Actively Recruiting
International Genetic Obesity Registry
Led by University of Ulm · Updated on 2025-12-22
5000
Participants Needed
1
Research Sites
2606 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
Genetic obesity results from changes in specific genes that affect appetite regulation, metabolism, and fat storage. Its severity and associated health issues vary depending on the genetic cause. In some cases, hormonal imbalances, developmental delays, or other complications may also occur. Identifying the genetic cause is essential for personalized treatment and understanding potential symptoms. As genetic obesity is rare, specialists often encounter few patients with diverse genetic backgrounds and clinical features. Therefore, collecting global data is crucial to improve our understanding of the condition's progression, complications, and treatment responses for each genetic subtype. To support this, the International Genetic Obesity Registry (iGO Registry) has been established to gather detailed patient information on genetic obesity. This registry will help advance research and improve clinical care for affected individuals. It will collect data from routine outpatient visits, focusing on relevant diagnostic and treatment information on an international level.
CONDITIONS
Official Title
International Genetic Obesity Registry
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Patients with genetically confirmed genetic obesity (ACMG classification 3-5, associated with obesity) and/or early onset severe obesity (BMI 20;35 kg/m2 or 20;120% of 95th percentile before 5 years old) if genetic testing was performed
- Capable of understanding the study aims and providing informed consent (or consent given by legal guardians for children or incapacitated individuals)
You will not qualify if you...
- Not capable of understanding the study aims or providing informed consent
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Ulm University Clinic
Ulm, Germany
Actively Recruiting
Research Team
J
Julia von Schnurbein, PD Dr.
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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