Rye Brook

Researchers are evaluating real-world experiences and medical outcomes for people with blood cancer through the Leukemia and Lymphoma Society (LLS) National Research Registry. This registry collects patient information and medical data over time from individuals before, during, and after their blood cancer treatments to better understand their health outcomes. Participants include people receiving any or all treatments for blood cancer. The registry collects data through patient profiles and medical records. Participants can allow a third party, Ciitizen, to retrieve their full medical records, including images, at no cost, or upload records themselves. Summary data, with personal identifiers removed, may be shared with research partners working to improve blood cancer treatments. Participants will be monitored over a long-term period of 10 years to track treatment outcomes and health changes. Researchers will collect updated medical information periodically and analyze these data to answer important research questions about blood cancer treatments and their effects.