Observational Study of Thrombosis and Hemostasis Diseases in Chinese Patients Tracking Causes, Treatments, Outcomes, and Costs

What this Trial Is About

Researchers are conducting a multicenter, prospective, longitudinal observational study to investigate thrombosis and hemostasis diseases in Chinese patients. These conditions include various bleeding and clotting disorders such as immune thrombocytopenia, thrombotic thrombocytopenic purpura, hemophilia, disseminated intravascular coagulation, thrombophilia, deep vein thrombosis, and pulmonary embolism. The study aims to analyze incidence, risk factors, treatment methods, prognosis, and medical expenses because current knowledge is limited by small sample sizes and lacks comprehensive large-scale data. This study collects patients basic information, diagnostic and treatment details, and medical expense data from medical records. It uses questionnaires to assess patient exposures and follows patients prospectively to gather prognosis information over time. The study involves ongoing observation without any experimental treatment or intervention. Participants will have their medical records reviewed and complete questionnaires measuring exposure. Researchers will monitor outcomes such as prognosis over five years, incidence and distribution of diseases, treatment response, long-term remission rates, treatment safety, and health economic factors. The study includes follow-up assessments to gather comprehensive data on patient health and care costs, lasting up to five years.

Longitudinal Cohort of Thrombosis and Hemostasis Diseases