Actively Recruiting
LEADing Dementia End-of-Life Planning Conversations
Led by University of Utah · Updated on 2026-04-09
120
Participants Needed
1
Research Sites
147 weeks
Total Duration
On this page
Sponsors
U
University of Utah
Lead Sponsor
N
National Institute on Aging (NIA)
Collaborating Sponsor
AI-Summary
What this Trial Is About
Advance care planning is important for all adults, but perhaps even more so for the 5.7 million persons with Alzheimer's disease or related dementia (ADRD), due to the progressive and protracted cognitive deterioration associated with the disease process. In the context of ADRD, medical decision-making at the end of life is typically left to one's care partner, who often does not have the knowledge or confidence in their ability to make such decisions. This study will refine and evaluate a web-based platform, called the LEAD Intervention (Life-Planning in Early Alzheimer's and other Dementias), which is designed to help persons in the preclinical or early stage of ADRD engage in conversations about, document, and share their end-of-life values and preferences with a care partner, extended family members, and health care providers.
CONDITIONS
Official Title
LEADing Dementia End-of-Life Planning Conversations
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Care recipient is age 50 or older
- Care recipient is interested in discussing and documenting future end-of-life care wishes
- Care recipient has noticed memory or thinking changes indicating preclinical or early stage Alzheimer's disease or related dementia, or has been diagnosed with mild cognitive impairment, Alzheimer's disease, or another early stage dementia
- Care partner is age 18 or older
- Care partner is a spouse, partner, family member, or close friend of the care recipient
You will not qualify if you...
- Has moderate to severe symptoms of dementia
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
University of Utah College of Nursing
Salt Lake City, Utah, United States, 84112
Actively Recruiting
Research Team
K
Kara Dassel, PhD
CONTACT
N
Nancy Aruscavage, MS
CONTACT
How is the study designed?
Study Type
INTERVENTIONAL
Masking
NONE
Allocation
NA
Model
SINGLE_GROUP
Primary Purpose
SUPPORTIVE_CARE
Number of Arms
1
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