Sancergues

This research aims to design and assess a tailored primary care intervention to help manage the burden of caring for patients living with Alzheimer's disease or related dementia. The study involves healthcare professionals, informal caregivers, and academic experts collaborating to develop an effective support approach. The process follows recommended methods for developing complex interventions, including expert consensus and ongoing evaluation. The study is carried out in two phases. The first phase uses a Delphi-modified consensus method where panels of caregivers, healthcare professionals, and academic experts review and score proposed intervention ideas over 3 to 4 rounds. Topics are retained, eliminated, or refined based on scoring and group discussions. In the second phase, the developed complex intervention will be offered to three territorial professional health communities (CPTS). Data on how many caregivers were offered, accepted, or refused the intervention will be collected, along with qualitative feedback from voluntary participants and health professionals. Participants will be involved through surveys, focus groups, and interviews to explore the acceptability and co-construction of the intervention. Quantitative and qualitative data will be gathered to monitor the intervention's impact and to adapt it as needed. The entire process is continuous and aims to produce a detailed, practical care support model reported according to recognized guidelines. The study's primary outcome is the description of this tailored intervention after 12 months.