154238

Zaragoza, Spain, 50006

Actively Recruiting

275

Investigational Site Number : 153216

Zaragoza, Spain, 50009

Actively Recruiting

276

Investigational Site Number : 154095

Borås, Sweden, 501 82

Completed

277

Investigational Site Number : 151726

Malmö, Sweden, 205 02

Active, Not Recruiting

278

Investigational Site Number : 154092

Norrköping, Sweden, 601 82

Actively Recruiting

279

Investigational Site Number : 157237

Aarau, Switzerland, 5001

Actively Recruiting

280

Investigational Site Number : 157045

Bern, Switzerland, 3010

Actively Recruiting

281

Investigational Site Number : 157244

Lausanne, Switzerland, 1011

Actively Recruiting

282

Investigational Site Number : 157241

Zurich, Switzerland, 8057

Actively Recruiting

283

Investigational Site Number : 151500

Chiayi City, Taiwan

Actively Recruiting

284

Investigational Site Number : 154093

Chiayi City, Taiwan

Actively Recruiting

285

Investigational Site Number : 152152

Hualien City, Taiwan, 970

Actively Recruiting

286

Investigational Site Number : 152244

Kaohsiung City, Taiwan, 807

Completed

287

Investigational Site Number : 152246

Kaohsiung City, Taiwan, 833

Actively Recruiting

288

Investigational Site Number : 151534

New Taipei City, Taiwan, 231

Actively Recruiting

289

Investigational Site Number : 151179

Taichung, Taiwan, 404

Actively Recruiting

290

Investigational Site Number : 151181

Taichung, Taiwan, 411

Actively Recruiting

291

Investigational Site Number : 153248

Tainan, Taiwan, 704

Actively Recruiting

292

Investigational Site Number : 152153

Tainan, Taiwan, 710

Actively Recruiting

293

Investigational Site Number : 151182

Taipei, Taiwan, 100

Actively Recruiting

294

Investigational Site Number : 152321

Taipei, Taiwan, 104

Actively Recruiting

295

Investigational Site Number : 152226

Taipei, Taiwan, 112

Actively Recruiting

296

Investigational Site Number : 153158

Tao Yuan County, Taiwan, 333

Actively Recruiting

297

Investigational Site Number : 764003

Bangkok, Thailand, 10400

Actively Recruiting

298

Investigational Site Number : 764004

Bangkok, Thailand, 10700

Actively Recruiting

299

Investigational Site Number : 764001

Bangkok, Thailand

Actively Recruiting

300

Investigational Site Number : 764005

Khon Kaen, Thailand, 40002

Actively Recruiting

301

Investigational Site Number : 792006

Adana, Turkey (Türkiye), 01330

Actively Recruiting

302

Investigational Site Number : 792002

Ankara, Turkey (Türkiye), 06230

Completed

303

Investigational Site Number : 792005

Ankara, Turkey (Türkiye), 06620

Actively Recruiting

304

Investigational Site Number : 792001

Ankara, Turkey (Türkiye)

Actively Recruiting

305

Investigational Site Number : 792004

Istanbul, Turkey (Türkiye)

Actively Recruiting

306

Investigational Site Number : 792007

Izmir, Turkey (Türkiye)

Actively Recruiting

307

Investigational Site Number : 792003

Malatya, Turkey (Türkiye)

Completed

308

Investigational Site Number : 7840001

Dubai, United Arab Emirates

Actively Recruiting

309

Investigational Site Number : 151340

Cambridge, Cambridgeshire, United Kingdom, CB2 2QQ

Actively Recruiting

310

Investigational Site Number : 152287

Birmingham, England, United Kingdom, B15 2TH

Actively Recruiting

311

Investigational Site Number : 154240

Birmingham, England, United Kingdom, B4 6NH

Actively Recruiting

312

Investigational Site Number : 151123

London, England, United Kingdom, NW3 2QG

Actively Recruiting

313

Investigational Site Number : 151646

London, London, City of, United Kingdom, WC1N 3BG

Actively Recruiting

314

Investigational Site Number : 150303

London, London, City of, United Kingdom, WC1N 3JH

Actively Recruiting

315

Investigational Site Number : 152361

Salford, Manchester, United Kingdom, M6 8HD

Actively Recruiting

316

Investigational Site Number : 150455

Manchester, United Kingdom, M13 9WL

Actively Recruiting

317

Investigational Site Number : 154212

Hanoi, Vietnam

Actively Recruiting

318

Investigational Site Number : 704002

Ho Chi Minh City, Vietnam, 70000

Actively Recruiting

Loading map...

Research Team

T

Trial Transparency email recommended (Toll free number for US & Canada)

I

ICGG Gaucher Registry HelpLine

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

2

Similar Trials

An Open-label, Dose-Finding, Phase 1/2 Study to Evaluate the...

Gaucher Disease

Actively Recruiting

9 locations

A Long-term Follow-up Study of Gaucher Disease

Gaucher Disease

Actively Recruiting

1 location

Drug Discovery for Parkinson's With Mutations in the GBA Gen...

Parkinson Disease

Actively Recruiting

1 location

Frequently Asked Questions

Have more questions? Get in touch with our team for quick support

Not the Right Trial for You?

Explore thousands of other clinical trials that might be a better match.
Sign up to get personalized trial recommendations delivered to your inbox.

Already have an account? Log in here

Published Research Related To This Trial

Long-term hematological, visceral, and growth outcomes in children with Gaucher disease type 3 treated with imiglucerase in the International Collaborative Gaucher Group Gaucher Registry.

Amal El-Beshlawy, Anna Tylki-Szymanska, Ashok Vellodi...

https://pubmed.ncbi.nlm.nih.gov/28040394

Transformation in pretreatment manifestations of Gaucher disease type 1 during two decades of alglucerase/imiglucerase enzyme replacement therapy in the International Collaborative Gaucher Group (ICGG) Gaucher Registry.

Pramod K Mistry, Julie L Batista, Hans C Andersson...

https://pubmed.ncbi.nlm.nih.gov/28569047

Cancer risk and gammopathies in 2123 adults with Gaucher disease type 1 in the International Gaucher Group Gaucher Registry.

Barry E Rosenbloom, Maria Domenica Cappellini, Neal J Weinreb...

https://pubmed.ncbi.nlm.nih.gov/36054609

Gaucher disease type 1 patients from the ICGG Gaucher Registry sustain initial clinical improvements during twenty years of imiglucerase treatment.

Neal J Weinreb, José Simon Camelo, Joel Charrow...

https://pubmed.ncbi.nlm.nih.gov/33485799