Actively Recruiting
The International PNH Interest Group PNH Registry
Led by International PNH Interest Group · Updated on 2024-07-29
2000
Participants Needed
1
Research Sites
260 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The aim of this International PNH Interest Group (IPIG) registry is to develop an international database to prospectively collect data on patients with PNH covering clinical outcomes, patient reported outcomes (PROs), and health-resource utilization (HRU) on all enrolled patients, as well as long term safety data.
CONDITIONS
Official Title
The International PNH Interest Group PNH Registry
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Patients with PNH confirmed by flow cytometry.
- Patient and/or parent/legally authorized representative provide written informed consent or assent to participate in the registry as approved by ethics committees and local regulations.
You will not qualify if you...
- Currently participating in an interventional PNH clinical trial. (Data collection in the registry will be paused during such participation and resumed afterwards.)
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
International PNH Interest Group
Altamonte Springs, Florida, United States, 32714
Actively Recruiting
Research Team
I
IPIG Registry Coordinator
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
2
Not the Right Trial for You?
Explore thousands of other clinical trials that might be a better match.
Sign up to get personalized trial recommendations delivered to your inbox.
Already have an account? Log in here