Study of LOG-AFTER Software to Improve Long-Term Follow-Up Care for Childhood and Young Adult Cancer Survivors

What this Trial Is About

Researchers are evaluating the impact of the LOG-AFTER software on long-term follow-up care for childhood cancer survivors, including those with brain tumors. This study focuses on personalized follow-up to detect complications that may affect quality of life or increase mortality risk. The LOG-AFTER software, developed in France, offers improved follow-up processes by linking patients and their general practitioners GPs and providing educational resources. Participants are randomly assigned to either use the LOG-AFTER software or receive usual care without the software. For those using LOG-AFTER, an account is created shortly after inclusion, allowing patients and their GPs to report examinations and consultations, ensuring personalized follow-up plans are up to date. Both groups complete questionnaires including the PAM-13, and follow-up is organized by their specialists or GPs. After three years, patients and GPs complete satisfaction surveys and updates to the personalized after-cancer plan PPAC are made as needed. During the study, data such as cancer type, treatment dates, and psychosocial information are collected. Patients complete the PAM-13 questionnaire at inclusion and again at 36 months. The study measures adherence to follow-up recommendations based on the PPAC over three years, patient and GP satisfaction, health status, software use, and patient empowerment. The total participation period spans three years with scheduled contacts and consultations to update follow-up plans and assess outcomes.

LOG-I - Impact Study of LOG-AFTER Software on Long-term Monitoring of Former Patients (LOG-I - LOG-Impact Study)