Actively Recruiting
International Pachyonychia Congenita Research Registry
Led by Pachyonychia Congenita Project · Updated on 2018-11-21
2000
Participants Needed
1
Research Sites
1391 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
International Pachyonychia Congenita Research Registry (IPCRR) is a patient registry for those suffering from Pachyonychia Congenita (PC). PC is an ultra-rare extremely painful skin disorder that causes painful blisters and callus on feet and sometimes hands, thickened nails, cysts and other features. The IPCRR consists of a questionnaire, patient photos, optional physician notes from telephone consultation to validate questionnaire and free genetic testing.
CONDITIONS
Official Title
International Pachyonychia Congenita Research Registry
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Clinical diagnosis of Pachyonychia Congenita or similar disorder
You will not qualify if you...
History of severe allergic reactions to study medication Currently pregnant or breastfeeding Recent participation in another clinical trial within the last 30 days Presence of uncontrolled medical conditions that could affect safety
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Pachyonychia Congenita Project
Salt Lake City, Utah, United States, 84117
Actively Recruiting
Research Team
H
Holly A Evans
CONTACT
J
Janice N Schwartz
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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