Actively Recruiting

Age: 18Years - 99Years
All Genders
NCT05444920

The Italian Transthyretin Amyloidosis Web-Network

Led by Fondazione IRCCS Policlinico San Matteo di Pavia · Updated on 2026-03-27

1000

Participants Needed

30

Research Sites

276 weeks

Total Duration

On this page

AI-Summary

What this Trial Is About

The study aims, by generating a large registry of patients with ATTR amyloidosis, including data at diagnosis and during follow up, to describe the natural history of ATTR amyloidosis in a real-world setting and to define and validate prognostic models, response criteria applicable at any point of the disease. The registry will also be used for data sharing and to allow the possibility of a close collaboration amongst the amyloidosis experts of the ARTC and all the physicians around the Country involved in the diagnosis and management of systemic amyloidosis. Thanks to the online registry, the diagnostic facility of the ARTC will be made available to requesting physicians.

CONDITIONS

Official Title

The Italian Transthyretin Amyloidosis Web-Network

Who Can Participate

Age: 18Years - 99Years
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Suspected diagnosis of systemic and localized amyloidosis
  • Age 18 years or older
  • Ability to understand and willingness to sign an informed consent
  • Planned or ongoing follow-up at participating center
Not Eligible

You will not qualify if you...

  • Diagnosis of light chain (AL) amyloidosis

AI-Screening

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Trial Site Locations

Total: 30 locations

1

ASST Ovest Milanese - Ospedale di Legnano

Legnano, MI, Italy

Not Yet Recruiting

2

AOU San Luigi Gonzaga

Orbassano, TO, Italy

Not Yet Recruiting

3

AOU Ospedali Riuniti

Ancona, Italy

Not Yet Recruiting

4

Policlinico di Bari

Bari, Italy

Not Yet Recruiting

5

ASST Papa Giovanni XXIII

Bergamo, Italy

Not Yet Recruiting

6

ASST Spedali Civili di Brescia

Brescia, Italy

Not Yet Recruiting

7

Ospedale Oncologico "Armando Businco"

Cagliari, Italy

Not Yet Recruiting

8

Azienda Ospedaliera di Cosenza

Cosenza, Italy

Not Yet Recruiting

9

Presidio ospedaliero di Ivrea

Ivrea, Italy

Not Yet Recruiting

10

Asst Santi Paolo E Carlo

Milan, Italy

Not Yet Recruiting

11

Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico

Milan, Italy

Not Yet Recruiting

12

IRCCS Istituto Clinico Humanitas

Milan, Italy

Not Yet Recruiting

13

Istituto Auxologico Italiano

Milan, Italy

Not Yet Recruiting

14

Istituto Monzino

Milan, Italy

Not Yet Recruiting

15

IRCCS San Gerardo Monza

Monza, Italy

Not Yet Recruiting

16

'Azienda Ospedale. Università di Padova

Padova, Italy

Not Yet Recruiting

17

Fondazione IRCCS Policlinico San Matteo

Pavia, Italy, 27100

Actively Recruiting

18

Azienda Ospedaliera di Perugia

Perugia, Italy

Not Yet Recruiting

19

Ospedale Civile ASL Pescara

Pescara, Italy

Not Yet Recruiting

20

Azienda Ospedaliera Sant'Andrea

Roma, Italy

Not Yet Recruiting

21

Ematologia ASL Roma 1

Roma, Italy

Not Yet Recruiting

22

Fondazione Policlinico Universitario Agostino Gemelli CARDIOLOGIA

Roma, Italy

Not Yet Recruiting

23

Policlinico Universitario Agostino Gemelli NEUROLOGIA

Roma, Italy

Not Yet Recruiting

24

Plesso Ospedaliero "Andrea Tortora" di Pagani

Salerno, Italy

Not Yet Recruiting

25

Azienda Ospedaliero Universitaria di Sassari

Sassari, Italy

Not Yet Recruiting

26

Azienda Ospedaliero Universitaria Senese

Siena, Italy

Not Yet Recruiting

27

Ospedale San Giovanni Bosco

Torino, Italy

Not Yet Recruiting

28

l'Ospedale di Treviglio-Caravaggio

Treviglio, Italy

Not Yet Recruiting

29

Osp. Sant'Andrea

Vercelli, Italy

Not Yet Recruiting

30

Azienda Ulss 8 Berica

Vicenza, Italy

Not Yet Recruiting

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Research Team

P

Paolo Milani, MD, PhD

CONTACT

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

0

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