Actively Recruiting

All Genders
NCT02417324

International HIT-MED Registry (I-HIT-MED)

Led by Universitätsklinikum Hamburg-Eppendorf · Updated on 2025-12-04

500

Participants Needed

57

Research Sites

778 weeks

Total Duration

On this page

AI-Summary

What this Trial Is About

The I-HIT-MED registry registers clinical of children and adults with medulloblastoma, ependymoma, pineal tumours, or choroid plexus tumours in Germany and other countries that fulfil national ethic requirements for participation in this registry. These tumours are rare diseases, and many patients are treated outside of clinical trials. The I-HIT-MED registry allows collection of data und biological material from those patients, and provides a basis for standard treatment recommendations and counselling. It aims to improve the international cooperation and the medical knowledge in these rare diseases. Within the I-HIT-MED registry, it is a goal to maintain and improve networks for quality assurance in national groups where they are already established, and to support the implementation in national groups, where there is no quality assurance network yet.

CONDITIONS

Official Title

International HIT-MED Registry (I-HIT-MED)

Who Can Participate

All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Diagnosed with medulloblastoma, ependymoma, pineal tumours, or choroid plexus tumours of any age (with exceptions for some subtypes registered only if diagnosed before age 18)
  • Tumour located anywhere in the brain
  • Any clinical stage of the tumour
  • First diagnosis on or after January 1, 2012
  • Not currently enrolled in a prospective clinical trial for the same diagnosis due to ineligibility, lack of trial approval, or refusal
  • Written informed consent for data and tumour sample sharing according to national laws
  • Ethical committee approval according to national laws
Not Eligible

You will not qualify if you...

  • Currently registered in another clinical trial for the same diagnosis (relapse counts as a second diagnosis)
  • No valid ethical committee approval

AI-Screening

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Trial Site Locations

Total: 57 locations

1

University Hospital Aachen

Aachen, Germany, 52074

Actively Recruiting

2

Klinikum Augsburg

Augsburg, Germany, 86156

Actively Recruiting

3

Helios Klinikum Berlin-Buch

Berlin, Germany, 13125

Actively Recruiting

4

Charite Campus, University of Berlin

Berlin, Germany, 13353

Actively Recruiting

5

Evangelisches Krankenhaus Bielefeld

Bielefeld, Germany, 33617

Actively Recruiting

6

Klinikum Braunschweig

Braunschweig, Germany, 38118

Actively Recruiting

7

Klinikum Bremen-Mitte

Bremen, Germany, 28177

Actively Recruiting

8

Klinikum Chemnitz

Chemnitz, Germany, 09116

Actively Recruiting

9

University Hospital Cologne

Cologne, Germany, 50924

Not Yet Recruiting

10

Carl-Thiem-Klinikum Cottbus

Cottbus, Germany, 03048

Actively Recruiting

11

Vestische Kinder- und Jugendklinik, University Witten/Herdecke

Datteln, Germany, 45711

Active, Not Recruiting

12

Klinikum Dortmund

Dortmund, Germany, 44137

Actively Recruiting

13

University Hospital Dresden

Dresden, Germany, 01307

Actively Recruiting

14

Klinikum Duisburg

Duisburg, Germany, 47055

Active, Not Recruiting

15

Universitäts-Kinderklinik Düsseldorf

Düsseldorf, Germany, 40225

Actively Recruiting

16

HELIOS Klinikum-Erfurt

Erfurt, Germany, 99089

Actively Recruiting

17

University Hospital Erlangen

Erlangen, Germany, 91054

Actively Recruiting

18

University Hospital Essen

Essen, Germany, 45147

Actively Recruiting

19

University Hospital Frankfurt/Main

Frankfurt, Germany, 60590

Actively Recruiting

20

University Hospital Freiburg

Freiburg im Breisgau, Germany, 79106

Actively Recruiting

21

Universitätsklinikum Gießen und Marburg

Giessen, Germany, 35392

Actively Recruiting

22

Georg-August-Universität Göttingen

Göttingen, Germany, 37075

Actively Recruiting

23

University Hospital Greifswald

Greifswald, Germany, 17475

Actively Recruiting

24

University Hospital Halle/Saale

Halle, Germany, 06120

Actively Recruiting

25

University Medical Center Hamburg-Eppendorf

Hamburg, Germany, 20246

Actively Recruiting

26

Medizinische Hochschule Hannover

Hanover, Germany, 30625

Actively Recruiting

27

Angelika-Lautenschläger-Klinik

Heidelberg, Germany, 69120

Actively Recruiting

28

SLK-Kliniken

Heilbronn, Germany, 74078

Actively Recruiting

29

Gemeinschaftskrankenhaus Herdecke

Herdecke, Germany, 58313

Actively Recruiting

30

University Hospital Homburg/Saar

Homburg, Germany, 66421

Actively Recruiting

31

University Hopsital Jena

Jena, Germany, 07740

Actively Recruiting

32

Städtisches Klinikum Karlsruhe

Karlsruhe, Germany, 76133

Actively Recruiting

33

Klinikum Kassel

Kassel, Germany, 34125

Active, Not Recruiting

34

UK-SH Campus Kiel

Kiel, Germany, 24105

Actively Recruiting

35

Gemeinschaftsklinikum Koblenz-Mayen

Koblenz, Germany, 56073

Actively Recruiting

36

HELIOS Klinikum Krefeld

Krefeld, Germany, 47805

Not Yet Recruiting

37

University Hospital Leipzig

Leipzig, Germany, 04103

Active, Not Recruiting

38

Universitätsklinikum Schleswig-Holstein

Lübeck, Germany, 23538

Actively Recruiting

39

University Hospital Magdeburg

Magdeburg, Germany, 39120

Actively Recruiting

40

University Hospital Mainz

Mainz, Germany, 55131

Actively Recruiting

41

University Hospital Mannheim

Mannheim, Germany, 68167

Actively Recruiting

42

Johannes Wesling Klinikum Minden

Minden, Germany, 32429

Actively Recruiting

43

Universität München - von Haunersches

München, Germany, 80337

Actively Recruiting

44

Klinikum Schwabing, Pediatric Hospital of Technical University

München, Germany, 80804

Actively Recruiting

45

Universitätsklinikum Münster

Münster, Germany, 48149

Actively Recruiting

46

Cnopf'sche Kinderklinik

Nuremberg, Germany, 90419

Actively Recruiting

47

Klinikum Oldenburg

Oldenburg, Germany, 26133

Actively Recruiting

48

University Hospital Regensburg

Regensburg, Germany, 93053

Actively Recruiting

49

University Hospital Rostock

Rostock, Germany, 18057

Actively Recruiting

50

Asklepios Klinik Sankt Augustin

Sankt Augustin, Germany, 53757

Actively Recruiting

51

Helios Kliniken Schwerin

Schwerin, Germany, 19049

Actively Recruiting

52

Klinikum Stuttgart

Stuttgart, Germany, 70176

Actively Recruiting

53

Universitätsklinik Tübingen

Tübingen, Germany, 72076

Actively Recruiting

54

University Hospital Ulm

Ulm, Germany, 89075

Actively Recruiting

55

Dr. Horst Schmidt Kliniken

Wiesbaden, Germany, 65199

Withdrawn

56

Klinikum der Stadt Wolfsburg

Wolfsburg, Germany, 38440

Actively Recruiting

57

Universotätsklinikum Würzburg

Würzburg, Germany, 97080

Actively Recruiting

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Research Team

S

Stefan Rutkowski, Prof.

CONTACT

M

Martin Mynarek, MD

CONTACT

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

0

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International HIT-MED Registry (I-HIT-MED) | DecenTrialz