Actively Recruiting

Age: 2Years +
All Genders
NCT06806813

Italian Anderson Fabry Disease Cardiovascular Registry

Led by IRCCS Azienda Ospedaliero-Universitaria di Bologna · Updated on 2025-02-04

800

Participants Needed

54

Research Sites

518 weeks

Total Duration

On this page

AI-Summary

What this Trial Is About

The RICMAF Study is an observational, multicenter, non-pharmacological study conducted in Italy. Although Anderson-Fabry Disease (AFD) is rare, it is likely underdiagnosed due to its nonspecific symptoms, leading to delays in proper treatment. The RICMAF Study aims to improve understanding of AFD, especially its cardiac manifestations, which are a major cause of mortality. By gathering data from a large, nationwide patient registry, this study seeks to answer key questions about AFD's clinical course and improve patient outcomes. The primary goals of the RICMAF Study are: * To analyze the clinical profile, prevalence, and incidence of AFD, along with patients' family history and disease progression. * To identify early markers of cardiac involvement and predictors of cardiovascular complications to personalize care. * To investigate the relationship between genetic mutations, clinical presentation, and prognosis. * To find early indicators of organ damage through laboratory and imaging tests. All patients diagnosed with AFD following international guidelines are eligible.

CONDITIONS

Official Title

Italian Anderson Fabry Disease Cardiovascular Registry

Who Can Participate

Age: 2Years +
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Patients diagnosed with Anderson Fabry disease
  • Age �3e�3d 2 years at diagnosis
  • Obtaining informed consent from the patient and parent or legal guardian.
Not Eligible

You will not qualify if you...

History of severe allergic reactions to study medication Currently pregnant or breastfeeding Recent participation in another clinical trial within the last 30 days Presence of uncontrolled medical conditions that could affect safety

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Trial Site Locations

Total: 54 locations

1

ASL 2 Chieti - Ospedale Policlinico SS. Annunziata

Chieti, Abruzzo/Chieti, Italy, 66100

Not Yet Recruiting

2

Azienda Ospedaliera Regionale S.Carlo

Potenza, Basilicata/Potenza, Italy, 85100

Not Yet Recruiting

3

AORN "Sant'Anna e San Sebastiano" di Caserta

Caserta, Caserta, Italy, 81100

Not Yet Recruiting

4

Azienda Ospedaliero - Universitaria "Mater Domini

Catanzaro, Catanzaro, Italy, 88100

Not Yet Recruiting

5

Azienda Ospedaliera di Cosenza Università della Calabria

Cosenza, Cosenza, Italy, 87100

Not Yet Recruiting

6

IRCCS Azienda Ospedaliero-Universitaria di Bologna

Bologna, EmiliaRomagna/Bologna, Italy, 40138

Actively Recruiting

7

IRCCS Ospedale Policlinico San Martino

Genova, Genova, Italy

Not Yet Recruiting

8

ASST Papa Giovanni XXIII

Bergamo, Lombardia/Bergamo, Italy, 24127

Actively Recruiting

9

U.O.Cardiologia Spetali Civili 1

Brescia, Lombardia/Brescia, Italy, 25123

Not Yet Recruiting

10

IRCCS Ospedale Maggiore Policlinico di Milano

Milan, Lombardia/Milano, Italy, 20122

Not Yet Recruiting

11

IRCCS San Gerardo dei Tintori - S.C. Nefrologia, Monza - Università di Milano Bicocca

Milan, Lombardia/Milano, Italy, 20126

Not Yet Recruiting

12

Centro Cardiologico Monzino

Milan, Lombardia/Milano, Italy, 20138

Actively Recruiting

13

Ospedale Niguarda

Milan, Lombardia/Milano, Italy, 20162

Not Yet Recruiting

14

IRCCS Policlinico San Donato

San Donato Milanese, Lombardia/Milano, Italy, 20097

Not Yet Recruiting

15

A O Universitaria Ospedali Riuniti Ancona

Ancona, Marche/Ancona, Italy, 60126

Actively Recruiting

16

Clinica cardiologica AZ ospedaliera Torrette

Ancona, Marche/Ancona, Italy, 60126

Not Yet Recruiting

17

AO Dei Colli - Ospedale Monaldi

Naples, Napoli, Italy, 80131

Actively Recruiting

18

AOU Policlinico

Naples, Napoli, Italy, 80131

Not Yet Recruiting

19

Azienda Ospedaliero-Universitaria di Parma

Parma, Parma, Italy, 43126

Not Yet Recruiting

20

Azienda Ospedaliera "Guglielmo da Saliceto" di Piacenza

Piacenza, Piacenza, Italy, 29121

Not Yet Recruiting

21

Ospedale Ivrea

Ivrea, Piemonte/Ivrea, Italy, 10015

Not Yet Recruiting

22

Ospedale Maggiore della Carità

Novara, Piemonte/Novara, Italy, 28100

Not Yet Recruiting

23

Molinette

Torino, Piemonte/Torino, Italy, 10134

Actively Recruiting

24

Ospedale Koelliker di Torino

Torino, Piemonte/Torino, Italy, 10134

Not Yet Recruiting

25

Policlinico Bari

Bari, Puglia/Bari, Italy, 70124

Actively Recruiting

26

A O Universitaria Ospedali Riuniti di Foggia

Foggia, Puglia/Foggia, Italy, 71122

Not Yet Recruiting

27

Ospedale Casa Sollievo della sofferenza

Manfredonia, Puglia/Foggia, Italy, 71043

Not Yet Recruiting

28

Ospedale Vito Fazzi

Lecce, Puglia/Lecce, Italy, 73100

Not Yet Recruiting

29

Ospedale SS.ma Annunziata

Taranto, Puglia/Taranto, Italy, 74010

Actively Recruiting

30

Ospedale Metropolitano Riuniti "Bianchi - Melacrino - Morelli

Reggio Calabria, Reggio Calabria, Italy

Not Yet Recruiting

31

Arcispedale S.Maria Nuova

Reggio Emilia, Reggio Emilia, Italy, 42123

Actively Recruiting

32

Ospedale degli Infermi di Rimini, AUSL Romagna

Rimini, Rimini, Italy, 47923

Not Yet Recruiting

33

Policlinico "Tor Vergata"

Roma, Roma, Italy, 00133

Not Yet Recruiting

34

Policlinico Gemelli

Roma, Roma, Italy, 00136

Actively Recruiting

35

Policlinico Umberto I - Università Sapienza

Roma, Roma, Italy, 00161

Not Yet Recruiting

36

Policlinico Casilino

Roma, Roma, Italy, 00169

Not Yet Recruiting

37

Ospedale Sant'Andrea

Roma, Roma, Italy, 00189

Not Yet Recruiting

38

San Camillo Forlanini

Roma, Roma, Italy

Not Yet Recruiting

39

Ospedale S.Giovanni di Dio e Ruggì d'Aragona

Salerno, Salerno, Italy, 84131

Not Yet Recruiting

40

Azienda Ospedaliera G. Brotzu

Cagliari, Sardegna/Cagliari, Italy, 09121

Not Yet Recruiting

41

Azienda Ospedaliera Universitaria

Cagliari, Sardegna/Cagliari, Italy, 09124

Not Yet Recruiting

42

Policlinico Rodolico

Catania, Sicilia/Catania, Italy, 95123

Actively Recruiting

43

Policlinico G. Martino

Messina, Sicilia/Messina, Italy, 98125

Not Yet Recruiting

44

Policlinico P. Giaccone

Palermo, Sicilia/Palermo, Italy, 90127

Not Yet Recruiting

45

Ospedale San Donato

Arezzo, Toscana/Arezzo, Italy, 52100

Not Yet Recruiting

46

Azienda Ospedaliero Universitaria Careggi e Meyer

Florence, Toscana/Firenze, Italy, 50139

Actively Recruiting

47

Fondazione Toscana Gabriele Monasterio

Pisa, Toscana/Pisa, Italy, 56126

Actively Recruiting

48

Azienda Ospedaliera Universitaria Siena

Siena, Toscana/Siena, Italy, 53100

Not Yet Recruiting

49

Ospedale S.Chiara

Trento, Trentino Alto Adige/Trento, Italy, 38123

Not Yet Recruiting

50

Azienda sanitaria universitaria Giuliano Isontina

Trieste, Triesta, Italy, 34170

Not Yet Recruiting

51

Azienda sanitaria universitaria Friuli Centrale

Udine, Udine, Italy, 33100

Not Yet Recruiting

52

Ospedale di Perugia

Perugia, Umbria/Perugia, Italy, 06129

Actively Recruiting

53

Ospedale Padova

Padova, Veneto/Padova, Italy, 35128

Actively Recruiting

54

Ospedale Policlinico Sede di Borgo Roma

Verona, Veneto/Verona, Italy, 37126

Not Yet Recruiting

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Research Team

E

Elena Biagini, MD, PhD

CONTACT

S

Silvia Palmieri, M. Sc.

CONTACT

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

0

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