Mayo Clinic Upper Digestive Disease Survey for Patients Undergoing Esophageal Surgery or Treatment

What this Trial Is About

Researchers are evaluating standardized questionnaires called the Mayo Clinic Conduit Report Card Questionnaires to consistently assess patients who have undergone esophageal reconstruction or treatment, or who have upper digestive diseases. The goal is to validate these questionnaires and establish normal or expected scores for different types of esophagectomy procedures and upper digestive conditions. This data will help develop treatment guidelines for symptom management, post-operative complications, and support pre-operative patient education. The study involves patients completing the Mayo Clinic Upper Digestive Disease Survey, which combines several validated patient and provider-reported questionnaires. Patients complete the survey at their one-month surgical follow-up, then every three months for one year after surgery, followed by annual or surveillance visits for life. The survey can be done during clinic visits, by phone, mail, or electronically through an app available for both Mayo Clinic and non-Mayo Clinic patients. Participants provide information on demographics, surgeries, nutrition, lab tests, and clinical outcomes. Researchers collect data through questionnaires and medical record reviews at scheduled intervals. The main outcome measure is the completion of the survey at different times post-surgery over one year, with secondary outcomes including defining normal scores over three years. Participation may continue yearly for life, allowing ongoing monitoring of upper digestive symptoms and outcomes.

Mayo Clinic Upper Digestive Disease Survey