Rye Brook

Researchers are collecting real-world experiences and medical outcomes from people with blood cancer through the Leukemia and Lymphoma Society LLS National Research Registry. This observational study gathers patient information and medical data over time before, during, and after blood cancer treatments to help answer research questions about blood cancer and its treatment outcomes. Participants provide permission for a third party called Ciitizen to obtain their full medical records, including images, at no cost. Participants can also upload their medical records directly. The study shares de-identified summary data with research partners who work to advance blood cancer treatments and may contact participants occasionally to update medical information. During the study, LLS will monitor treatment outcomes for up to 10 years. Participants are asked to provide their medical history and allow access to medical records. The registry collects data to help understand blood cancer experiences and treatment effects, supporting long-term research and improving knowledge for future care.