Actively Recruiting

All Genders
NCT00358943

International Collaborative Gaucher Group (ICGG) Gaucher Disease Registry & Pregnancy Sub-registry

Led by Genzyme, a Sanofi Company · Updated on 2026-04-14

12000

Participants Needed

318

Research Sites

2235 weeks

Total Duration

On this page

AI-Summary

What this Trial Is About

The ICGG Gaucher Registry is an ongoing, international multi-center, strictly observational program that tracks the routine clinical outcomes for patients with Gaucher disease, irrespective of treatment status. No experimental intervention is involved; patients in the Registry undergo clinical assessments and receive care as determined by the patient's treating physician. The objectives of the Registry are: * To enhance understanding of the variability, progression, identification, and natural history of Gaucher disease, with the ultimate goal of better guiding and assessing therapeutic intervention. * To assist the Gaucher medical community with the development of recommendations for monitoring patients, and to provide reports on patient outcomes, to optimize patient care. * To characterize the Gaucher disease population. * To evaluate the long-term effectiveness of imiglucerase and of eliglustat. Gaucher Pregnancy Sub-registry: The primary objective of this Sub-registry is to track pregnancy outcomes, including complications and infant growth, in all women with Gaucher disease during pregnancy, regardless of whether they receive disease-specific therapy. No experimental intervention is given; thus a patient will undergo clinical assessments and receive standard of care treatment as determined by the patient's physician.If a patient consents to this Sub-registry, information about the patient's medical and obstetric history, pregnancy, and birth will be collected, and, if a patient consents to data collection for her infant, data on infant growth through month 36 postpartum will be collected.

CONDITIONS

Official Title

International Collaborative Gaucher Group (ICGG) Gaucher Disease Registry & Pregnancy Sub-registry

Who Can Participate

All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Confirmed diagnosis of Gaucher disease by documented beta-glucocerebrosidase deficiency and/or gene mutation
  • Appropriate patient authorization obtained
  • For Pregnancy Sub-registry: enrolled in the ICGG Gaucher Registry
  • Pregnant or have been pregnant with appropriate medical documentation
  • Signed informed consent and authorization form(s) provided prior to data collection
Not Eligible

You will not qualify if you...

  • No exclusion criteria for participation in the ICGG Gaucher Registry and Sub-registry

AI-Screening

AI-Powered Screening

Complete this quick 3-step screening to check your eligibility

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Trial Site Locations

Total: 318 locations

1

Phoenix Children's Hospital- Site Number : 840003

Phoenix, Arizona, United States, 85016

Actively Recruiting

2

University of Arizona- Site Number : 840015

Tucson, Arizona, United States, 85724

Actively Recruiting

3

Arkansas Children's Hospital- Site Number : 840109

Little Rock, Arkansas, United States, 72202

Actively Recruiting

4

University of Arkansas for Medical Sciences- Site Number : 840113

Little Rock, Arkansas, United States, 72205

Actively Recruiting

5

Tower Hematology Oncology Medical Group- Site Number : 840056

Beverly Hills, California, United States, 90211

Actively Recruiting

6

University of California at Irvine- Site Number : 840036

Irvine, California, United States, 92617

Actively Recruiting

7

Southern California Permanente Medical Group- Site Number : 840108

Los Angeles, California, United States, 90027

Actively Recruiting

8

USC Health Sciences Center Dept of Genetics- Site Number : 840082

Los Angeles, California, United States, 90033

Completed

9

Children's Hospital of Orange County- Site Number : 840074

Orange, California, United States, 92868

Actively Recruiting

10

UC Davis MIND Institute- Site Number : 840010

Sacramento, California, United States, 95817

Actively Recruiting

11

Kaiser Permanente Sacramento Medical Center- Site Number : 840042

Sacramento, California, United States, 95825

Completed

12

University of California at San Diego- Site Number : 840007

San Diego, California, United States, 92093

Completed

13

University of California San Francisco - Parnassus Campus- Site Number : 840051

San Francisco, California, United States, 94143

Actively Recruiting

14

Stanford University Medical Center- Site Number : 840022

Stanford, California, United States, 94305

Actively Recruiting

15

Yale University School of Medicine- Site Number : 840047

New Haven, Connecticut, United States, 06510

Actively Recruiting

16

Children's National Medical Center - Washington- Site Number : 840067

Washington D.C., District of Columbia, United States, 20010

Actively Recruiting

17

Investigational Site Number : 250012

Washington D.C., District of Columbia, United States, 20037-3201

Actively Recruiting

18

University Hematology Oncology- Site Number : 840075

Coral Springs, Florida, United States, 33065

Actively Recruiting

19

University of Florida Pediatrics Genetics- Site Number : 840121

Jacksonville, Florida, United States, 32207

Actively Recruiting

20

The Atwal Clinic- Site Number : 840112

Jacksonville, Florida, United States, 32216

Completed

21

University Of Miami SOM- Site Number : 840006

Miami, Florida, United States, 33136

Actively Recruiting

22

University of Florida-Genetics- Site Number : 840096

Tampa, Florida, United States, 33606

Actively Recruiting

23

Pediatric Endocrine Associates- Site Number : 840017

Tampa, Florida, United States, 33612

Completed

24

Emory University School of Medicine- Human Genetics- Site Number : 840060

Decatur, Georgia, United States, 30033

Actively Recruiting

25

University of Colorado at Denver Genetics- Site Number : 840068

Aurora, Illinois, United States, 80045

Actively Recruiting

26

Ann & Robert H. Lurie Children's Hospital of Chicago- Site Number : 840011

Chicago, Illinois, United States, 60611

Actively Recruiting

27

Ann & Robert H. Lurie Children's Hospital of Chicago- Site Number : 840013

Chicago, Illinois, United States, 60611

Actively Recruiting

28

Rush University Medical Center Genetics- Site Number : 840079

Chicago, Illinois, United States, 60612

Actively Recruiting

29

Indianapolis University School of Medicine- Site Number : 840027

Indianapolis, Indiana, United States, 46202

Actively Recruiting

30

University of Iowa- Site Number : 840032

Iowa City, Iowa, United States, 52242

Actively Recruiting

31

University of Louisville - Health Sciences Center- Site Number : 840030

Louisville, Kentucky, United States, 40202

Completed

32

Tulane University School of Medicine- Site Number : 840001

New Orleans, Louisiana, United States, 70112

Completed

33

Maine Medical Partners Pediatric Specialty Care- Site Number : 840064

Portland, Maine, United States, 04102

Actively Recruiting

34

John Hopkins- Site Number : 840044

Baltimore, Maryland, United States, 21205

Completed

35

Massachusetts General Hospital-Genetics- Site Number : 840062

Boston, Massachusetts, United States, 02114

Actively Recruiting

36

Boston Children's Hospital - PIN- Site Number : 840092

Boston, Massachusetts, United States, 02115

Actively Recruiting

37

University of Michigan Pediatrics- Site Number : 840107

Ann Arbor, Michigan, United States, 48109

Actively Recruiting

38

Children's Hospital of Michigan- Site Number : 840066

Detroit, Michigan, United States, 48201

Actively Recruiting

39

Spectrum for Health- Site Number : 840019

Grand Rapids, Michigan, United States, 49503

Completed

40

Infusion Associates - Grand Rapids- Site Number : 840050

Grand Rapids, Michigan, United States, 49525

Completed

41

Children's Hospitals and Clinics of Minnesota- Site Number : 840046

Minneapolis, Minnesota, United States, 55404

Actively Recruiting

42

Children's Hospitals and Clinics of Minnesota- Site Number : 840114

Minneapolis, Minnesota, United States, 55404

Actively Recruiting

43

University of Minnesota Medical Center Pediatrics- Site Number : 840076

Minneapolis, Minnesota, United States, 55455

Actively Recruiting

44

University of Missouri Health System Department of Genetics- Site Number : 840031

Columbia, Missouri, United States, 65212

Actively Recruiting

45

Children's Mercy Adelle Hall Campus- Site Number : 840063

Kansas City, Missouri, United States, 64108

Completed

46

Washington University- Site Number : 840100

St Louis, Missouri, United States, 63110

Actively Recruiting

47

University of Nebraska Medical Center- Site Number : 840084

Omaha, Nebraska, United States, 68198

Actively Recruiting

48

Children's Specialty Center - Las Vegas- Site Number : 840008

Las Vegas, Nevada, United States, 89109

Actively Recruiting

49

Cooper Health Center- Site Number : 840098

Camden, New Jersey, United States, 08103

Terminated

50

Joseph M. Sanzari Children's Hospital- Site Number : 840101

Hackensack, New Jersey, United States, 07601

Actively Recruiting

51

Atlantic Health System- Site Number : 840099

Morristown, New Jersey, United States, 07962

Actively Recruiting

52

Saint Peter's University Hospital - New Brunswick- Site Number : 840016

New Brunswick, New Jersey, United States, 08901

Actively Recruiting

53

St. Joseph's Children's Hospital- Site Number : 840057

Paterson, New Jersey, United States, 07503

Actively Recruiting

54

Northwell Health - Site Number : 840102

Manhasset, New York, United States, 11030

Actively Recruiting

55

New York University School Of Medicine- Site Number : 840040

New York, New York, United States, 10016

Actively Recruiting

56

Metropolitan Hospital Center- Site Number : 840110

New York, New York, United States, 10029

Actively Recruiting

57

Mt. Sinai School of Medicine- Site Number : 840005

New York, New York, United States, 10029

Actively Recruiting

58

Columbia University Irving Medical Center- Site Number : 840125

New York, New York, United States, 10032

Actively Recruiting

59

University of Rochester Medical Center- Site Number : 840105

Rochester, New York, United States, 14642

Actively Recruiting

60

State University of New York- Site Number : 840052

Syracuse, New York, United States, 13210

Actively Recruiting

61

New York Medical College- Site Number : 840039

Valhalla, New York, United States, 10595

Actively Recruiting

62

Carolinas Medical Center Hospital- Site Number : 840065

Charlotte, North Carolina, United States, 28232

Actively Recruiting

63

Duke University Medical Center Genetics Dept- Site Number : 840037

Durham, North Carolina, United States, 27710

Actively Recruiting

64

Cincinnati Children's Hospital Medical Center- Site Number : 840026

Cincinnati, Ohio, United States, 45229

Actively Recruiting

65

University Hospitals Cleveland Medical Center- Site Number : 840119

Cleveland, Ohio, United States, 44106

Actively Recruiting

66

Cleveland Clinic - Cleveland- Site Number : 840048

Cleveland, Ohio, United States, 44195

Actively Recruiting

67

Nationwide Children's Hospital- Site Number : 840091

Columbus, Ohio, United States, 43205

Actively Recruiting

68

LSD Data Registry Site LLC- Site Number : 840094

Dublin, Ohio, United States, 43017

Actively Recruiting

69

Oregon Health & Science University (OHSU)- Site Number : 840080

Portland, Oregon, United States, 97239

Actively Recruiting

70

Penn State Health Milton South Hershey Medical Center- Site Number : 840126

Hershey, Pennsylvania, United States, 17033

Actively Recruiting

71

Children's Hospital of Philadelphia HUP Medical Genetics- Site Number : 840089

Philadelphia, Pennsylvania, United States, 19104

Actively Recruiting

72

Children's Hospital of Philadelphia- Site Number : 840034

Philadelphia, Pennsylvania, United States, 19104

Actively Recruiting

73

UPMC Children's Hospital of Pittsburgh- Site Number : 840023

Pittsburgh, Pennsylvania, United States, 15224

Actively Recruiting

74

Rhode Island Hospital Genetics- Site Number : 840053

Providence, Rhode Island, United States, 02903

Completed

75

Greenwood Genetic Center - Greenville- Site Number : 840055

Greenville, South Carolina, United States, 29605

Actively Recruiting

76

Vanderbilt University Medical Center Diagnostic Lab- Site Number : 840049

Nashville, Tennessee, United States, 37212

Actively Recruiting

77

Baylor Institute of Metabolic Disease- Site Number : 840058

Dallas, Texas, United States, 75226

Completed

78

Cook Children's Health Care System- Site Number : 840024

Fort Worth, Texas, United States, 76104

Actively Recruiting

79

University of Utah Department of Medical Genetics- Site Number : 840043

Salt Lake City, Utah, United States, 84132

Actively Recruiting

80

University of Virginia School of Medicine-Pediatrics- Site Number : 840078

Charlottesville, Virginia, United States, 22908

Completed

81

O & O Alpan- Site Number : 840025

Fairfax, Virginia, United States, 22030

Actively Recruiting

82

Children's Hospital of The King's Daughters- Site Number : 840072

Norfolk, Virginia, United States, 23507

Completed

83

Seattle Children's Hospital- Site Number : 840028

Seattle, Washington, United States, 98105

Actively Recruiting

84

University Of Washington Medical Center- Site Number : 840059

Seattle, Washington, United States, 98195

Actively Recruiting

85

Mary Bridge Children's Hospital & Health Center- Site Number : 840115

Tacoma, Washington, United States, 98405

Actively Recruiting

86

Children's Hospital of Wisconsin-Pediatrics- Site Number : 840054

Milwaukee, Wisconsin, United States, 53226

Actively Recruiting

87

Investigational Site Number : 032003

La Plata, Buenos Aires, Argentina, 1900

Completed

88

Investigational Site Number : 150661

Munro, Buenos Aires, Argentina, 1605

Actively Recruiting

89

Investigational Site Number : 151085

Sarandí, Buenos Aires, Argentina, 1123

Completed

90

Investigational Site Number : 604002

Buenos Aires, Argentina, 1107

Actively Recruiting

91

Investigational Site Number : 032012

Buenos Aires, Argentina, 1425

Completed

92

Investigational Site Number : 032014

Buenos Aires, Argentina, 1428

Actively Recruiting

93

Investigational Site Number : 154176

Corrientes, Argentina, 3400

Completed

94

Investigational Site Number : 032011

Córdoba, Argentina, 5004

Completed

95

Investigational Site Number : 151431

Sydney, New South Wales, Australia, 2050

Terminated

96

Investigational Site Number : 151069

Westmead, New South Wales, Australia, 2145

Actively Recruiting

97

Investigational Site Number : 151010

Brisbane, Queensland, Australia, 4029

Completed

98

Investigational Site Number : 151491

Townsville, Queensland, Australia, 4814

Completed

99

Investigational Site Number : 151002

Adelaide, South Australia, Australia, 5000

Actively Recruiting

100

Investigational Site Number : 151725

Hobart, Tasmania, Australia, 7000

Actively Recruiting

101

Investigational Site Number : 151011

Clayton, Victoria, Australia, 3168

Actively Recruiting

102

Investigational Site Number : 151008

Parkville, Victoria, Australia, 3050

Actively Recruiting

103

Investigational Site Number : 151015

Murdoch, Western Australia, Australia, 6150

Actively Recruiting

104

Investigational Site Number : 150722

Antwerp, Belgium, 2020

Actively Recruiting

105

Investigational Site Number : 151156

Bruges, Belgium, 8000

Terminated

106

Investigational Site Number : 151796

Brussels, Belgium, 1020

Actively Recruiting

107

Investigational Site Number : 150944

Brussels, Belgium, 1090

Actively Recruiting

108

Investigational Site Number : 152345

Brussels, Belgium, 1090

Actively Recruiting

109

Investigational Site Number : 150517

Brussels, Belgium, 1200

Actively Recruiting

110

Investigational Site Number : 154285

Edegem, Belgium, 2650

Actively Recruiting

111

Investigational Site Number : 151134

Ghent, Belgium, 9000

Completed

112

Investigational Site Number : 151668

Leuven, Belgium, 3000

Actively Recruiting

113

Universidade Estadual de Ciencias da Saude de Alagoas- Site Number : 076005

Maceió, Alagoas, Brazil, 57010-300

Actively Recruiting

114

Hospital de Clinicas da Universidade Federal do Parana- Site Number : 076010

Curitiba, Paraná, Brazil, 80060-900

Actively Recruiting

115

Hospital de Clinicas de Porto Alegre- Site Number : 076007

Porto Alegre, Rio Grande do Sul, Brazil, 90035-903

Actively Recruiting

116

Hospital e Maternidade Celso Pierro - PUC-Campinas- Site Number : 076012

Campinas, São Paulo, Brazil, 13034-685

Actively Recruiting

117

Hospital das Clinicas da Faculdade de Medicina de Ribeirao Preto- Site Number : 076001

Ribeirão Preto, São Paulo, Brazil, 14049-900

Actively Recruiting

118

HEMORIO- Site Number : 076006

Rio de Janeiro, Brazil, 20211-030

Actively Recruiting

119

Instituto de Genética e Erros Inatos do Metabolismo- Site Number : 076002

São Paulo, Brazil, 04020-041

Actively Recruiting

120

Hospital das Clinicas da Faculdade de Medicina da Universidade de Sao Paulo- Site Number : 076008

São Paulo, Brazil, 05403-000

Completed

121

Investigational Site Number : 100001

Sofia, Bulgaria, 1680

Actively Recruiting

122

Investigational Site Number : 151164

Sofia, Bulgaria

Actively Recruiting

123

Investigational Site Number : 124014

Calgary, Alberta, Canada, T2E 7Z4

Actively Recruiting

124

Investigational Site Number : 124002

Edmonton, Alberta, Canada, T6G 2B7

Actively Recruiting

125

Investigational Site Number : 124010

Vancouver, British Columbia, Canada, V5Z 1M9

Actively Recruiting

126

Investigational Site Number : 124011

Vancouver, British Columbia, Canada, V6H 3N1

Completed

127

Investigational Site Number : 124019

Winnipeg, Manitoba, Canada, R3A 1R9

Actively Recruiting

128

Investigational Site Number : 124022

Moncton, New Brunswick, Canada, E1C 2Z3

Actively Recruiting

129

Investigational Site Number : 124024

Kingston, Ontario, Canada, K7L 2V7

Actively Recruiting

130

Investigational Site Number : 124005

Kingston, Ontario, Canada, K7L 4X3

Terminated

131

Investigational Site Number : 124021

London, Ontario, Canada, N6A 5A5

Actively Recruiting

132

Investigational Site Number : 124006

Toronto, Ontario, Canada, M5G 1X8

Actively Recruiting

133

Investigational Site Number : 124013

Toronto, Ontario, Canada, M5G1X5

Actively Recruiting

134

Investigational Site Number : 124001

Sherbrooke, Quebec, Canada, J1K 2R1

Actively Recruiting

135

Investigational Site Number : 1560001

Beijing, China, 100045

Actively Recruiting

136

Investigational Site Number : 156003

Beijing, China, 100730

Terminated

137

Investigational Site Number : 152357

Guangzhou, China, 510080

Terminated

138

Investigational Site Number : 1560002

Guangzhou, China, 510080

Actively Recruiting

139

Investigational Site Number : 152358

Hangzhou, China, 310003

Terminated

140

Investigational Site Number : 152359

Hangzhou, China

Terminated

141

Investigational Site Number : 157252

Nanjing, China, 210008

Actively Recruiting

142

Investigational Site Number : 150899

Shanghai, China, 200040

Terminated

143

Investigational Site Number : 151787

Shanghai, China, 200040

Terminated

144

Investigational Site Number : 152356

Shanghai, China, 200092

Terminated

145

Investigational Site Number : 170004

Bogotá, Colombia

Actively Recruiting

146

Investigational Site Number : 1910001

Zagreb, Croatia, 10000

Actively Recruiting

147

Investigational Site Number : 1910002

Zagreb, Croatia, 10000

Actively Recruiting

148

Investigational Site Number : 1910003

Zagreb, Croatia, 10000

Actively Recruiting

149

Investigational Site Number : 150809

Prague, Czechia, 12808

Actively Recruiting

150

Investigational Site Number : 151229

Copenhagen, Denmark, 2100

Actively Recruiting

151

Investigational Site Number : 2140001

Santo Domingo, Dominican Republic, 10101

Actively Recruiting

152

Investigational Site Number : 818007

Al Mansurah, Egypt

Actively Recruiting

153

Investigational Site Number : 5748

Alexandria, Egypt

Actively Recruiting

154

Investigational Site Number : 9889

Ash Sharqiyah, Egypt

Actively Recruiting

155

Investigational Site Number : 9888

Asyut, Egypt

Actively Recruiting

156

Investigational Site Number : 8345

Cairo, Egypt, 11432

Actively Recruiting

157

Investigational Site Number : 9829

Cairo, Egypt, 11566

Actively Recruiting

158

Investigational Site Number : 9830

Cairo, Egypt

Actively Recruiting

159

Investigational Site Number : 250004

Besançon, France, 25000

Completed

160

Investigational Site Number : 250008

Bordeaux, France, 33000

Actively Recruiting

161

Investigational Site Number : 250005

Brest, France, 29200

Actively Recruiting

162

Investigational Site Number : 250014

Bron, France, 69677

Actively Recruiting

163

Investigational Site Number : 250002

Caen, France, 14033

Completed

164

Investigational Site Number : 250001

Clichy, France, 92110

Actively Recruiting

165

Investigational Site Number : 250003

Garches, France, 92380

Actively Recruiting

166

Investigational Site Number : 250009

Lyon, France, 69003

Completed

167

Investigational Site Number : 250011

Marseille, France, 13008

Terminated

168

Investigational Site Number : 2500013

Montpellier, France, 34295

Actively Recruiting

169

Investigational Site Number : 250006

Nantes, France, 44093

Actively Recruiting

170

Investigational Site Number : 250007

Paris, France, 75013

Terminated

171

Investigational Site Number : 250010

Paris, France, 75015

Actively Recruiting

172

Investigational Site Number : 250018

Strasbourg, France, 67000

Actively Recruiting

173

Investigational Site Number : 250017

Toulouse, France, 31027

Completed

174

Investigational Site Number : 250016

Tours, France, 37032

Actively Recruiting

175

Investigational Site Number : 151686

Berlin, Germany, 13353

Actively Recruiting

176

Investigational Site Number : 150783

Düsseldorf, Germany, 40225

Actively Recruiting

177

Investigational Site Number : 154150

Giessen, Germany, 35392

Actively Recruiting

178

Investigational Site Number : 151369

Hamburg, Germany, 20099

Actively Recruiting

179

Investigational Site Number : 151368

Hamburg, Germany, 20246

Completed

180

Investigational Site Number : 150031

Mainz, Germany, 55131

Actively Recruiting

181

Investigational Site Number : 150432

Oberhausen, Germany, 46045

Completed

182

Investigational Site Number : 300002

Athens, Greece, 115 27

Actively Recruiting

183

Investigational Site Number : 300004

Athens, Greece

Actively Recruiting

184

Investigational Site Number : 300003

Pátrai, Greece, 26500

Actively Recruiting

185

Investigational Site Number : 300001

Thessaloniki, Greece, 546 42

Actively Recruiting

186

Investigational Site Number : 344001

Kowloon, Hong Kong

Actively Recruiting

187

Investigational Site Number : 3480006

Budapest, Hungary, H-1097

Actively Recruiting

188

Investigational Site Number : 3480003

Létavértes, Hungary, 4281

Actively Recruiting

189

Investigational Site Number : 3480007

Nyiregyháza, Hungary, 4400

Actively Recruiting

190

Investigational Site Number : 3480008

Székesfehérvár, Hungary, 8000

Actively Recruiting

191

Investigational Site Number : 356003

Ahmedabad, India, 380015

Actively Recruiting

192

Investigational Site Number : 356004

Jaipur, India, 302015

Completed

193

Investigational Site Number : 356001

Kolkata, India, 700017

Actively Recruiting

194

Investigational Site Number : 356005

Mumbai, India, 400025

Actively Recruiting

195

Investigational Site Number : 3560006

Secunderabad, India, 500026

Actively Recruiting

196

Investigational Site Number : 356002

Vellore, India, 632004

Actively Recruiting

197

Investigational Site Number : 360001

Jakarta, Indonesia

Actively Recruiting

198

Investigational Site Number : 3760003

Haifa, Israel

Actively Recruiting

199

Investigational Site Number : 3760001

Jerusalem, Israel

Actively Recruiting

200

Investigational Site Number : 3760002

Petah Tikva, Israel

Actively Recruiting

201

Investigational Site Number : 380009

Florence, Firenze, Italy, 50134

Completed

202

Investigational Site Number : 380004

Milan, Milano, Italy, 20122

Actively Recruiting

203

Investigational Site Number : 380005

Baggiovara, Modena, Italy, 41126

Actively Recruiting

204

Investigational Site Number : 380002

Monza, Monza E Brianza, Italy, 20052

Actively Recruiting

205

Investigational Site Number : 380007

Rome, Roma, Italy, 00161

Actively Recruiting

206

Investigational Site Number : 380014

Sassari, Sardinia, Italy, 07100

Actively Recruiting

207

Investigational Site Number : 380008

Catania, Italy, 95100

Actively Recruiting

208

Investigational Site Number : 380006

Genova, Italy, 16147

Actively Recruiting

209

Investigational Site Number : 380011

Monza, Italy

Actively Recruiting

210

Investigational Site Number : 380010

Naples, Italy

Completed

211

Investigational Site Number : 380003

Padova, Italy, 35128

Actively Recruiting

212

Investigational Site Number : 380001

Udine, Italy, 33100

Actively Recruiting

213

Investigational Site Number : 153203

Yonago, Tottori, Japan, 683-8504

Completed

214

Investigational Site Number : 153217

Chiba, Japan, 266-0007

Actively Recruiting

215

Investigational Site Number : 153205

Osaka, Japan, 545-8586

Completed

216

Investigational Site Number : 153204

Tokyo, Japan, 157-8535

Actively Recruiting

217

Investigational Site Number : 4000001

Amman, Jordan, 261

Actively Recruiting

218

Investigational Site Number : 154225

Kuwait City, Kuwait

Completed

219

Investigational Site Number : 422001

Beirut, Lebanon, 166830

Actively Recruiting

220

Investigational Site Number : 4220004

Beirut, Lebanon

Actively Recruiting

221

Investigational Site Number : 154237

Vilnius, Lithuania, 08661

Actively Recruiting

222

Investigational Site Number : 458001

Kuala Lumpur, Malaysia, 50586

Actively Recruiting

223

Investigational Site Number : 458002

Kuala Lumpur, Malaysia, 59100

Actively Recruiting

224

Investigational Site Number : 150149

Amsterdam, Netherlands

Completed

225

Investigational Site Number : 151171

Amsterdam, Netherlands

Terminated

226

Investigational Site Number : 154264

Karachi, Pakistan

Actively Recruiting

227

Investigational Site Number : 154266

Lahore, Pakistan

Actively Recruiting

228

Investigational Site Number : 604001

Arequipa, Peru

Completed

229

Investigational Site Number : 608001

City of Muntinlupa, Philippines, 1000

Actively Recruiting

230

Investigational Site Number : 150575

Warsaw, Poland, 04-730

Actively Recruiting

231

Investigational Site Number : 620003

Coimbra, Portugal, 3040-081

Actively Recruiting

232

Investigational Site Number : 620004

Lisbon, Portugal, 1649-035

Actively Recruiting

233

Investigational Site Number : 620009

Ponta Delgada, Portugal, 9500-370

Actively Recruiting

234

Investigational Site Number : 151188

Cluj-Napoca, Romania, 400006

Completed

235

Investigational Site Number : 642001

Cluj-Napoca, Romania, 400006

Actively Recruiting

236

Investigational Site Number : 642002

Cluj-Napoca, Romania, 400006

Actively Recruiting

237

Investigational Site Number : 643001

Moscow, Russia

Actively Recruiting

238

Investigational Site Number : 643002

Saint Petersburg, Russia

Actively Recruiting

239

Investigational Site Number : 682002

Al-Hasa, Saudi Arabia, 31982

Actively Recruiting

240

Investigational Site Number : 682003

Jeddah, Saudi Arabia

Completed

241

Investigational Site Number : 682004

Mecca, Saudi Arabia, 24246

Actively Recruiting

242

Investigational Site Number : 688001

Belgrade, Serbia, 11000

Actively Recruiting

243

Investigational Site Number : 688002

Belgrade, Serbia, 11000

Actively Recruiting

244

Investigational Site Number : 688005

Belgrade, Serbia, 11000

Actively Recruiting

245

Investigational Site Number : 688003

Belgrade, Serbia, 11080

Actively Recruiting

246

Investigational Site Number : 688004

Niš, Serbia, 18000

Actively Recruiting

247

Investigational Site Number : 702001

Singapore, Singapore, 229899

Actively Recruiting

248

Investigational Site Number : 703001

Bratislava, Slovakia, 833 40

Completed

249

Investigational Site Number : 154138

Durban, South Africa, 4001

Actively Recruiting

250

Investigational Site Number : 150346

Johannesburg, South Africa, 2057

Actively Recruiting

251

Investigational Site Number : 710-003

Johannesburg, South Africa

Actively Recruiting

252

Investigational Site Number : 154208

Yangsan, Gyeongsangnam-do, South Korea, 50612

Terminated

253

Investigational Site Number : 153180

Seoul, Seoul-teukbyeolsi, South Korea, 03080

Actively Recruiting

254

Investigational Site Number : 153196

Seoul, Seoul-teukbyeolsi, South Korea, 03080

Actively Recruiting

255

Investigational Site Number : 151149

Seoul, Seoul-teukbyeolsi, South Korea, 05505

Actively Recruiting

256

Investigational Site Number : 153222

Seoul, Seoul-teukbyeolsi, South Korea, 06973

Actively Recruiting

257

Investigational Site Number : 153191

Daejeon, South Korea

Actively Recruiting

258

Investigational Site Number : 153212

Seoul, South Korea

Actively Recruiting

259

Investigational Site Number : 154146

A Coruña, A Coruña [La Coruña], Spain, 15006

Completed

260

Investigational Site Number : 153237

Barcelona, Barcelona [Barcelona], Spain, 08035

Actively Recruiting

261

Investigational Site Number : 154147

Barcelona, Barcelona [Barcelona], Spain, 08035

Actively Recruiting

262

Investigational Site Number : 154119

Alcorcón, Madrid, Spain, 28922

Actively Recruiting

263

Investigational Site Number : 153213

Vigo, Pontevedra [Pontevedra], Spain, 36200

Actively Recruiting

264

Investigational Site Number : 153215

Seville, Sevilla, Spain, 41013

Actively Recruiting

265

Investigational Site Number : 153219

Seville, Sevilla, Spain, 41013

Actively Recruiting

266

Investigational Site Number : 154163

Madrid, Spain, 28007

Actively Recruiting

267

Investigational Site Number : 154236

Madrid, Spain, 28007

Actively Recruiting

268

Investigational Site Number : 151524

Madrid, Spain, 28034

Actively Recruiting

269

Investigational Site Number : 153251

Madrid, Spain, 28040

Terminated

270

Investigational Site Number : 154199

Madrid, Spain, 28041

Actively Recruiting

271

Investigational Site Number : 154160

Madrid, Spain, 28046

Actively Recruiting

272

Investigational Site Number : 154145

Sabadell, Spain, 08208

Actively Recruiting

273

Investigational Site Number : 154205

Valencia, Spain, 46026

Actively Recruiting

274

Investigational Site Number : 154238

Zaragoza, Spain, 50006

Actively Recruiting

275

Investigational Site Number : 153216

Zaragoza, Spain, 50009

Actively Recruiting

276

Investigational Site Number : 154095

Borås, Sweden, 501 82

Completed

277

Investigational Site Number : 151726

Malmö, Sweden, 205 02

Active, Not Recruiting

278

Investigational Site Number : 154092

Norrköping, Sweden, 601 82

Actively Recruiting

279

Investigational Site Number : 157237

Aarau, Switzerland, 5001

Actively Recruiting

280

Investigational Site Number : 157045

Bern, Switzerland, 3010

Actively Recruiting

281

Investigational Site Number : 157244

Lausanne, Switzerland, 1011

Actively Recruiting

282

Investigational Site Number : 157241

Zurich, Switzerland, 8057

Actively Recruiting

283

Investigational Site Number : 151500

Chiayi City, Taiwan

Actively Recruiting

284

Investigational Site Number : 154093

Chiayi City, Taiwan

Actively Recruiting

285

Investigational Site Number : 152152

Hualien City, Taiwan, 970

Actively Recruiting

286

Investigational Site Number : 152244

Kaohsiung City, Taiwan, 807

Completed

287

Investigational Site Number : 152246

Kaohsiung City, Taiwan, 833

Actively Recruiting

288

Investigational Site Number : 151534

New Taipei City, Taiwan, 231

Actively Recruiting

289

Investigational Site Number : 151179

Taichung, Taiwan, 404

Actively Recruiting

290

Investigational Site Number : 151181

Taichung, Taiwan, 411

Actively Recruiting

291

Investigational Site Number : 153248

Tainan, Taiwan, 704

Actively Recruiting

292

Investigational Site Number : 152153

Tainan, Taiwan, 710

Actively Recruiting

293

Investigational Site Number : 151182

Taipei, Taiwan, 100

Actively Recruiting

294

Investigational Site Number : 152321

Taipei, Taiwan, 104

Actively Recruiting

295

Investigational Site Number : 152226

Taipei, Taiwan, 112

Actively Recruiting

296

Investigational Site Number : 153158

Tao Yuan County, Taiwan, 333

Actively Recruiting

297

Investigational Site Number : 764003

Bangkok, Thailand, 10400

Actively Recruiting

298

Investigational Site Number : 764004

Bangkok, Thailand, 10700

Actively Recruiting

299

Investigational Site Number : 764001

Bangkok, Thailand

Actively Recruiting

300

Investigational Site Number : 764005

Khon Kaen, Thailand, 40002

Actively Recruiting

301

Investigational Site Number : 792006

Adana, Turkey (Türkiye), 01330

Actively Recruiting

302

Investigational Site Number : 792002

Ankara, Turkey (Türkiye), 06230

Completed

303

Investigational Site Number : 792005

Ankara, Turkey (Türkiye), 06620

Actively Recruiting

304

Investigational Site Number : 792001

Ankara, Turkey (Türkiye)

Actively Recruiting

305

Investigational Site Number : 792004

Istanbul, Turkey (Türkiye)

Actively Recruiting

306

Investigational Site Number : 792007

Izmir, Turkey (Türkiye)

Actively Recruiting

307

Investigational Site Number : 792003

Malatya, Turkey (Türkiye)

Completed

308

Investigational Site Number : 7840001

Dubai, United Arab Emirates

Actively Recruiting

309

Investigational Site Number : 151340

Cambridge, Cambridgeshire, United Kingdom, CB2 2QQ

Actively Recruiting

310

Investigational Site Number : 152287

Birmingham, England, United Kingdom, B15 2TH

Actively Recruiting

311

Investigational Site Number : 154240

Birmingham, England, United Kingdom, B4 6NH

Actively Recruiting

312

Investigational Site Number : 151123

London, England, United Kingdom, NW3 2QG

Actively Recruiting

313

Investigational Site Number : 151646

London, London, City of, United Kingdom, WC1N 3BG

Actively Recruiting

314

Investigational Site Number : 150303

London, London, City of, United Kingdom, WC1N 3JH

Actively Recruiting

315

Investigational Site Number : 152361

Salford, Manchester, United Kingdom, M6 8HD

Actively Recruiting

316

Investigational Site Number : 150455

Manchester, United Kingdom, M13 9WL

Actively Recruiting

317

Investigational Site Number : 154212

Hanoi, Vietnam

Actively Recruiting

318

Investigational Site Number : 704002

Ho Chi Minh City, Vietnam, 70000

Actively Recruiting

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Research Team

T

Trial Transparency email recommended (Toll free number for US & Canada)

CONTACT

I

ICGG Gaucher Registry HelpLine

CONTACT

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

2

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