Sjobo

Researchers are evaluating new disease descriptions and management guidelines for breath-holding spells in children under 5 years old living in southern Sweden. The study aims to see if these guidelines reduce unnecessary diagnostic tests, ensure safe clinical management, and assess if iron supplementation lessens the frequency and severity of spells. It also explores the types of information and support parents need for children with these spells. Children diagnosed with typical breath-holding spells will be managed following the new guidelines. Those with a family history or signs of heart disease will receive an ECG, and children with two or more spells will have blood tests to check for anemia and iron deficiency. If iron deficiency is found, iron supplements are recommended. Digital surveys will be given to parents, and children with frequent spells may be invited to participate in interviews. Participants will undergo evaluations by medical doctors, with follow-up lasting up to 36 months to monitor safety and guideline use. The study will measure the safety of the guidelines over this period and usability shortly after inclusion. Researchers will also assess the usability of the disease definition until the doctors complete their assessments. Parents will provide information through surveys, and some may join interviews to share their experiences and support needs.