Actively Recruiting
International Rare Brain Tumor Registry
Led by Children's National Research Institute · Updated on 2026-03-31
5800
Participants Needed
10
Research Sites
569 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The objective of the International Rare Brain Tumor Registry (IRBTR) is to better understand rare brain tumors through the collection of biospecimens and matched clinical data of children, adolescents, and young adult patients diagnosed with rare brain tumors.
CONDITIONS
Official Title
International Rare Brain Tumor Registry
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Patients with a known or suspected CNS Sarcoma
- Patients with a known or suspected BCOR-altered brain tumor
- Patients with a known or suspected Astroblastoma/NM-1 altered brain tumor
- Patients with known or suspected histologically ambiguous/unclassifiable brain tumor
- Patients with a known or suspected rare brain tumor
- Signed informed consent by patient, parent, or guardian (assent where applicable) to participate in the study
You will not qualify if you...
- Patient has an extra-CNS primary tumor
- Patient is older than 46 years of age at diagnosis
- Patient or family is not willing to participate or does not sign informed consent
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 10 locations
1
Children's Hospital Los Angeles
Los Angeles, California, United States, 90027
Actively Recruiting
2
University of California San Francisco
San Francisco, California, United States, 94158
Actively Recruiting
3
Children's National Hospital
Washington D.C., District of Columbia, United States, 20010
Actively Recruiting
4
Ann & Robert H. Lurie Children's Hospital of Chicago
Chicago, Illinois, United States, 60611
Actively Recruiting
5
Akron Children's Hospital
Akron, Ohio, United States, 44308
Actively Recruiting
6
Cincinnati Children's Hospital Medical Center
Cincinnati, Ohio, United States, 45229-3026
Actively Recruiting
7
Rambam Health Care Campus
Haifa, Israel, 3525409
Actively Recruiting
8
Schneider Children's Medical Center- CLALIT Health Services
Petah Tikva, Israel, 4920235
Actively Recruiting
9
Dana-Dwek Children's Hospital- Tel Aviv Medical Center
Tel Aviv, Israel, 6423906
Actively Recruiting
10
The Sheba Medical Center
Tel Litwinsky, Israel, 52621
Actively Recruiting
Research Team
A
Adriana Fonseca, MD
CONTACT
H
Hope Lovell
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
5
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